Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Teff Intolerance?


Salem

Recommended Posts

Salem Rookie

I have been struggling for the past several months with celiac-like symptoms. I could not figure out what my problem was. I *know* I am not eating gluten. I was having awful gas and incredibly painful, mucousy D BM's. Most people would go to the Dr, but experience has taught me that Dr's really don't know what to do with stomach problems. I knew it was diet related, and no endoscope or stool sample was going to help me. I had just started drinking protein shakes, and attributed my problems to the shakes. I changed brands 3 times, but no real improvement. I kept changing things in my diet, no rice, no salad, less fiber, no chocolate, more chocolate. No luck.

Finally it dawned on me. Udi's bread. Since it came to Canada, I have been binge eating the stuff. I was so happy to be able to eat bread that was actually like bread. I decided to try cutting it out, and what do you know, I feel fine. I looked at the ingredients tonight to try and see what ingredient could be causing me problems, the only thing listed that I don't usually eat.... teff. Wondering if others have struggles with teff. I did a google search and didn't see much. I'm so sad that I have to say goodbye to Udi.

I am worried that this may be the start of more intolerances. I wonder is there a way to prevent developing more?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

i have "gluten light" symptoms from many of those gluten free breads... dont know if it's potato starch, tapioca starch, or all of the other substitutes in there- i also have gluten symptoms from corn.

i really have to keep my grains/starches to a MINIMUM... rice & quinoa dont seem to bother me ..

the reactions are TOTALLY similar- however- they dont take long to recover from, whereas i got glutened a month ago, and im just now getting back to normal.

Jenniferxgfx Contributor

I think Udi's is a problem for a lot of folks and it's usually because of cross contamination of gluten rather than a problem with the ingredients. (that's not to say it's impossible, just that there's cc.)

Skylark Collaborator

There are a lot of people who say they have trouble with Udi's. I'm lucky - I can eat it. I don't think it's gluten because they are sourcing as carefully as any other gluten-free brand. Of course if you can't tolerate 5ppm, any "gluten-free" bread will be a problem.

My guess with Udi's is that they're using a lot of xanthan gum to get the great texture. It's a pretty good laxative and I bet Udi's uses a little too much for some folks.

bigbird16 Apprentice

I'm allergic to teff. My airways start closing up. Same thing happens with millet. Wish I could eat Udi's whole grain bread. Their white bread I eat with no issues whatsoever. I agree with Skylark, xanthan gum may be more the issue.

sreese68 Enthusiast

The best way to know for sure if it's teff is to buy a bag and eat it by itself. If you don't react to it after a couple of days, then try eating another product that has very few ingredients but include whatever gum Udi's uses. I finally found a muffin mix from Gluten Free pantry that only white rice as the flour. (Brown rice makes me sick.) And I'm using it to test whether xanthum gum bothers my system.

Good luck!

Salem Rookie

I'm allergic to teff. My airways start closing up. Same thing happens with millet. Wish I could eat Udi's whole grain bread. Their white bread I eat with no issues whatsoever. I agree with Skylark, xanthan gum may be more the issue.

Yes, Gluten Free Girl has been writing lately about Xanthan gum and others. I may try the white bread, but I always feel guilty for eating white bread. I didn't grow up on it, and to me, it's like Wonderbread - yuck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

I like how CassP said she has "gluten light" symptoms from gluten free grains. I feel the same way. I went all the way grain free and some nagging symptoms cleared all the way, like minor joint pain, some allergy symptoms and I had increased energy. Since my daughter's been home from school this summer I've been baking a lot more for her meals, and I've started getting into her food. Sure enough the symptoms are back. Right now my eyes are almost swollen shut (but honestly I think that's from eating some cheese last night).

Anyhow, I have noticed that my daughter's (age 8) big D has returned this summer and this morning she's complaining of a sore throat. So, I am questioning teff for sure, but also suspect tapioca starch. We can up the Udi's awhile ago because of the Xantham gum and we don't do corn anyway. I think there are just too many ingredients in that really processed bread to keep track of.

I hope you get your reaction figured out. As for me, I will be returning to my grain free diet. This is no way to live.

modiddly16 Enthusiast

I can't eat Udi's or Teff. My finacee and I (my fiancee is a gluten eating fiend) both had bathroom emergencies while eating Udi's, so I think the laxative effect definitely took toll on our household. I also tried the Teff Flour wraps and had a similar reaction...so I sadly avoid them all!

cvll Apprentice

I made a gluten-free deep dish pizza crust using gluten-free bisquick and almost 2 teaspoons of xanthan gum. Sure enough, the next day or three felt terrible. Bad cramps and diarrhea (not watery, but very slow and soft and many times- sorry tmi!). I am really thinking it's the xanthan gum for me. I can eat one piece of gluten-free bread with xanthan gum in it, but if I eat anymore than that it definitely affects me the same.

sa1937 Community Regular

I made a gluten-free deep dish pizza crust using gluten-free bisquick and almost 2 teaspoons of xanthan gum. Sure enough, the next day or three felt terrible. Bad cramps and diarrhea (not watery, but very slow and soft and many times- sorry tmi!). I am really thinking it's the xanthan gum for me. I can eat one piece of gluten-free bread with xanthan gum in it, but if I eat anymore than that it definitely affects me the same.

Gluten-Free Bisquick already has xanthan gum in it so am curious why you would have to add more. Did you have a recipe that called for an additional amount?

  • 2 years later...
Lynchburg Newbie

Last night I cooked Bobsredmill teff using the stew recipe on the package.  Delicious, but the big D and more this morning.  So, I am wondering if it is this brand or teff itself?  Please let me know if you have experience with either.

Juliebove Rising Star

Some people have reported problems with Bob's Red Mill. 

  • 2 years later...
Jen deNutrients Newbie

Udi's brand also uses sodium carboxymethyl cellulose in many products, a food additive emulsifier that may cause intestinal symptoms. Emulsifiers help stabilize the bread and give it a great texture but the additive may also possibly be emulsifing the intestinal lining. Our intestinal cell walls are lined with electrically active proteins that are shaped somewhat like bottle brushes with a stiff backbone protein handle topped by electrically active bristles that act like magnets that repel each other and help keep the tube shape of the intestine open. So food additive emulsifiers may be disrupting the ability of the intestinal walls to stay open. Xanthum gum is also an emulsifier.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      IBS-D vs Celiac

    2. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.