Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Would Rice Chex Make My Mouth Burn?


kagm

Recommended Posts

kagm Newbie

I feel like even though it is gluten free, I am still feeling the pain of gluten food. When I eat bread my mouth burns and now when I eat rice products (not plain rice) like Rice Chex, Rice cakes, etc my mouth burns too. I know it's only been like 4 days since I went back on gluten free food after my endoscopy, but I still feel TERRIBLE. Does anyone have good starting places...recommended books or blogs that suggest different daily menus? Should I just do chicken, veggies, and fruit for a while?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



viviendoparajesus Apprentice

Since you are eating processed rice there can be cross contamination with gluten especially since chex makes wheat chex too. real rice would probably be better than the processed rice. though there is something to be said for avoiding all grains till you have time to heal. dr bateson-koch's book recommends a mostly raw diet and limiting grains, nuts, and beans since they have to be cooked. another issue with rice is you could be allergic. because of the damage gluten did to my gi tract i have food that is not digested and leaks out so i developed an allergy to rice, but i hope it will be ok once i am healed because i have read that properly digested food is rendered nonallergenic. another issue with rice is cross reactivity. i tested fine for rice but for yeast and buckwheat my body acts like it is gluten. i feel good eating veggies, chicken, fish, fruit, nuts, beans with limited amounts of grain. i am still trying to figure out what works best. i am not sure of a sight that suggest possible different daily menus. it really stinks that to get the positive lab requires exposure to and damage from gluten. best wishes!

psawyer Proficient

Wheat Chex are made in a different facility from the other Chex cereals. The facility where the gluten-free Chex products are made does not make any products which contain gluten.

GlutenFreeManna Rising Star

Since you are eating processed rice there can be cross contamination with gluten especially since chex makes wheat chex too. real rice would probably be better than the processed rice. though there is something to be said for avoiding all grains till you have time to heal. dr bateson-koch's book recommends a mostly raw diet and limiting grains, nuts, and beans since they have to be cooked. another issue with rice is you could be allergic. because of the damage gluten did to my gi tract i have food that is not digested and leaks out so i developed an allergy to rice, but i hope it will be ok once i am healed because i have read that properly digested food is rendered nonallergenic. another issue with rice is cross reactivity. i tested fine for rice but for yeast and buckwheat my body acts like it is gluten. i feel good eating veggies, chicken, fish, fruit, nuts, beans with limited amounts of grain. i am still trying to figure out what works best. i am not sure of a sight that suggest possible different daily menus. it really stinks that to get the positive lab requires exposure to and damage from gluten. best wishes!

I thought the gluten-free Chex varieties were made in a separate facility from their gluten containing chex? Perhaps I am mistaken.

For the OP: perhaps you are sensitive to something else in the cereal like the BHT chemical used to preserve it. It never hurts to go all natural however and not eat processed foods. Especially in the beginning of your diet--it will speed your recovery.

IrishHeart Veteran

The gluten-free Chex may not be the problem.

My mouth/throat burns all the time. It can be caused by a B- vitamin deficiency (several B vitamins, in fact) due to malabsorption and may take some time to clear up. Several doctors--and some folks on here--told me this and I have read it in various articles. The mouth, throat, esophagus are all impacted by inflammation too--and may burn.

It could also be a reaction to preservatives-- as GFManna suggests. A whole foods diet works for many of us in the beginning. Also, many avoid dairy.

Unfortunately, healing the small intestine takes a long time--and various symptoms take longer to disappear. Sorry. I wish mine would "just go already" too!! :angry:

And even though some people can tolerate a raw food diet (as suggested above) others simply cannot digest raw veggies and/or fruits. I still cannot digest raw veggies.

Here's the thing---Everyone's GI tract is different and you will have to try various foods to see what works best for YOU.

Variety in your diet is good.

Since you asked...

A few good books for "newbies" are:

Living Gluten Free for Dummies--Danna Korn

The First Year / Celiac Disease--Jules Dowler Shepard

and if your insurance covers it, a nutritionist who understands celiac may be able to help you with a dietary plan.

Hang in there!

IrishHeart Veteran

I thought the gluten-free Chex varieties were made in a separate facility from their gluten containing chex? Perhaps I am mistaken.

