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Kids Were Tested Today


Calmom

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Calmom Apprentice

So I took my kids in today to be tested. I was hoping for a genetics test but I guess they won't do that? Insurance maybe? I also asked for for my son to be tested for vitamin deficiencies, they wouldn't do that either. My son was so uncooperative. He was having heart burn and stomach cramps but told the dr. he didn't. The dr. wants him tested for other possible cause as well. We have been down the whole, referral to a G.I. before and that didn't go well. I got the feeling he wasn't fond of a celiacs diagnoses. Honestly at this point I am worried about a negative test. I know he does better on a gluten free diet, but knowing dad, he is not going to seriously pay attention to things with gluten in it, with out a positive test, even then I am going to be worried about cross contamination.


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maximoo Enthusiast

How old is yr DS? You are the mthr & must drive home the need for a gluten-free diet & sometimes if another person like a Dr talks & shows stubborn people like your DH maybe it'll sink in.

I think you need to find a new dr. The 1st thing my DDs dr did was test for vitamin deficiencies. My DD is low in vit D. I don't understand why yr Dr would refuse to do a vit deficiency test--makes no sense. If I were you I'd definitely get a new Dr.

Good Luck!

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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