Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Tell Me What You Think


0010xoxotee

Recommended Posts

0010xoxotee Newbie

Hi , I am 20 years old and I have been gluten free for a year. I was tested for celiacs and the result was negative, but my doctor said it could be wrong. I have many symptoms of it and going gluten-free is the only thing that has helped. As a child I would get hospitalized often because of stomach aches and because I would stop eating. I was too young to say that I was constipated so the doctors didn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast

Hi , I am 20 years old and I have been gluten free for a year. I was tested for celiacs and the result was negative, but my doctor said it could be wrong. I have many symptoms of it and going gluten-free is the only thing that has helped. As a child I would get hospitalized often because of stomach aches and because I would stop eating. I was too young to say that I was constipated so the doctors didn

ravenwoodglass Mentor

Sorry you have been through so much and it is good to hear that the diet is helping you. I agree that you may have some other intolerances. You may want to drop dairy and soy for a bit and see if that helps. If it does then add them back in one at a time after a couple of months to see if you are reacting to one but not the other. Also make sure that you are checking any supplements or meds that you are taking. Those need to be checked with the maker to be sure as your doctor won't know if something is safe or not.

I hope you continue to improve.

0010xoxotee Newbie

Thank you for replying, I do believe a lot of damage was doctor caused and I go to a new doctor now. I have other intolerants dairy, soy, peanuts, and pork (it does not digest well for me) Would it be okay to cut out grains completely even if I am very active. I dance competitively training is 4-10 hours a week. Right now I do two grains a week brown rice, Quonioa, or gluten-free oatmeal. As for the being careful, I try to be very careful. It seems like the smallest amount of gluten makes me sick, even my face wash and shampoo has to be gluten-free or my face swells and my head and face will be itchy.

GlutenFreeManna Rising Star

Thank you for replying, I do believe a lot of damage was doctor caused and I go to a new doctor now. I have other intolerants dairy, soy, peanuts, and pork (it does not digest well for me) Would it be okay to cut out grains completely even if I am very active. I dance competitively training is 4-10 hours a week. Right now I do two grains a week brown rice, Quonioa, or gluten-free oatmeal. As for the being careful, I try to be very careful. It seems like the smallest amount of gluten makes me sick, even my face wash and shampoo has to be gluten-free or my face swells and my head and face will be itchy.

Some gluten intolerant people cannot tolerate oats at all, even gluten-free oats. I would drop those first before cutting out all grains. Also be aware that if you are oat-intolerant you may need to also avoid some brands which use gluten-free oats in their facilities. For example I cannot tolerate oats and because of that I also cannot eat anything made by Bob's Red Mill--all their gluten-free flours are made in the same facility/same equipment as their gluten-free oats and therefore cc by gluten-free oats.

0010xoxotee Newbie

Okay I will try that, what would you recommend for breakfast then? I eat eggs a few times a week and then oats. Also I can't have anything with a lot of sugar because I have low sodium and sugar makes my sodium and potassium levels lower

cyberprof Enthusiast

Yes, I agree with GFManna - cut out the oats. They are problematic in anyone not totally healed. Some people react to rice and quinoa, sad/weird as that may be.

I think going grain free is do-able for athletes. Sweet potatoes are good as are other squashes for carbs. You could go grain free and then add the rice back in and see if you're ok.

You could read "The Paleo Solution" by Robb Wolf (see his site robbwolf dot com) as he is a trainer and trains competitive athletes. He has a lot about healing and training on the grain-free diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Okay I will try that, what would you recommend for breakfast then? I eat eggs a few times a week and then oats. Also I can't have anything with a lot of sugar because I have low sodium and sugar makes my sodium and potassium levels lower

There are lots of things to eat for breakfast. There's no reason you need to eat "breakfasty" food in the morning. I often have leftovers from dinner. I try to have a balance of protein (meat, beans, peanut butter, eggs) and carbs (fruit, gluten-free bread, rice, potatoes) for breakfast. check out the "what's for breakfast" thread to see what other people eat:

0010xoxotee Newbie

This may sound dumb, but how do I know if I have a reaction to it? I don't notice any pain after I eat them, should I watch for bloating? I never knew you could have issues with gluten-free foods so this is all new to me

ravenwoodglass Mentor

Okay I will try that, what would you recommend for breakfast then? I eat eggs a few times a week and then oats. Also I can't have anything with a lot of sugar because I have low sodium and sugar makes my sodium and potassium levels lower

I don't tolerate oats but I also like a hot cereal for breakfast. You could try Buckwheat Kasha or Cream of Buckwheat. If Pocono brand is available where you are they are grown in dedicated fields and harvested and processed in a plant that only processes Buckwheat.

My go to breakfast is usally Udi bread and pnut butter with some fruit and sometimes I also go for eggs or something that is left over from the night befores dinner.

