Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hope This Helps :)


jay88

Recommended Posts

jay88 Apprentice

Hi everyone thought id share with everyone my good news!I have grown up with chronic insomnia roughly from the age of 6 I was always fatigued and tired and struggled throughout my childhood and then finally the breakthrough came at the age of 21 (so thats 15 years of sleeping 1 hour a night!) I decided to take an IgG food intolerance test and shown I had positive reactions for gliaden and cows milk! and now after a long wait, (about 4 months in fact!) Im officially no longer an Insomniac, i started sleeping it still takes me an hour to drop off but when i do i sleep through the night.

I do just sit there and think to myself I have been ill my whole life due to food!! its scary to think

Unfortunatly, I still have Brain fog which i can not for the life of me get rid of!

hope this gives people hope :)

James


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wheeleezdryver Community Regular

Hi everyone thought id share with everyone my good news!I have grown up with chronic insomnia roughly from the age of 6 I was always fatigued and tired and struggled throughout my childhood and then finally the breakthrough came at the age of 21 (so thats 15 years of sleeping 1 hour a night!) I decided to take an IgG food intolerance test and shown I had positive reactions for gliaden and cows milk! and now after a long wait, (about 4 months in fact!) Im officially no longer an Insomniac, i started sleeping it still takes me an hour to drop off but when i do i sleep through the night.

I do just sit there and think to myself I have been ill my whole life due to food!! its scary to think

Unfortunatly, I still have Brain fog which i can not for the life of me get rid of!

hope this gives people hope :)

James

That is great!

  • 1 month later...
viviendoparajesus Apprentice

that is great your sleeping better and not having insomnia any more. my sleep got better too when i went off gluten. i used to have trouble falling asleep and staying asleep.

  • 2 weeks later...
Mummyto3 Contributor

I'm another insomniac. I struggle to get to sleep and then when I do, i wake up 2 to 3 times in the night. Whats gliadin???

love2travel Mentor

I've had chronic insomnia for years but the past nearly four it has worsened due to severe chronic pain. It takes a couple of hours to fall asleep then I wake up probably 20-30 times a night. It is difficult for me to get into a good position so I must move often. :huh:

It would be AWESOME if I were to find that this is also related to my celiac. I have been strictly gluten-free nearly five months and would be thrilled if my insomnia improves on this diet.

Marilyn R Community Regular

I used to have insomina. It went away when I went gluten-free. I notice right away when I've accidently injested gluten, because I get maybe an hour's worth of sleep. I'll just lay there and wish, and thoses of you who know, I fidget. I hate the fidgets. :ph34r:

gailc Newbie

Same for me HOORAY, except when I get dosed.

I used to wake up more tired than when i went to bed, then as the day went on I'd feel better then tired around 8 and second wind around 9 then stay up until about 3.

Now i get tired around bed time and then REALLY tired and fall asleep right away. SWometimes I get tired earlier wake up about 7 hours later to discover I'd missed dinner.

I guess that's ok

I feel good when I wake up now


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Whats gliadin???

Gliadin proteins comprise one of the two main protein groups in gluten.

https://www.celiac.com/articles/8/1/What-is-gluten-What-is-gliadin/Page1.html

Newbee Contributor

Looks like I've had celiac my whole life (I'm 37) and just getting diagnosed now because I asked to be tested for it. I've never slept well. I'm soooooooo looking forward to when I heal and hopefully can sleep well!!

bartfull Rising Star

I've had insomnia all my life - sort of. I am one of those people whose biological clock is set differently. I can fall asleep quickly during the day, but after dark I would lie awake for hours. For the past ten years or so, I also had trouble staying asleep. I'd sleep for two hours, then wake up and couldn't get back to sleep. So I'd get up and read for a while, then after an hour or two I'd go back to bed and sleep another hour or two - then repeat until morning.

Since going gluten free, I sleep seven or eight hours straight, every night. If this were the ONLY benefit of a gluten free diet, it would be worth it. I feel GOOD!

lovesaceliac Newbie

Unfortunately, this hasn't been the case for my husband who has been a chronic insomniac for over ten years. Going gluten free two years ago has totally changed our life - he's healthier, happier, thinner, stronger, etc...but still has restless leg syndrome and still sleeps poorly. Sleep is definatley worse when he gets glutened, but pretty bad all the time. As someone who shares a bed with him I've noticed on his particularly bad nights (anxiety attacks, bad RLS, etc.) his whole body seems to radiate heat. He gets so warm that it's uncomfortable for me to touch him. Anyone else have additional solutions to sleep problems?

bartfull Rising Star

I know this sounds crazy, but it works for restless leg syndrome. Put a bar of soap under the bottom sheet near his legs. I'm serious. They don't know WHY it works, but it truly DOES work.

For leg cramps, try a teaspoon of mustard before bed, or if not mustard, try pickle juice. Another crazy home remedy that really works.

lovesaceliac Newbie

I just read several online testimonials about the bar of soap remedy. A miracle for some, doesn't work for others. But hey, might as well give it a try. I'm going to put it in bed tonight w/o telling him and I'll report back. :)

bartfull Rising Star

I just read several online testimonials about the bar of soap remedy. A miracle for some, doesn't work for others. But hey, might as well give it a try. I'm going to put it in bed tonight w/o telling him and I'll report back. :)

Make sure it is unwrapped.

GFinDC Veteran

B vitamins and magnesium are two remedies often suggested on this board. I used to have low grade fevers and wake up sweating a lot. Most likely there is still something in his diet that he is reacting to. Additional food intolerances are common with celiac disease. Any of the top 8 food allergens are possible or multiple foods for that matter. Soy and dairy are fairly common problems but so are nightshades, eggs, corn, nuts etc, etc.

There are a couple threads on "night sweats" on the board.

stellinpa Newbie

Unfortunately, this hasn't been the case for my husband who has been a chronic insomniac for over ten years. Going gluten free two years ago has totally changed our life - he's healthier, happier, thinner, stronger, etc...but still has restless leg syndrome and still sleeps poorly. Sleep is definatley worse when he gets glutened, but pretty bad all the time. As someone who shares a bed with him I've noticed on his particularly bad nights (anxiety attacks, bad RLS, etc.) his whole body seems to radiate heat. He gets so warm that it's uncomfortable for me to touch him. Anyone else have additional solutions to sleep problems?

I have had Restless Leg Syndrome for years. I took medication for it and it really helped me. Unfortunately the medication stopped working several months ago. Going Gluten Free did not seem to help but just recently I cut milk out of my diet and the last 2 nights I had the best sleep I've had in years! I don't know if it is related or not but it's worth a try.

He might want to see a Neurologist about his restless legs.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,694
    • Most Online (within 30 mins)
      7,748

    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.