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Just Made The Decision To Cancel Family Vacation!

2johndeereboys

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2johndeereboys Explorer
2johndeereboys
Posted

Hi!

Well it's official........ my DH and I just decided to cancel our family vacation. :( I still have not heard from my Dr about my Celiac Panel results and my symptoms are getting worse by the day. I am soooo very afraid of being trapped in a car for 10 + hours there and back.

Of course I offered to stay home by my self but for my family that was not an option. I am so dissappointed. I HATE being the reason for the cancellation. I truly feel like I am letting my family down! :(

Life just stinks sometimes!!!

Well I guess that's all I needed to say. thanks for letting me vent!!

Goodnight!!!!

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Jestgar Rising Star
Jestgar
Posted

Why do you need to wait for the panel? Just stop eating gluten and go on vacation.

kareng Grand Master
kareng
Posted

Maxi-pads?

2johndeereboys Explorer
2johndeereboys
Posted
  • Author

Why do you need to wait for the panel? Just stop eating gluten and go on vacation.

My reason for waiting is just incase I get a negative and my Dr wants to do a biopsy. If it wasn't for that I would most definitley go gluten free ASAP!!!

That and we were supposed to leave in about 10 days. If by some chance I got my results this week would I have time to deglutenize myself?

We just don't think it's enough time.

I appreciate both your input!

Jestgar Rising Star
Jestgar
Posted

Can you reschedule your vacation? Go somewhere else, do something else? Don't cancel the family fun, just do it differently.:)

kareng Grand Master
kareng
Posted

Maybe a few small vacations? A few days in St. Louis? Afew days at Silver dollar City? That sort of thing. We used to do those types of vacations.

bbuster Explorer
bbuster
Posted

My reason for waiting is just incase I get a negative and my Dr wants to do a biopsy. If it wasn't for that I would most definitley go gluten free ASAP!!!

That and we were supposed to leave in about 10 days. If by some chance I got my results this week would I have time to deglutenize myself?

We just don't think it's enough time.

I appreciate both your input!

I'm no expert, but in my son's case, from the time the doctor decided to do an endoscopy and when we did it was a time lapse of maybe 7-8 weeks. From memory I was thinking 2-3 weeks of eating gluten before the scope was sufficient.

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GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Have you called your dr to see if the results are in yet? Sometimes they just don't call if it was negative. Or something may have gone wrong in sending out the labwork. When I got my allergy testing last month I called two weeks later becaus ei hadn't heard anythign and when my dr went to check on the tests he found out my blood samples had not yet been sent for testing. They were still sitting in the lab where I had the blood drawn. Do call to follow up if you haven't yet.

2johndeereboys Explorer
2johndeereboys
Posted
  • Author

I haven't called my Dr. I am thinking if I haven't heard from her by Friday I may call. But she has a nurse that always answers the phone and boy does she get nasty with you!! :o

We actually have tickets to a Cardinals game in late July, the game is on a thursday so we thought about making it a long weekend! I am worried about the cardinals game too. If I do have Celiac disease will I be able to eat anything at the stadium. Our tickets are in the Bank of American club and they are all inclusive (meals & drinks furnished). But I will worry about that when it draws closer.

thanks so much for yalls replies!

Have a good nght!!

kareng Grand Master
kareng
Posted

I haven't called my Dr. I am thinking if I haven't heard from her by Friday I may call. But she has a nurse that always answers the phone and boy does she get nasty with you!! :o

We actually have tickets to a Cardinals game in late July, the game is on a thursday so we thought about making it a long weekend! I am worried about the cardinals game too. If I do have Celiac disease will I be able to eat anything at the stadium. Our tickets are in the Bank of American club and they are all inclusive (meals & drinks furnished). But I will worry about that when it draws closer.

thanks so much for yalls replies!

Have a good nght!!

Someof the baseball stadiums have a gluten-free stand. I don"t think it's in the included club food. Call the disability or customer service office to find out.

