Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Think I Got 'glutened'?


AussieAmanda

Recommended Posts

AussieAmanda Rookie

I have my suspicions that the meal I had at the food court yesterday had gluten in it. It was a butter chicken 'curry' with white rice. I'd bought curry at a food court before but afterwards realised it was a different chain store (the other one had 'gluten free' signs up).

It didn't immediately effect me although I was already fatigued and I got a little bit shaky. Then, from midnight onwards last night I got the internal shakes really bad, I also got night sweats and it would come in rolling heat waves. I also felt extremely dehydrated, my lips were so dry and just would not stay moist for long at all. I got to sleep around 2.30am. This morning I felt tired but still shaky, felt a tiny bit better after eating. This afternoon I'm wiped, probably from lack of sleep but I'm still shaking and when I lie down I have the internal shakes the worst still. I've had some muscle twitches too the whole time. I also feel a bit bloated tonight.

So, does this sound like a glutening?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Could be. You may get D in the next day or two. Eating at food courts without gluten free menus is always risky. Better to bring a snack in your bag or eat before you leave.

AussieAmanda Rookie

So is it usual for the effects of being glutened to take a little while to hit and then to go after its passed through your body?

ravenwoodglass Mentor

So is it usual for the effects of being glutened to take a little while to hit and then to go after its passed through your body?

Yes. For example with myself neuro symptoms hit pretty quick but the D takes about 3 days. Some will get an upset stomach or other symptoms within hours of injestion but some can take up to a week to react. That is why when we do elimination diets we are supposed to add the new foods in one at a time and for a week straight before deciding we are okay with it. A symptom and food log can help us to see what our pattern is.

AussieAmanda Rookie

Ok, well I'll see what happens. Does D always happen?

AussieAmanda Rookie

Ok, had a bit of D but not a lot. However I'm still feeling so dehydrated, I'm up to 48 hours since I ate the meal. The internal shaking has stopped but I'm very fatigued (could be the low iron though) and still having muscle twitches. I took a magnesium tablet this morning for that which I think helped and have been drinking water all day but still feel so thirsty. Anyone else have this?

Meg123 Explorer

This is basically what happened to me last Thursday. I've been on the gluten challenge thing, and last Thursday, (it was 3 weeks into the challenge) I too was already feeling brain fog, pale, fatigued etc. I was also increasingly stressed and anxious (physically so, not due to anything in my life) and then I just started trembling, shaking, and my heart started racing. I too had D two days later quite noticeably worse than usual, and have now a bit since, but it's dying down, as is my gluten intake.

At the time, I assumed it was gluten related, but I don't really know. Reading your post, made me think more that it was gluten related.

I also noticed how extra extra dry and dehydrated I've been on this challenge, but hadn't really linked it to gluten as I thought it was another medication I've started, but now I'm thinking maybe it was related.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - kpf posted a topic in Introduce Yourself / Share Stuff
      0

      Vegetarians and vegans with celiac disease

    2. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    3. - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    4. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,335
    • Most Online (within 30 mins)
      7,748

    Kathleen Groner
    Newest Member
    Kathleen Groner
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • kpf
      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.