Pain And No Clue What It Is

[stef-the-kicking-cuty]

Aaaauaaa! I'm in terrible pain today. I think, something that I ate might have had gluten in it, which is strange as I've had everything before with no reaction. Even the nonpareils, that don't even have a lable. Just wanted to know, if somebody else has had this kind of pain before and if yes, what it is. I'm guessing nerves here, but not sure. It's kinda like at my left hip joint and radiating into the back of my buttom. Also down on my left foot there is a numb sensation going kinda on the bottom of the foot on the outside edge with the pinky toe being numb all the way back to the heal. I had sciatic nerve pain before, which seems to be different from this one. This one is NOT radiating down my leg. However I did have terrible muscle twitching in the bottom of the bottom of my left leg, in my left calve, and the left hamstring, while I was napping with Lukas. Oh, and another thing. Whenever I press down on my belly on the left side, it seems to be getting better a little and then coming back. I can also move "juices" around in my belly by massaging it away and the pain differs then. That seems to be celiac related, cause I could do that in the past with my migraines, before going glutenfree. If it is, then it might just go away, when whatever I ate comes back out. But if it isn't, I don't know, what to do. It might be a pinched nerve, but I only have basic health insurance from the Welfare Office. That one's never gonna pay for a chiropractor. Only for basic health checks AND emergency room stuff. Assuming I'd go to the emergency room later, could they put a pinched nerve back in? Or would they just give me pain medication and send me to the chiropractor? Just curious. I'm dying over here. Don't know, how to walk, stand, sit or lay down. If the devil would offer me a pain free life at this moment, I'd sign my life away. Aaaah!

[ravenwoodglass]

Stef if you are in so much pain you can't walk, stand or lie then going to the ER is going to be your best option.

They may not be able to do much other than give you pain relief but it sounds like you need that right now.

[stef-the-kicking-cuty]

Thanks for your answer. The thing is, every once in a while it becomes better, like now. It's not completely gone, but it's a lot better, now that I've been walking around and preparing dinner. Strange! Just wanted to know, if anybody on here had this before, cause I know, I never did and it is very unusual for me to have this.

[ravenwoodglass]

  On 5/23/2011 at 9:27 PM, stef_the_kicking_cuty said:

Thanks for your answer. The thing is, every once in a while it becomes better, like now. It's not completely gone, but it's a lot better, now that I've been walking around and preparing dinner. Strange! Just wanted to know, if anybody on here had this before, cause I know, I never did and it is very unusual for me to have this.

Glad to hear it is a bit better now. I do get some muscle pain when glutened but I get lots of other symptoms to go with it.

I hope it continues to improve and is totally gone soon but take it easy on yourself until you are pain free.

[Mari]

You may be able to find a Yoga instructor who works with pain problems.

Have you been tested for Lyme Disease?

[tarnalberry]

It could still be sciatica - it manifests very differently depending on exactly what is going on. What first comes to mind is a disc issue (it can cause pain in the abdomen as well, due to inflammation).

[stef-the-kicking-cuty]

OK now. I did not go to the emergency room. But I wanted to let everybody know, what I've found out. I've done some research now on this board and on other places and came to the conclusion, that this must be gluten ataxia with some kind of arthralgia (or whatever you call it). Because of the numbness/tingling of my foot and the twitching in my leg. I also had something that might have been cramps, but it was much more severe. Almost like a seizure. Weird!

I did not have pain in my belly, I could just move around something that felt like a "liquid", which I could before... 7 years ago, when I wasn't diagnosed with celiac yet. And during THOSE years I also had severe balance problems and was running into things, typical for the ataxia.

Now my question is, does this numbness go away? It's driving me crazy. I'm usually 100% glutenfree, I just had this little slip up. Oh, and I have been totally glutenfree since July 2004, so I was wondering, if I might have some hope on this getting better.

Thanks for all the info, Stef

[stef-the-kicking-cuty]

3 days ago I came across the book "What Your Doctor May Not Tell You About Fibromyalgia: The Revolutionary Treatment That Can Reverse The Disease" by R. Paul St. Amand and Claudia Craig Marek .

I'm not so sure, that the symptoms that I had are the ones of gluten ataxia, because while reading the book I learnt that numbness and tingling of limbs can be a symptom of fibro, too. Also can joint pain be, that gets worse, whenever somebody touches you. That's the one I had in the hip. It also says that fibro can come with hypoglycemy in 40% of the cases. I've had hypoglycemy all my life. I'm also suffering from severe fatigue. So now I'm wondering of course, if it couldn't be fibro with heavy fatigue and glycemy. Dr. Amand states, that the fibro can be reversed and even cured with several diet restrictions and guaifenesin.

So now I already started on the diet that he promotes minus the gluten of course and the entire day yesterday has been soooo much better . I haven't even done the entire afternoon nap with my son like I usually do. I woke up earlier, the same this morning and I slept almost the entire night through, except of a bout, where my son kicked me in the face .

I'm only halfway through that book, but I'm seeing an improvement with that diet already, at least on the fatigue, even though my foot is still numb and I can't stretch proberly. However after everthing I've read so far I will definitely look into this. He claims, that the fibro is treatable AND curable with guaifenesin, which has absolutely no side effects. And that guaifenesin has to be prescribed, except of the 200mg version. So (I studied medicine, so I'm not scared to try this) I will try this on myself together with the diet, that he explains (except of the gluten) and will see, what happens one or 2 months from now. So far I've been absolutely sugar free and on a low carb diet. This is not all carbs, just the carbs, that he recommends to cut out, which is quite a lot. Whatever happens, I will definitely keep everybody updated. I think, I'm on to something.

[Mummyto3]

It's sciatica. Your sciatic nerve is trap. I often get it right down my left leg. It's really really painful!