Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten, Thyroid And Blood Clot Go Together?

Keggy

Recommended Posts

Keggy Newbie
Keggy
Posted

Hello, looking for answers or some guidance that I am not gong crazy:) I have multiple symptoms and am tired of this 11 long year road. I was just currently in the hospital with a small blood clot in the lung. While in the hospital a new symptom started for me. When I eat certain foods I would have a coughing fit. I have hosmito's (thyroid disorder). I have been tested for diabetes and the tests come back nil. everytime. My symptoms seem to somewhat mimic diabetes, but also thyroid symptoms, but the big concern for me is when I eat and how I feel afterwards has been the biggest noticable problem for me. My body aches, doesn't heal fast, I sometimes get itchy, my throat feels swollen and tight but not that it is causing me breathing difficulties. I also become very numb and tired after I eat. I usually go to the bathroom twenty minutes after eating, I diffinetly get the bloated belling like I am five months pregnant and is really uncomforable. I go through sweats and then chills. Which then cause my body to feel like I am have heart symptoms. I get a burning sensation in the chest, my left breast/back really pinch and ache. It's almost like the muschles in my body tighten..., I get a weired sensation in my head sometimes and vision can be affected. Basically I feel like two different people and that my body is in a shock state and it's like I feel it fighting inside. I can actually feel the movements in each part of my body and it is the weirdest thing. I am becoming very anxious and tired of having test after tests done with no results.

Thank you

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


georgie Enthusiast
georgie
Posted

Hi Keggy, Sorry you are unwell. I have had blood clots and a PE so know what you are going through right now.

Have you been tested for Factor V Leiden and APS ( Hughes Syndrome ) ? www.fvleiden.org is a genetic disease of the blood that never skips a generation but can increase the risk of clotting. I have FVL but they only tested me 3 years after my first DVT. It was only discovered in around 1995 so lots of Drs know very little about it. It i a genetic blood test.

APS is an autoimmune disease of the blood and therefore could be assoc with Coeliac and Hashimotos Thyroid. It is assoc with Lupus as well, but you can have Lupus and not have APS and vice versa. The tests for APS start with the lupus tests. Open Original Shared Link

Hope this helps a bit..

ravenwoodglass Mentor
ravenwoodglass
Posted

Have they tested you for celiac? I would ask them to do so.

Skylark Collaborator
Skylark
Posted

Hashimoto's and celiac go hand in hand. You absolutely need celiac testing. It would probably be better for your thyroid if you go off gluten once the tests are done, no matter what they say.

Keggy Newbie
Keggy
Posted
  • Author

Thank you sooooo much for the valuable information:))) It has reasured me a lot! Will keep you posted on the diagnosis.

Love and Light,

Keggy

Keggy Newbie
Keggy
Posted
  • Author

Have they tested you for celiac? I would ask them to do so.

I am currently being tested through blood work and depending on the blood work then they will send me for the biopsy.

Keggy Newbie
Keggy
Posted
  • Author

Hashimoto's and celiac go hand in hand. You absolutely need celiac testing. It would probably be better for your thyroid if you go off gluten once the tests are done, no matter what they say.

Thank you so much. I really do feel that the two are going together all of the time. I have days when I have had a gluten free, stress free, well balanced day and felt amazing. I have done a lot of research on the thyroid and gluten and they really do mimic each other.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,075
    • Most Online (within 30 mins)
      7,748
    Amy1620
    Newest Member
    Amy1620
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.