For the OP: perhaps you are sensitive to something else in the cereal like the BHT chemical used to preserve it. It never hurts to go all natural however and not eat processed foods. Especially in the beginning of your diet--it will speed your recovery.

RE: the BHT

This guy has an opinion about the BHT they use as a preservative in the chex--as opposed to it being the gluten. see what you think.

http://gluten-free-b...ontroversy.html

  • 3 weeks later...
LetGoddoit Newbie

I was wondering ... Even though some cereals say they are gluten free..does it mean they are wheat free?...Ive heard the mixed tocopheryl in cereals is made from wheat...anyone know?

I can eat a gluten free cereal and have symptoms for days and look on box and see the words mixec tocopheryl.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Coinkey Apprentice

I was wondering ... Even though some cereals say they are gluten free..does it mean they are wheat free?...Ive heard the mixed tocopheryl in cereals is made from wheat...anyone know?

I can eat a gluten free cereal and have symptoms for days and look on box and see the words mixec tocopheryl.

A quick internet search brings me to the conclusion that tocopherols can be derived from many different sources- the main ones being soy and wheat. Either your gluten-free cereal isn't truly gluten-free or you have a problem with soy derivatives as well.

T.H. Community Regular

I was wondering ... Even though some cereals say they are gluten free..does it mean they are wheat free?...Ive heard the mixed tocopheryl in cereals is made from wheat...anyone know?

I can eat a gluten free cereal and have symptoms for days and look on box and see the words mixec tocopheryl.

Is the burning new? If it is, I'd start keeping a food journal and noting when this happens, and keep track of the ingredients. If you are in the United States, I believe corn is the most common source of tocopherols, actually, although I wouldn't swear to that. In the EU, I think wheat is a more common source.

The burning sounds a lot like an allergic reaction, yeah, but it could be to anything, honestly. Not usually a celiac reaction. And a lot of celiacs start reacting more to foods they were allergic to before, once they go gluten free.

That happened to me, where I had no idea I was allergic to foods - no burning mouth, no hives, nothing. Now, I get burning mouth with some foods, and pain and other issues with others that now test as an allergy.

Part of the problem can come if these are more prevalent in gluten free foods, or if they are less processed in gluten free foods (so more allergens are present). That was my case with sugar cane, which is less processed in most gluten free foods, and eating gluten free processed foods would cause me a lot more problems.

Potatoes, gums(guar, xanthan), corn, eggs, and sugar cane are typically more prevalent in gluten-free foods than in their gluten filled equivalents.

psawyer Proficient

If the tocopherols were derived from wheat, then that would have to be disclosed on the label as "wheat" under US federal law (FALCPA). Perhaps you have an issue with tocopherols that is not related to gluten.

LetGoddoit Newbie

Ive read so much about if its gluten free doesnt always mean wheat free.

That a product can be gluten free and have wheat in it as long as they take the gluten out of the wheat.

This is so confusing. Cause I only have a flare if I have had wheat. Mine are severe so I know when it happens..thats forsure.:((

color-me-confused Explorer

I've found Rice Chex to be a rather abrasive cereal. It needs a good soaking in milk otherwise I find it's very tough on the tongue and inner cheeks.

modiddly16 Enthusiast

I've never heard of a prodcut claiming to be gluten free that has wheat in it, do you have any examples? I have heard of a product that can claim to be wheat free but isn't gluten free but never the other way around.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,696
    • Most Online (within 30 mins)
      7,748

