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Remission During Pregnancy?


AMom2010

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AMom2010 Explorer

Does anyone know if untreated celiac goes into remission during pregnancy? I have heard other autoimmune diseases do. When I was pregnant 2 years ago I felt GREAT and didn't need a nap, which was really surprising because normally I need a 2-3 hour nap just to make it thru the day. In fact, I just quit breastfeeding 6 weeks ago and now I am so incredibly tired during the day, luckily my baby is a great sleeper/napper ;)

I also had insomnia while pregnant, which made it even stranger that I didn't need a nap and felt so good. I would typically get only 4 hours of sleep when I was pregnant, but I felt amazing. Not at all what I expected during pregnancy...

I am getting the celiac panel next week, I really hope it comes back positive if in fact I do have celiac. My baby has also been tested, her bloodwork was negative and the pedi GI was to do an endoscopy in 2 months if her symptoms haven't improved. I would feel so much better about putting her thru that procedure if I knew I had celiac.


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alex11602 Collaborator

I am not sure if it goes into remission, but I always felt great when I was pregnant. There were no stomach problems to be found until after the child was born.

mommida Enthusiast

A woman's immune system has to shut down so it will not harm the baby. That is wy you are warned duing pregnancy to stay out of crowds during flu season and such.

That is why I gained weight like it was going out of style after being yelled at for the first 5 months. It was absolutely uncontrollable I ate more in the beginning of the pregnancy not the end. I'm only 5' 1" there was no room for my stomach to hold food. My son was 8' 5" and 22 inches long.

AMom2010 Explorer

Thanks for the replies! I am really looking forward to finding out if celiac disease the casue for our symptoms, I think it would be such a blessing to have my almost 14 month old diagnosed this early so she could avoid years of misery...

mommida Enthusiast

Testing is going to be a bit harder because she is only 14 months. (Notorious for false negatives in patients under 24 months.) She needs to keep eating gluten until all the testing is done.

If you are in lower pen. of Michigan the top 2 pediatric gastroenterologists I've heard of, Dr. Hernando Lyons at St. John's hospital and Dr. Bellknap (spelling might be off sounds like bell nap). Depends on your insurance coverage, they accept completely different insurance.

AMom2010 Explorer

Yes the GI we saw did mention the bloodwork is basically useless. She's already been tested and the celiac panel was negative. Dr. said if her symptoms haven't improved in 2 to 3 months she would was do perform and endoscopy and colonoscopy. In the meantime, she wanted me to get tested. I really really liked her, (we live in North Texas) and I'm confident that if DD does have celiac disease the dr. will be able to diagnose it. That's why I really hope my bloodwork is positive. A diagnosis of celiac disease just "fits" both our symptoms. I had just resigned myself to believing feeling this way was normal. Hoping and praying for some answers soon!

mommida Enthusiast

I hope you find your answers soon!

No matter if the test is negative, you can still give gluten free a try.


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  • 2 weeks later...
Angels Newbie

i am 28 weeks and have gained 40 pounds already and feel great, maybe it does go into remission.

Coleslawcat Contributor

It sure didn't for me. My celiac caused me to have severe hyperemesis with my first 2 pregnancies. Once I was diagnosed and gluten free I had a normal 3rd pregnancy. There was gluten in my anti-nausea medication and everyone told me to eat bland food like crackers and toast and those things all made me much sicker.

  • 2 months later...
Librariangirl Newbie

I had undiagnosed Celiac, but diagnosed DH while pregnant. The DH went into remission, but showed back up about 6 weeks after the birth (8 lb 11 oz...)

  • 2 weeks later...
koz158 Apprentice

It sure didn't for me. My celiac caused me to have severe hyperemesis with my first 2 pregnancies. Once I was diagnosed and gluten free I had a normal 3rd pregnancy. There was gluten in my anti-nausea medication and everyone told me to eat bland food like crackers and toast and those things all made me much sicker.

Do you know where you can find out if and or what midications contain gluten?

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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