Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ahhh...a Few Questions

glutenfreegirl

Recommended Posts

glutenfreegirl Enthusiast
glutenfreegirl
Posted

Hi, so thought I would post a few questioned I am struggling with all in one post, hope that is ok....

So these questions are things I am experiencing and wondering if they are celiac related or something else I need to investigate into.

I have gluten-free fo 6months now but I know I have been cc more than a few times while I am trying to figure is all out....

Do grains even gluten-free seem to bother most? I seem to bloat and get C from them.

No gluten-free processed food seems to sit well with me..

Seem more sensitive to more foods now than pre celiac? Why? I thought I was supposed to be getting better not worse in different ways.

And the sadness I feel every time I go nto the grocery store or just thinking about food now is overwhelming it is like I am in a "depressed" state over food and eating is that normal? and is yes will it go away or how can I get over that? I want to feel happy and optimistic about my new foods and eating plan..not that I know what that is as I think I have finally figured out what is working then bamb something new food seems to bother me!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author

Oh and also is anyone following a plan that they would recommend that is working for them....I have read a ton of books with all kinds of different opinions I don't even know where to start, I would love to know if any of you have had success or garbage on them.....rosedal diet, blood type diet, eat to live, specific carb diet, candida diet, the blended everything before you eat it plan, I am also so open to hearing if something not listed here has worked wonders for you...I have 2 children and a fabulous husband and after 4 yrs of unsettledness and fatigue etc I am so ready to just feel better....

Salax Contributor
Salax
Posted

If you think all grains might be problem, the Paleo diet would be good to try for a bit to let the system heal. Then maybe after awhile if you want to eat grains again you could try re-introducing them one at a time to see how you handle it. :)

luvs2eat Collaborator
luvs2eat
Posted

When I was diagnosed almost 10 years ago, there simply weren't a lot of junk/processed food options, so I never had any to have problems from. The more I see of the processed stuff, the gladder I am that I've stayed clear of it. I like to cook and to bake (altho not as much as I used to) and will go out of my way to cook/bake GOOD things without all the crap.

I've never had much of a problem w/ grains... except for the fact that I'm a total carb addict and would rather eat rice and stuff like that more than any fruit or veggie! I've never suffered from C either... I'm D all the way (ha).

As for the grocery store depression? I've cried in grocery stores before... now I know how my kids felt when I used to tell them they could pick any cereal they wanted as long as it had 3 grams of sugar or less... and they'd pick up the Lucky Charms hoping that maybe THIS ONE TIME, it would have 3 grams of sugar instead of 30!! I've picked up things that I KNOW aren't gluten free and read the ingredients to see if maybe this ONE TIME, I'll get lucky.

glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author

As for the grocery store depression? I've cried in grocery stores before... now I know how my kids felt when I used to tell them they could pick any cereal they wanted as long as it had 3 grams of sugar or less... and they'd pick up the Lucky Charms hoping that maybe THIS ONE TIME, it would have 3 grams of sugar instead of 30!! I've picked up things that I KNOW aren't gluten free and read the ingredients to see if maybe this ONE TIME, I'll get lucky.

Harpgirl Explorer
Harpgirl
Posted

Yesterday I almost screamed in frustration when the trail mix I thought I could buy listed wheat as an ingredient. :angry:

viviendoparajesus Apprentice
viviendoparajesus
Posted

i think grains are tough while still healing. there is also the issue of is a product truly gluten-free if not there is still the exposure of some gluten and if many products contain gluten then it adds up. another issue is if you have cross reactivity to the grains in which case to your body it might as well be gluten because it will act in the same way. digestive enzymes have helped me with avoiding constipation. along with plenty of fiber and water.

i also noticed i felt better on a diet that was mostly vegetables, with some fruit, beans, nuts, seeds, meat, and fish but limited grain and processed foods. it may be good to avoid the gluten-free foods at least till you have time to heal. another challenge is with gluten-free products having multiple ingredients it is hard to know which ingredient you are reacting to.

i also seem to be doing better in some areas and worse in others since going gluten-free. i think healing takes time. i also think that since gluten intolerance/celiac's causes such major problems it could be masking other issues and it can cause gi damage which can make other problems more likely - developing food intolerances, immune system wasting its time on things that are not threats, body attacking itself.

i still think about food a lot. i still feel depressed at times. i do not miss wheat for me i miss cheese and nightshades. i am excited though that i can better digest vegetables which i used to like until i could not digest them so i am happy about that. i never liked milk so i love having almond milk. i also liked and had fruit and i can keep having it. i also like nuts so i can still have them. i discovered i like beans and seeds. i still have low points sometimes but i try focus on what i do not want to go back to and what i can have. i lost symptoms and gained better health and i think i will be able to avoid many of the severe health problems that go back generations in my family.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    3. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    5. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,337
    • Most Online (within 30 mins)
      7,748
    Susan1001
    Newest Member
    Susan1001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.