Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help


glutenfreegirl

Recommended Posts

glutenfreegirl Enthusiast

I am so scared and tired of this happening.....My whole life I have been active, free spirited, happy, pre hashimotos dx I started suffering severe anxiety attacks....about 4yrs ago now last nov I was finally dx with hash and my GP said that will trigger anxiety....however it seems to come out of no where I have been pretty good for a long time they wher very mild if they hit and usually I could just redirect my thoughts and be ok...this past week I have had 3really bad ones...I always think I am having a heart attack.....they s are me so badly....what is happening?? Tonight I had some boars head bacon, tomato on lettuce with mayo about 2 hrs later it hit really bad and I am horrified right now try to let it pass....I had my dr do an echo of my heart a few months back because I was so scared all was good....could it be the bacon? It said gluten-free.....anxiety is one of my first symptoms of being glutened along with my thyroid swelling


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



domesticactivist Collaborator

Where did you get the bacon? Was it sliced in a deli? If so the shared equipment could have been a problem.

glutenfreegirl Enthusiast

No packaged ....

Marilyn R Community Regular

I would suspect the mayo if it was processed. Probably made with soy oil. (Gluten's evil twin to our autoimmune system.)

I keep a little stash of anti-anxiety meds for times like you're enduring now. They help ward off that awful feeling. (Ativan or Xanax .5 mg, cut them in half to save money.)

Other advice: soak in a hot bath with epsom salts & baking soda. (Lots, like 1-2 cups epsom salts and 1/2 - 1 cup baking soda.) Relax as much as you can. Know this feeling will pass.

Hope you feel better soon.

glutenfreegirl Enthusiast

Thanks Marilyn just knowing others are out there right now is helping...the fear it causes as you know is unbearable...thank you both for such fast replies it keeps my mind occupied...I did not know soy was a problem for us....it was boars head mayo...

Harpgirl Explorer

I know it won't help right, now, but for the long run, if you don't already do it, you might try taking some yoga classes. My psychologist recommended them to me for my mild anxiety. I've only taken one so far, and it's really nice! It's a work out too, but doesn't feel like one until your muscles are a little sore later. ;) I had tried to do some yoga in the past via books and videos, but I never got anything from it until I took an actual class.

I hope this suggestion helps, but I'm afraid I don't really know anything about hashimoto's. Feel better! :)

glutenfreegirl Enthusiast

Harpgirl thank you..you always have such a calmness to you..I love the peace and kindness I feel in your post....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Harpgirl Explorer

Harpgirl thank you..you always have such a calmness to you..I love the peace and kindness I feel in your post....

Hmm, maybe that's why my kids are so laid back... :P Thanks for the nice compliment! :D

kareng Grand Master

Doesn't sound like gluten from what you said.

Do you have a pet? Pet them, watch them, play with them, walk around the block with them. Concentrate on the pet for 10 minutes. You can do that. :)

If you don't have a pet, is there something else you like to do? A crossword or knitting? Try to concentrate on it for 10 minutes.

Sometimes, something repetitive or soothing or funny can be helpful with anxiety. Tomorrow, when you have calmed down, you can try to figure out what caused it.

Hang in there!

glutenfreegirl Enthusiast

Kareng, k, just got my cat....I will try anything

kareng Grand Master

If your still around:

Tell me about your cat? What's the name, color, personality? Tell me something funny about the kitty. What does the cat like to eat? Where did you get it? Is it one of those cats that purrs super loud all the time?

rosetapper23 Explorer

I also vote for the mayo as being the culprit. Soy in mayo is vicious!! I use Smart Balance now, but I skipped eating mayo for years because of the soy.

Since you mentioned just getting a cat, have you checked to see if the cat food you're buying contains gluten? Is there any possibility that you are hyper-sensitive to gluten?

Marilyn R Community Regular

Doesn't sound like gluten from what you said.

Do you have a pet? Pet them, watch them, play with them, walk around the block with them. Concentrate on the pet for 10 minutes. You can do that. :)

If you don't have a pet, is there something else you like to do? A crossword or knitting? Try to concentrate on it for 10 minutes.

Sometimes, something repetitive or soothing or funny can be helpful with anxiety. Tomorrow, when you have calmed down, you can try to figure out what caused it.

Hang in there!

With respect, the anxiety is very real and dehabilitating can be connected to gluten and/or for some) soy ingestion.

https://www.celiac.com/articles/22210/1/Anxiety-and-Depression-in-Adults-with-Celiac-Disease-on-a-Gluten-free-Diet/Page1.html

Open Original Shared Link

To the OP, I hope you're feeling better. If you're like me, once I get over the anxiety, depression sets in. And apathy. But usually it's just a few days until I recover. Wish you well and happier days ahead.

kareng Grand Master

With respect, the anxiety is very real and dehabilitating can be connected to gluten and/or for some) soy ingestion.

https://www.celiac.com/articles/22210/1/Anxiety-and-Depression-in-Adults-with-Celiac-Disease-on-a-Gluten-free-Diet/Page1.html

Open Original Shared Link

To the OP, I hope you're feeling better. If you're like me, once I get over the anxiety, depression sets in. And apathy. But usually it's just a few days until I recover. Wish you well and happier days ahead.

I didn't mean the anxiety wasn't real or couldn't be caused by gluten. It didn't sound like there was any gluten in what she ate. If she had come back on, today, calmer, I would have suggested she look at other ingredients, like soy. Or cc in the mayonnaise jar.

I was just trying to help her calm down and feel less anxious. When you are" panicking", it's hard to rationally discuss things.

Marilyn R Community Regular

I didn't mean the anxiety wasn't real or couldn't be caused by gluten. It didn't sound like there was any gluten in what she ate. If she had come back on, today, calmer, I would have suggested she look at other ingredients, like soy. Or cc in the mayonnaise jar.

I was just trying to help her calm down and feel less anxious. When you are" panicking", it's hard to rationally discuss things.

You've been there, I take it. I know I have. Sorry I misinterpreted your post.

kareng Grand Master

You've been there, I take it. I know I have. Sorry I misinterpreted your post.

We're cool!

Korwyn Explorer

I have to vote for the soy. After going gluten-free, I continued to have panic attacks, anxiety attacks, insomnia, muscle spasms/uncontrollable small muscle twitching, and hot flashes. Turned out soy was the culprit, and I haven't found a mayo yet that isn't made with soybean oil. I avoid soy as carefully as I do gluten (maybe more). It hits me really fast. A year or so ago I got a cup of hot tea and I assumed would be OK. I was about three swallows into it and I had a panic attack, hot flash, and muscle fasciculations up and down my back. Turned out it had soy lecithin.

I will say a prayer for you. :/

* Edited once again to fix my lousy grammar. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,201
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...