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Waiting For Results...

Chalsh

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Chalsh Rookie
Chalsh
Posted

I just had my upper endoscopy sergury to test for Celiac Disease 4 days ago. Sense then, I have gone on a gluten-free diet because the doctor said it was "pretty likely" I had Celiac. But I feel like the diet is making me crazy. I have sudden drastic mood swings where one moment I'll be crying, then I'll be laughing, and the next I'll be wishing I could punch a whole in something. Not only that, but I'm always hungry now. Even after a huge meal.

This is why I want to hurry up and get my results. The chance that I might actually not have celiac frustrates me because this diet could be for nothing. How long will it be until I get my results? My symptoms are mouth ulcers (several at once. 6 at one point), stomach pain, bloating, a rare occasion of really bad GERD, depression at times, and often fatigued- how likely do you think it is that I have celiac? And one more question, how long after you eat something with gluten does it take to experience celiac symptoms? I still get bloating occasionally, so I wonder which foods it is that's doing it.

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sb2178 Enthusiast
sb2178
Posted

Pretty possible. Sounds like a typical list of symptoms complete with "withdrawl." I found free access to chocolate to be helpful in fighting the urge to eat something I shouldn't. Or pick some other treat to help get you through the worst of it.

Are you still eating dairy? You'll probably feel better without it. It could easily be contributing to discomfort.

Symptoms vary from person to person. I think they even vary from exposure to exposure. Low level contamination hits me at 12-36 hour post-dose with lower GI issues and then GERD for a few days. Actual quantities of gluten hit me in about 30 minutes with pain.

Chalsh Rookie
Chalsh
Posted
  • Author

Thanks for the reply. I coincidentally received my results today and was diagnosed with celiac. I am still eating dairy at the moment because that's just about the only gluten free food in my house. I might go dairy free after talking to a nutritionist though.

Roda Rising Star
Roda
Posted

This happened to my 6 year old. For the first week he had very bad mood swings. He was also an eating machine for about two weeks or so. Every time I turned around he wanted food especially, like you said, after a meal. It slowly tapered down and now he seems fine unless he get into unintentional gluten(thanks summer day camp) or cc'd. Now he is growing like a weed (growth spurt). I am suprised that my 6 year old can out eat his 10 year old brother. I don't worry about how often he eats as long as they are good choices. He doesn't have a weight issue and is very lean so I don't fret.

mushroom Proficient
mushroom
Posted

Now that you have the celiac diagnosis it is important to get rid of the lactose for a few months because the area that the gluten damages in your small intestine is the factory for making the enzyme to digest it :o You should consider giving it up right away if your want to heal fast. Almond milk, hemp milk, both good substitutes. Beware of Rice Dream though because it is processed with barley.

There is hemp and doconut ice cream if you have a craving. Earth Balance makes a great non-soy spread (and I would advise avoiding soy at first too because it is often a co-offender with gluten.

Your moodiness is undoubtedly due to withdrawal symptoms, because gluten acts like an opioid on the brain, and you can expect them to last for 2-3 weeks. You just have to grin and bear it, I'm afraid, and ask family and friends to be forgiving :P

And it's not your brain that is hungry, it is your body that is hungry for all the nutrients it hasn't been able to absorb while gluten was doing its number on you. So first thing you need to do is go back to your PCP or your GI and get nutrient testing, especiallly Vts. D, B12, folate, and ferritin/iron, magnesium, calcium, zinc, and also get your thyroid function checked. These are the typical things that gluten throws out of whack. If your D is low, you should get a bone density scan to make sure you don't have osteoporosis. If you do, you should be able to rebuild bone with D, Calcium, magnesium and zinc, and not take fosamx or Boniva or whatever.

Welcome to the celiac club and fire away with any questions you have. :)

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      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
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      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
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      26F!
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