Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Best Vit D To Take?

AmandaD

By AmandaD
in Coping with Celiac Disease

Recommended Posts

AmandaD Community Regular
AmandaD
Posted

Guys - I'm supposed to be taking a good vitamin D supplement...can someone recommend one they like please?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marilyn R Community Regular
Marilyn R
Posted

Guys - I'm supposed to be taking a good vitamin D supplement...can someone recommend one they like please?

I've been on Solgar Natural Vitamin D3 2200 IU for a couple months now. (Found it at a local health food store.) I haven't had any problems with it and in fact feel much better ... it took a couple of weeks to notice marked improvement. (My short term memory and fatigue improved first, now my fingernails are actually appearing more healthy. My hair loss has taken a 360 - I think I'm starting to replace lost hair!

It says on the label "Free of Gluten, Wheat, Dairy, Soy, Yeast Sugar, Sodium, Artificial Flavor, Sweetener, Preservatives and Color". Oh, and they've been around since 1947.

Hope you can find them at your local HF store.

Good luck! (And from my research, you need B-3, not B-2.)

Edo Rookie
Edo
Posted

I take Carlson Ddrops Vitamin D3, 4000 IU. It comes in other doses too, including 600, 1000, 2000, maybe others I don't know about. It's convenient because it is in liquid form, you only need one drop a day, and there are a year's worth of drops per bottle. This is the best type for absorption, in terms of the type of D (D3) and the fact that it is an oily type rather than a dry pill type. It can even be dropped under the tongue to bypass the digestive system, if your GI system is not in top form to utilize it that way (a problem for a lot of us). It doesn't have a taste. It can be added to a beverage or food also. Ingredients are just D3 and fractionated coconut oil. I think there are other brands like this, but I use Carlson and have been happy with it. ^_^

sa1937 Community Regular
sa1937
Posted

I use Bluebonnet EarthSweet Chewable D3 2000 IU. Yummy raspberry flavor Open Original Shared Link I buy them from my local health food store.

IrishHeart Veteran
IrishHeart
Posted

I use Now Brands D-3. (I need my vitamins to be soy fee, too) I had to do the 5000 IUs at first and it boosted my D levels right up. I will move to the 2000 in time.

ravenwoodglass Mentor
ravenwoodglass
Posted

I started with the NOW D3 5000 also. I now take those once a week and on the other days I take the NOW 1000 and vit K-2 combo pill. For me the addition of the K seems to have helped with a skin discoloration that I have had for a while. No idea what it is or why the K is helping but if I skip them for a few days in a row the red splotches (looks like bleeding specks under my skin) come back.

Edo Rookie
Edo
Posted

I started with the NOW D3 5000 also. I now take those once a week and on the other days I take the NOW 1000 and vit K-2 combo pill. For me the addition of the K seems to have helped with a skin discoloration that I have had for a while. No idea what it is or why the K is helping but if I skip them for a few days in a row the red splotches (looks like bleeding specks under my skin) come back.

Sorry to be off topic, but it's interesting you mention red splotches. My sister was just complaining of them and showed them to me yesterday. I'm not sure if she's celiac, but she has ITP. I guess she didn't think the spots were petechiae, which appear due to bleeding in small blood vessels under the skin when platelets are very low. But they did look the way you described. Maybe vitamin K would help her. :blink: Thanks for mentioning.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Chad Sines Rising Star
Chad Sines
Posted

Be sure you are getting enough magnesium or you can get evil side effects from the vitamin D, nausea, tremors, etc. It usually only happens at the higher doses (over 1000 iu)

IrishHeart Veteran
IrishHeart
Posted

Sorry to be off topic, but it's interesting you mention red splotches. My sister was just complaining of them and showed them to me yesterday. I'm not sure if she's celiac, but she has ITP. I guess she didn't think the spots were petechiae, which appear due to bleeding in small blood vessels under the skin when platelets are very low. But they did look the way you described. Maybe vitamin K would help her. :blink: Thanks for mentioning.

I read that Vitamin K deficiency is linked to nosebleeds and easy bruising. Maybe that's why? Just thinkin....!

tarnalberry Community Regular
tarnalberry
Posted

I second Carlson's.

thleensd Enthusiast
thleensd
Posted

I've read that the oil-filled soft-gels are better than dry. I take Country Life brand, 5000 IU (D3) per day. They make smaller doses, too. Certified gluten-free.

When I was super deficient, I got a prescription for 50,000 IU once per week. It looked just like the soft-gels I take now. Did that for eight weeks.

Loey Rising Star
Loey
Posted

Guys - I'm supposed to be taking a good vitamin D supplement...can someone recommend one they like please?

My doctor had me taking 4000 mg of D3 with vitamin C in it. I had high levels after my first blood retest so I stopped it and will be tested again. Hope this helps.

Loey

P.S. I used the CVS drug store brand - it was gluten-free

Korwyn Explorer
Korwyn
Posted

Just remember that vitamin D and vitamin K are FAT soluble vitamins. If you don't take in an adequate amount of fats or oils your body will NOT absorb them properly, if at all. This can be exacerbated by the usual celiac disease issues of malabsorption. So I would suggest that you either take a liquid form (such as a fish oil) or take it with a good dose of some healthy type of oil. Preferably unrefined, organic coconut oil. If you are taking multiple 1,000s of units of D3, it may be very difficult to get enough oil/fat to facilitate absorption in a meal.

ravenwoodglass Mentor
ravenwoodglass
Posted

Just remember that vitamin D and vitamin K are FAT soluble vitamins. If you don't take in an adequate amount of fats or oils your body will NOT absorb them properly, if at all. This can be exacerbated by the usual celiac disease issues of malabsorption. So I would suggest that you either take a liquid form (such as a fish oil) or take it with a good dose of some healthy type of oil. Preferably unrefined, organic coconut oil. If you are taking multiple 1,000s of units of D3, it may be very difficult to get enough oil/fat to facilitate absorption in a meal.

Yes and that is also why it is possible to take too much of them. If folks are taking megadoses it is a good idea to have your doctor check your levels periodically to make sure you are not up to a toxic level.

Korwyn Explorer
Korwyn
Posted

Yes and that is also why it is possible to take too much of them. If folks are taking megadoses it is a good idea to have your doctor check your levels periodically to make sure you are not up to a toxic level.

Really good point. That's why I insist with our Dr. that both my wife and I get them checked every three months. My Dr. has me on 8,000 Units a day and she is on 2,000 units a day. I don't need to take E or K supplements any more, but you bring up a really good point and while I think about it, I forget that a lot of people don't realize that danger. Any of the fat soluble vitamins can build up to toxic/unhealthy levels very rapidly, especially if you have had a diet low in good oils/fats or you have had malabsorption issues that have started healing.

I recall a similar discussion a couple months ago that I think you commented on as well relating to peripheral neuropathy where the OP had started experiencing symptoms again. Turned out they were getting weekly B12 injections, plus taking sub-lingual B12, and some other B supplements. Because of the injections their body couldn't flush the normally water soluble B12 out since it was a direct injection.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.