    Kerrie C
    Newest Member
    Kerrie C
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RDLiberty
      So, I've been using a gluten free labeled toothpaste since being diagnosed with celiac. No big deal, the toothpaste seems to work. Question is, I just realized it contains hydrated silica.  Now, I've heard that silicon dioxide can cause issues in some people with celiac (was that ever confirmed though?), so to be safe, I cut it out of my diet entirely. But, as I understand it, hydrated silica is related to silicon dioxide. Is that something to worry about, or is the hydrated form not known to cause issues like the silicon dioxide form?  I've never seen it in food, but nearly every toothpaste I look at contains hydrated silica?  Issue or not?  Any scientific research (Not opinion pieces, not health bloggers, you get my gist), but actual science, that says it's an issue? I have a hard time believing 99% of what I read on random internet searches.    Thanks so much, Renee. 
    • Gigi2025
      Since 2015 we've spent extensive time in Italy and I've been able to eat their wheat products without incident. Initially, I was practically starving thinking foods in Sicily were not gluten-free.  An Italian friend who had lived in the US for over 20 years said she had celiac/gluten-free friends from the US who could eat Italian wheat products without problems. Hesitantly, I tried little by little without issues.  A few years later at a market, I asked a bread vendor if they had gluten-free loaves. Turns out she had lived in LA, said groups believe it's not the gluten that's causing our bodies harm, but potassium bromate; these groups have been trying to ban it.  Bromines and other halogens wreaks havoc to our endocrine system and, more specifically, our thyroids and immune systems. When bromines are ingested/absorbed into the body, it displaces iodine causing other health issues. Potassium bromate is a powerful oxidizing agent (dough 'conditioner') that chemically changes flour to enhance elasticity, bleaches the dough, and ages the flour much faster than open air.   Shortly thereafter while visiting friends in California, one family said they had gone gluten-free and the difference was incredible. The reason they choose this path was due them (a biologist/chemist/agriculturist scientist) having to write a portion of a paper about a certain product for the company he worked. Another company's scientist was directed to write the other portion. All was confidential, they weren't allowed to know the other company/employee.  After the research, they learned gluten was being removed from wheat, sent elsewhere, returned in large congealed blocks resembling tofu, and then added to wheat products. Potassium bromate has been banned for use in Europe, China, and other countries, but not in the US. Then we have the issues of shelf preservatives and stabilizers. What are we eating?  Why? We spend long periods of time in Italy and all has been good.  We just returned from an extended time in Greece;  no issues there either.  There is a man there we learned about on a travel show about Greece who walks the hills, picking herbs, pods, etc.  He is a very learned scholar, taught at the university level in Melbourne. It took a few days to locate him, but were finally successful. He too, is concerned about the additives and preservatives in American food (many of his customers are Americans, haven't been in the best of health, and have become healthier after visiting him). He suggested taking a food product from the US and the same product in Europe, and compare the different ingredients. Then ask why these things are being allowed in the US by the 'watch dog' of our foods and drugs. It would be amuzing if it weren't tragic. I'm presently looking for flour from Europe that I can make my own bread and pasta as the gluten-free bread is now $7.99 a (small) loaf.  BTW, studies are showing that many gluten-free individuals are becoming diabetic. My guess is because the gluten-free products are high in carbs. This is only my experience and opinion garnished by my personal research.  I hope it helps.  
    • knitty kitty
      Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured.  The blood circulation system is a transportation system.  It transports the vitamins you've absorbed around the body, but blood tests don't give an accurate picture of the vitamin and mineral stores inside organs and tissues where they are actually used.  You can have "normal" blood levels but still have deficiencies.  This is because the brain demands stored nutrients be put into the blood stream to supply important organs, like the brain and heart, while other organs do without.   If you are taking Thiamine Mononitrate in your supplements, you are probably low in thiamine.  Thiamine Mononitrate is used in many supplements because it won't break down sitting on a shelf.  This also means Thiamine Mononitrate is difficult for the body to utilize.  Only thirty percent of Thiamine Mononitrate on the label is absorbed and even less is able to be utilized by the body.  A different form of Thiamine called Benfotiamine has been shown to promote intestinal healing.   Talk to your doctor about doing a genetic test to look for Celiac markers.   I'm concerned that if you do a gluten challenge (10 grams of gluten per day for a minimum off two weeks) in your weakened state, the nutritional deficiencies will become worse and possibly life threatening.  
    • ElisaAllergiesgluten
      Hello, good afternoon!   I apologize, I didn’t see a notification and I’m just reading this. Thank you so much for sharing your thoughts and the link. Yes you are absolutely right, even so trying to get a response from them has been extremely difficult. They don’t answer but I will your practice of “guilty until proven innocent.”   I like and have a sense of trust here in this website, everyone is honest and thoughts are raw. The mutual understanding is amazing!   thank you Scott!
    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.