Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Need An Outlet..no Reply Required!

Di2011

Recommended Posts

Di2011 Enthusiast
Di2011
Posted

I had my first blood test today. Yesterday I cried off & on for about 3 hours. I just know I had a big wheat problem but the look on doctors face when I gave the family history, finishing with the bowel etc cancer, did me in.

I hope to get a positive result today.

I don't want to be sick

I don't want my 8 y/o to avoid anymore breakfasts and packed school lunch.

I don't want to itch myself crazy every evening and night with no relief.

I will go no-gluten tomorrow because despite the potential/official result I think gluten is not good for us (my son or I).

I hope for a positive and then others might play the game, otherwise I play on my own.

Thank you to everyone who adds so much great information to this forum. I can't thank you enough.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mummyto3 Contributor
Mummyto3
Posted

My daugther was diagnosed last week as celiac disease. She's 9. My husband and I have had our bloods done today. Still trying to decide about my two boys. My family history upsets me too when I talk about it. I have an aunt with IBS, and uncle who died a few years back who had years of problems with his bowels (to point of removing colon), my grandmother lost her fight to colon cancer when I was 5, and my cousin had bowel problems which took her life aged 21. My daughters bowel problems came around Dec last year. I mentioned to doctor after doctor of my family history but no one listened. Then we met a lovely gastro not too long ago who immediately ordered blood tests for my daugher incl. for celiac disease. Thank God for her is all I can say.

Chin up. I know exactly how difficult this is. I'm sure we can all sympathise and empathise with you xxx

Harpgirl Explorer
Harpgirl
Posted

I had my first blood test today. Yesterday I cried off & on for about 3 hours. I just know I had a big wheat problem but the look on doctors face when I gave the family history, finishing with the bowel etc cancer, did me in.

I hope to get a positive result today.

I don't want to be sick

I don't want my 8 y/o to avoid anymore breakfasts and packed school lunch.

I don't want to itch myself crazy every evening and night with no relief.

I will go no-gluten tomorrow because despite the potential/official result I think gluten is not good for us (my son or I).

I hope for a positive and then others might play the game, otherwise I play on my own.

Thank you to everyone who adds so much great information to this forum. I can't thank you enough.

I really feel for you! I'm in the same boat, though as far as I can tell my boys seem to be okay so far. I'm impatiently waiting for my blood test results because while I know I'm going to stay away from gluten anyway because it makes me feel better, my husband has a very practical and "scientific" mindset. It would make this adjustment a lot easier if the blood test came back positive for celiac. Right now, I don't think he doubts I have it, but I think he thinks I'm a bit of a hypochondriac. :rolleyes:

JaniceS Newbie
JaniceS
Posted

I had my first blood test today. Yesterday I cried off & on for about 3 hours. I just know I had a big wheat problem but the look on doctors face when I gave the family history, finishing with the bowel etc cancer, did me in.

I hope to get a positive result today.

I don't want to be sick

I don't want my 8 y/o to avoid anymore breakfasts and packed school lunch.

I don't want to itch myself crazy every evening and night with no relief.

I will go no-gluten tomorrow because despite the potential/official result I think gluten is not good for us (my son or I).

I hope for a positive and then others might play the game, otherwise I play on my own.

Thank you to everyone who adds so much great information to this forum. I can't thank you enough.

I know just how you feel. I'm currently in the waiting stage. I really would like to try a gluten-free diet, but was told not to because it can mess with my test results. I don't want to be sick either, but right now I really need answers, so really any hope of telling me what is making me feel terrible all the time. Hang in there. I know lots of people are probably going through similiar things right now too. I'm just thankful I found this site too.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,594
    • Most Online (within 30 mins)
      7,748
    kathleenconley
    Newest Member
    kathleenconley
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.