Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Completed Endoscopy


jemms

Recommended Posts

jemms Apprentice

Had my endo done today and the photos of the stomach and esophagus came back normal. the doctor said that it looked good. I am waiting to see what the biopsy shows. Is it normal to have the stomach look good but the biopsy show damaged villi?

Also, he said that since I have the antibodies for Celiac's to start with the gluten free diet and see a dietician. I want a definitive yes or no. This is driving me nuts!!Thanks so much!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

You have to wait for the microscopic report; damage is often not visible to the naked eye.

ravenwoodglass Mentor

Since you have antibodies you already have a definate yes even if the biopsies are normal. Damage can be patchy or can be in an area that is beyond the reach of the scope. Do follow your doctors advice and start the diet strictly as you do need to be on it.

jemms Apprentice

thanks so much for your replies!! I am so grateful for this forum!

maximoo Enthusiast

Jemms: How was it? How long were you under? Was your throat sore afterwards? How was the anesthesia administered, pill, mask, shot?

raven: What is the point then of having an endoscope then? just to see if villi is damaged? but then Dr might snip an undamaged section. With over 20 feet to choose from as you say its quite possible not to get an accurate sample. I am more on the side now of not having my kids get the endoscopy. I don't think its worth the risk and the time the more I learn.

jemms Apprentice

Maximoo,

It was painless and an overall good experience. I had an IV put into my hand and they administered the anesthesia when I got wheeled into the procedure room via the IV. I think I was only out for about 35 minutes. I had no problems afterward with a sore throat. All went well. :D

ravenwoodglass Mentor

raven: What is the point then of having an endoscope then? just to see if villi is damaged? but then Dr might snip an undamaged section. With over 20 feet to choose from as you say its quite possible not to get an accurate sample. I am more on the side now of not having my kids get the endoscopy. I don't think its worth the risk and the time the more I learn.

For a long time the only way to diagnose was the endo and some doctors still see it as the 'gold standard'. More doctors are starting to diagnose with just positive bloodwork and response to the diet. Sometimes a ped or GP will give the diagnosis once the persons health has returned as they usually see the full effects of the impact over the years whereas a GI doctor may only see the person once before the endo and once afterwards. Personally with positive bloods I would just consider myself diagnosed. However the endo can be useful as a 'baseline' with doctors able to check if damage is still present after a few months on the diet. Although with positive blood work healing on the diet can also be checked by seeing if the antibody levels have gone down. IMHO it is up to the person to decide if they want to have the procedure done. There are downsides and upsides to it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,072
    • Most Online (within 30 mins)
      7,748

    Gigic
    Newest Member
    Gigic
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.