Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Member From Washington, Hi!


KuKuKaChoo52

Recommended Posts

KuKuKaChoo52 Newbie

Hello, I'm a 22 year old named Nolan from Washington. Been gluten-free for almost a year due to allergy that I found through my Naturopath. The other doctors couldn't figure out why my stomach hurt... Anyway, just like the idea of a help site from people similar to me who might have more time/care about helping and finally googled it. I'm excited to be here!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hello, and welcome. Kick your shoes off and make ourself at home. And anytime you want some help, sing out :)

KuKuKaChoo52 Newbie

Haha thank you! Will do. Right now, I'm just trying to get the hang of things and browsing. There is lots of good stuff on here. I guess I'm just suprised how most of the stuff in the gluten-free section seems to be junk food. I can find all the cookies in the world, but I want healthy snacks lol... I'm doing all right, but just probably need to cook more. Still having trouble eating out, everytime I do I have a terrible reaction. I'm allergic to gluten and dairy and I tell people and most people don't even know what gluten is, so I just have a hard time letting myself go out to the torture of restaurant food anymore. Not sure what to do about that, because I still want to be social and go out with people. Any help on that subject?

Jestgar Rising Star

It takes some time to get comfortable with going out. I found a few places I trust and only went there for the first couple years. Mexican is usually easy to assess, and Vietnamese is pretty gluten and dairy and soy free.

KuKuKaChoo52 Newbie

Yeah I could imagine it does take time... I have got terribly sick from mexican and don't know what it could be. I ordered carne asada without the tortillas. So it was basically just the rice, meat and then full beans, because he said the refried beans had cheese sprinkled in already... Vietnamese might be worth a try.

Jestgar Rising Star

At my fav mexican place I can't eat the fajitas presumably because there's either gluten in the sauce they marinate the meat in, or it's cooked on a grill with gluten foods. I get a burrito without the outside and that's fine.

KuKuKaChoo52 Newbie

Oh, probably those 2 factors get me then... Just had a gluten free burger last night off the "gluten free" menu and feel horrible. Won't be eating out again very soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 months later...
lilu Rookie

Hey Nolan! I'm in Los Angeles now, moved here from Redmond about a year ago, and missing Seattle VERY MUCH!!! When you go out, do you ask for the gluten-free menu? That might help (though certainly no guarantees! I know it's sacrilege up there, but you could try outback steakhouse. They have a pretty good gluten-free selection, just keep the bread away from the table. You might want to get some dining cards. You can get them in different languages, and when going to authentic places, like Vietnamese, etc, it can help when there are language barriers.

Re: Vietnamese and other far eastern foods... Soy sauce has gluten! Beware! Get yourself a bottle of tamari sauce (gluten-free soy) to take with. Teriyaki...probably not safe. :(

Microbrews, definitely off the list, unless you can find a local brewer w/ a gluten-free brew... There are a few out there.

The good news is coffee is gluten-free! So be a dear, run down to your local coffee hangout, and order me a grande soy half caf vanilla latte, OK? No one here even knows what that is!!!

Missing PNW! Hope all works out for you!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.