Lisa Mentor
Lisa
Posted

Imodium! :D

2johndeereboys Explorer
2johndeereboys
Posted
  • Author

Someof the baseball stadiums have a gluten-free stand. I don"t think it's in the included club food. Call the disability or customer service office to find out.

What a great idea!!!

Thanks so much!!!

:D

kareng Grand Master
kareng
Posted

What a great idea!!!

Thanks so much!!!

:D

They aren't playing the Royals are they? ;)

bbuster Explorer
bbuster
Posted

We actually have tickets to a Cardinals game in late July, the game is on a thursday so we thought about making it a long weekend! I am worried about the cardinals game too. If I do have Celiac disease will I be able to eat anything at the stadium. Our tickets are in the Bank of American club and they are all inclusive (meals & drinks furnished). But I will worry about that when it draws closer.

There is a St. Louis area Celiac support group on Yahoo (stlouisalerts), and I have seen several postings on gluten-free food/drink at Busch Stadium. Check it out. All you need to join is a free Yahoo account, and you can research and also post questions. I subscribe to it (get email alerts on postings) because I have relatives in the area and go there occasionally. Last fall my son's school went to state in soccer. We went and stayed with my brother, and visited a great gluten-free bakery and had gluten-free pizza that was awesome.

stlouisalerts

Description

We are a group of people who have Celiac Disease in the St. Louis, MO and Belleville, IL area. We alert each other where we can buy Gluten-free products and restaurants that understand Gluten-free.

2johndeereboys Explorer
2johndeereboys
Posted
  • Author

Thanks so much! I will definitley check that out Bev!! B)

No they are playing Houston! :P

love2travel Mentor
love2travel
Posted

Having just returned from a three-week vacation in Europe I would say don't cancel your vacation! It really is easier than you think. When you worry about something that COULD happen and avoid it it is called fear avoidance - I had that for ages with my horrific chronic back pain and fibromyalgia. I would always ask, "What if...". Usually those what ifs don't happen. No narcotics or anything helps my pain. Zip. But I absolutely refused to allow it and my Celiac to prevent me from doing what I love most - spend time at our house in gorgeous Croatia. It has given me so much more confidence now. I handled the horrible flights (barely but I did) so I feel now I could do pretty much anything.

I had to endure very long flights, many layovers, flight delays, etc. (long story) in excruciating pain as well as dealing with celiac. On one flight I was in so much pain I begged the flight attendant to let me lie on the floor. Of course that was not allowed. However, it was still worth it (in retrospect - at the time not so much). The freedom of doing what I wanted was incredibly liberating.

My husband and I were in Croatia and Italy at food and wine events, superb restaurants, etc. and always managed. I took lots of gluten-free snacks along from Canada and was very prepared for every eventuality. I never allowed myself to be stuck without something to eat. It took lots of planning and organizing but it worked! We are already looking at seat sales for Fall. :D

So, if I were you, I would re-think your plans. Take lots of Imodium and do it. With me the thought of something is almost always worse than the reality. I was so worked up about going that I grew very anxious and requested short-term Ativan. I do not have to do that any more. I control it - it does not control me.

2johndeereboys Explorer
2johndeereboys
Posted
  • Author

Having just returned from a three-week vacation in Europe I would say don't cancel your vacation! It really is easier than you think. When you worry about something that COULD happen and avoid it it is called fear avoidance - I had that for ages with my horrific chronic back pain and fibromyalgia. I would always ask, "What if...". Usually those what ifs don't happen. No narcotics or anything helps my pain. Zip. But I absolutely refused to allow it and my Celiac to prevent me from doing what I love most - spend time at our house in gorgeous Croatia. It has given me so much more confidence now. I handled the horrible flights (barely but I did) so I feel now I could do pretty much anything.

I had to endure very long flights, many layovers, flight delays, etc. (long story) in excruciating pain as well as dealing with celiac. On one flight I was in so much pain I begged the flight attendant to let me lie on the floor. Of course that was not allowed. However, it was still worth it (in retrospect - at the time not so much). The freedom of doing what I wanted was incredibly liberating.

