Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Your Top Two Pieces Of Advice


Korwyn

Recommended Posts

Marilyn R Community Regular

Hmm...what I was hoping to do was go through and summarize one entry per line all the top two. Then I wanted to edit my first post to keep the list there and I'd update it periodically. That way the list would be easily findable without a newbie having to wade through tons of replies. But since I can't edit the top post anymore, I'm not sure how to proceed. I don't really want to keep starting a new thread. I'd like to keep it in the forum where it is searchable and indexable. Any ideas anybody?

I apologize. Adding to your thread was meant to be positive...sorry it wasn't what you wanted.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 57
  • Created
  • Last Reply
Coinkey Apprentice

1. If you pretend the center aisles don't exist, shopping can actually be extremely easy. Meat, Produce, rice aisle, dairy section, spice section and household items aisle. That's instead of being a detective and getting frustrated with everything you put your hands on.

"What? I can't eat one pot KD? You mean I ACTUALLY have to COOK a meal? With separate pots, seasonings and get creative? WHAT?? What a shame! How TERRIBLE! Whatever will I do! Having to eat things like steak and baked potatoes or honey chicken and rice ? Oh, what a world!" :P:D - That's what I say to people who say it must be sooo hard and boring for me.

2. If you are still experiencing trouble, chances are you need to look at other culprits like soy (EVIL EVIL EVIL SOY), dairy, eggs etc.

I like the idea of using a stick and beating people like pinatas.

GFinDC Veteran

Hmm...what I was hoping to do was go through and summarize one entry per line all the top two. Then I wanted to edit my first post to keep the list there and I'd update it periodically. That way the list would be easily findable without a newbie having to wade through tons of replies. But since I can't edit the top post anymore, I'm not sure how to proceed. I don't really want to keep starting a new thread. I'd like to keep it in the forum where it is searchable and indexable. Any ideas anybody?

Hi Korwyn,

I have wondered about stickies for the forum also.

Seems like a good thing to do. I think I read once that the thinking was it would discorage new people from asking questions and getting involved. I don't know if that is true or not.

I have a couple ideas though.

We could edit our profiles signatures and add thread links to them. So perhaps a tips thread like this could be in our sigs. Or threads on cooking tips, casein intolerance or other topics. I haven't tried that so I don't know if it works.

ANother thing I had thought about was setting up tags for threads. We could tag threads with a code for certain topics when we think the are especially helpful threads. Then people could search for that tag to find related threads. It could BE something simple like ***+=casein, or ***+=testing, or ***+=getting started.

People could search on those tags to find threads on the topic. The forum search tols works, but sometiems it gives so many results, most of ehich are unimortant thjreads or even old threads that new peope might find it hard to wade through all that to find the good info. So tags could help I think.

psawyer Proficient

I sent a note to the "Boss" that you all are asking about this. I don't know if its doable or desired.

The real boss is Scott (admin), but I am looking into this. Some things happen instantly--this is not one of them. B)

Korwyn Explorer

Gee, and here I've been beating them with a stick like a pinata until the gluten all falls out!!

We didn't I think of that!!? My family didn't listen to me either. a niece did start on the gluten free diet because she was in so much pain nd miserable.

:lol: :lol: Now you have gluten floating EVERYWHERE! :)

Korwyn Explorer

I apologize. Adding to your thread was meant to be positive...sorry it wasn't what you wanted.

No you didn't misunderstand! It was positive and was what I was hoping for! I just didn't realize that this particular forum software wouldn't allow me to edit my top post after 30 minutes.

I wanted to keep the discussion going, but have the very first entry (my original one) be a 'summary' of all the top two (or three) pieces of advices that everybody had given. I would then update that periodically so that it wouldn't get stale so that new visitors could review the thread, but they wouldn't have to read through all the chit-chat to glean the tidbits unless they really wanted to.

GlutenFreeManna Rising Star

No you didn't misunderstand! It was positive and was what I was hoping for! I just didn't realize that this particular forum software wouldn't allow me to edit my top post after 30 minutes.

I wanted to keep the discussion going, but have the very first entry (my original one) be a 'summary' of all the top two (or three) pieces of advices that everybody had given. I would then update that periodically so that it wouldn't get stale so that new visitors could review the thread, but they wouldn't have to read through all the chit-chat to glean the tidbits unless they really wanted to.

Maybe instead of editing the top post you could just make a new post with all the answers given and ask the mods to make it a sticky? Or if they can't do a sticky, you can just post a reply everyday to keep it bumped up to the top. I've seen many forums where they do that by just posting "bump" as a reply. I know that's a lot of work for you to keep track of it but maybe if you do it long enough and enough peopel like it, they would make it a sticky for you. ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

Well (as a former board op) the bump thing gets annoying for people after a while because they don't know if it is just a 'bump' or if it's new useful content. Plus it starts to tick off moderators after a while. And if you have one thread that does it, pretty soon some people start doing it to all their threads because they are sure their thread is worthy of being at the top. =) Some threads just need to die though! :blink:

Also the bottom post summary is workable to a degree, except that if people go to the 'newest post' and the newest post isn't the most current summary (and it is two or three pages back), they spend more time looking for the content than I was hoping for.

I know when I started on this journey, I was afraid, frustrated, relieved, overwhelmed, and inundated with more information than I could handle processing. I was mentally not in a good place from the gluten and soy and in some ways I just wanted reassurance and sage advice. I could google and find things out, but what I needed/wanted to know was exactly what I'm trying to put together here. I wanted to be able to ask, "You've been here, what is the most important thing I need to know?"

I was so very blessed that a friend with which I went to high school, who's husband and son have celiac disease gave me gluten-free Living for Dummies, and got me to our local GiG meeting and I was able to ask those questions face to face. But many people aren't that fortunate. And for a lot of us, it seems that by the time we get here we need reassurance and simple things to hang onto to get us through those first overwhelming days and then the ups and downs.

That was why I was looking for the top post idea. Simple and easy to look at.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,089
    • Most Online (within 30 mins)
      7,748

    Clare Durham
    Newest Member
    Clare Durham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.