My husband and I were in Croatia and Italy at food and wine events, superb restaurants, etc. and always managed. I took lots of gluten-free snacks along from Canada and was very prepared for every eventuality. I never allowed myself to be stuck without something to eat. It took lots of planning and organizing but it worked! We are already looking at seat sales for Fall. :D

So, if I were you, I would re-think your plans. Take lots of Imodium and do it. With me the thought of something is almost always worse than the reality. I was so worked up about going that I grew very anxious and requested short-term Ativan. I do not have to do that any more. I control it - it does not control me.

That is very good advice! I will talk to DH and see what he says. If I could just find out my results I think things would be different. If I have not heard from my Dr by the end of the day today, I plan on calling her office on Friday to see is they have heard anything!

Thank you so much for your input! You have given me a lot to think about!!

:)

Jungle Rookie
Jungle
Posted

I am looking forward to Rving this summer. You can stop whenever you want. You always have a clean bathroom. And you are bringing your kitchen with you so food isn't an issue. No unpacking.

love2travel Mentor
love2travel
Posted

That is very good advice! I will talk to DH and see what he says. If I could just find out my results I think things would be different. If I have not heard from my Dr by the end of the day today, I plan on calling her office on Friday to see is they have heard anything!

Thank you so much for your input! You have given me a lot to think about!!

:)

Not knowing really is difficult, isn't it? It is hard to move forward until you know something either way. I really hope you hear something Friday so you at least know how to proceed.

Believe me - I thought of cancelling our trip many, many times but just did it, although I know it would hurt incredibly. It was a huge chance but I took it and man, am I glad I did! Having illnesses is a very unfortunate part of our lives - they can make you or break you. I choose to live in spite of it. I do not want to regret not doing the things I love. Going ahead and doing things really helps conquer fears (so cliche but true). Fear of pain and dealing with celiac disease really ate away at me a lot. In fact, it started consuming me and I was not liking what I was becoming. Or at least my reaction.

I also took along Gluten Defense. It is a capsule you take rarely if you are unsure of what you are having is truly safe or not. It is not intended to allow you to eat gluten - only for peace of mind just in case. It may be something worth looking into (if you hear anything Friday!!).

The best of luck. I truly know the heartache, worries and pressures you are going through.

2johndeereboys Explorer
2johndeereboys
Posted
  • Author

Not knowing really is difficult, isn't it? It is hard to move forward until you know something either way. I really hope you hear something Friday so you at least know how to proceed.

Believe me - I thought of cancelling our trip many, many times but just did it, although I know it would hurt incredibly. It was a huge chance but I took it and man, am I glad I did! Having illnesses is a very unfortunate part of our lives - they can make you or break you. I choose to live in spite of it. I do not want to regret not doing the things I love. Going ahead and doing things really helps conquer fears (so cliche but true). Fear of pain and dealing with celiac disease really ate away at me a lot. In fact, it started consuming me and I was not liking what I was becoming. Or at least my reaction.

I also took along Gluten Defense. It is a capsule you take rarely if you are unsure of what you are having is truly safe or not. It is not intended to allow you to eat gluten - only for peace of mind just in case. It may be something worth looking into (if you hear anything Friday!!).

The best of luck. I truly know the heartache, worries and pressures you are going through.

I really appreciate your well wishes. I will look into the Gluten Defense. And yes not knowing is VERY stressful. Hopefully I'll know one way or the other tomorrow!!!

thanks sooooo much again!!

:D

Monklady123 Collaborator
Monklady123
Posted

I'm not sure I understand why it matters what the results are? I mean, you'll want to know eventually. But for now why can't you just go gluten free? You might feel SO much better than the thought of the trip won't be too awful. If the test comes out positive, then okay. If it doesn't, but you feel better, then it doesn't matter. :)

And I know the answer, probably. It's that if it's negative then you want to get an endoscopy, and for the endoscopy you're supposed to be eating gluten for a certain amount of time. So my question would be, if you feel better why does it matter? (and that's been the topic of more than one post on this board).

I say go gluten free and go enjoy your vacation.

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