Poppi Enthusiast

My go to breakfast is usally Udi bread and pnut butter with some fruit

Me too. Udi's bread, toasted with butter and peanut butter and a cup of tea.

love2travel Mentor

For breakfasts I like bacon and eggs, omelettes, poached eggs with hollandaise, plain old cereal, frittata, homemade bread with creamy lavender honey, grilled cheese and smoothies. I LOVE bluberry/strawberry/banana with some apple juice and yogurt and flaxseed. Sometimes I just have leftovers for breakfast. Oh, and pancakes with homemade butter rum syrup and fruit salad with lime juice, honey and poppyseeds. I also sometimes make cornbread and scones. I make too many flavoured honeys and preserves that I need a vehicle for them! I like to add a handful of raw almonds to my diet in the morning.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,134
    • Most Online (within 30 mins)
      7,748

    Sewingmomma
    Newest Member
    Sewingmomma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bev in Milw
      Reading labels at dailymed.com is simpler if you’re familiar w/ gluten-free list of inert ingredients (aka ‘excipients’  allowed by FDA.      www.gluten-free.com has that list & I’ve included It’s below…. Tricky ones for me are the “4 D’s“ because names are similar. These 2 are gluten-free by ‘legal’ definition— •Dextrans - Partially hydrolyzed corn or potato starch. •Dextrose - Powdered corn starch. Other 2 need to be questioned. (Maybe ok for isolated 7-10 day Rx,   antibiotic?,  but gluten-free status needs to be verified for long term / daily use for chronic condition, like thyroid or BP meds.)   These are : •Dextrates - Mix of sugars resulting from the controlled enzymatic hydrolysis of starch. •Dextrins - Result from the hydrolysis of starch by heat or hydrochloric acid (from corn).  It can also be obtained from wheat, rice or tapioca.  (Maltodextrin on US labels MUST be corn so gluten-free.) Technically, ‘Starch’ on USDA ‘food’ labels in US must be from corn, & if not, the source must be identified.   In drugs,‘ Pregelatinized starch’ & ‘Sodium starch glycolate’ can also be from potato, rice, OR wheat.  Wheat is more likely to be found in products made outside of US (Europe) where corn is not the major(readily available & least costly) crop.     Hope this helps even though  learning sources of some gluten-free ones may make them less appealing. (And while the “Read every label, every time” for gluten is a pain, I’ve learned there are worse things than celiac dx—Allergy to corn would be at top on my list!)          Bev in Milwaukee From www.gluten-free.com EXCIPIENT INGREDIENTS IN MEDICATIONS  Aspartame - An artificial sweetening agent derived from aspartic acid. Aspartic Acid - A crystalline amino acid found naturally in sugar beets and sugar cane.  Benzyl alcohol - Made synthetically from benzyl chloride which is derived from toluene (a tar oil). Cellulose - (ethylcellulose, methylcellulose, hydroxymethylcellulose, hydroxypropyl, microcrystalline) – Obtained from fibrous plant material (woody pulp or chemical cotton). Cetyl alcohol - Derived from a fat source (spermaceti, which is a waxy substance from the head of the sperm whale). Croscarmellose sodium - An internally cross-linked sodium carboxymethylcellulose for use as a disintegrant in pharmaceutical formulations.  Comes from wood pulp or cotton fibers to form carboxymethylcellulose.  It contains no sugar or starch. Dextrans - Partially hydrolyzed corn or potato starch. Dextrates - Mix of sugars resulting from the controlled enzymatic hydrolysis of starch. Dextrins - Result from the hydrolysis of starch by heat or hydrochloric acid (from corn).  It can also be obtained from wheat, rice or tapioca. Dextrose - Powdered corn starch. Fructose - Obtained naturally from fruits or honey; hydrolyzed cane or beet sugar. Gelatin - Obtained from the skin, white connective and bones of animals (by boiling skin, tendons, ligaments, bones, etc with water). Glycerin - Historically, glycerin (also known as glycerol), was made the following ways: -  Saponification (a type of chemical process) of fats and oils in the manufacturing of soaps -  Hydrolysis of fats and oils through pressure and superheated steam -  Fermentation of beet sugar molasses in the presence of large amounts of sodium sulfite   Today its is made mostly from propylene (a petroleum product) Glycerols - Obtained from fats and oils as byproducts in the manufacture of soaps and fatty acids (may also be listed as mono-glycerides or di-glycerides). Glycols - Products of ethylene oxide gas. Hypromellose – A brand of hydroxypropyl methylcellulose (see cellulose). Iron oxide (rust) - Used as a coloring agent. Kaolin - A clay-like substance. Lactilol - Lactose derivative; a sugar alcohol. Lactose - Also known as milk sugar, is used in the pharmaceutical industry as a filler or binder for the manufacture of coated pills and tablets.   Commercially produced from cow's milk. Maltodextrins - A starch hydrolysate that is obtained from corn in the United States but can also be extracted from wheat, potato or rice. Mannitol - Derived from monosaccharides (glucose or mannose). Methyl Paraben – Comes from the combination of denatured wood alcohol and benzoic acid (benzoic acid occurs naturally in cherry bark, raspberries, tea, anise and cassia bark).  Polysorbates - Chemically altered sorbitol (a sugar alcohol). Polyvinyl alcohol – A water soluble synthetic alcohol (synthesized by hydrolysis of polyvinyl acetate). Povidone (crospovidone, copovidone) - synthetic polymers  Pregelatinized starch - A starch that has been chemically or mechanically processed.  The starch can come from corn, wheat, potato or tapioca. Shellac - A natural wax product used in tablet or capsule coating. Sodium lauryl sulfate – A derivative of the fatty acids of coconut oil. Sodium starch glycolate - Sodium salt of carboxymethyl ether of starch. Usually from potato but can be from corn, wheat or rice. Stearates (calcium, magnesium) - Derived from stearic acid (a fat; occurs as a glyceride in tallow and other animal fats and oils, as well as some vegetables; prepared synthetically by hydrogenation of cottonseed and other vegetable oils). Sucrose - Sugar also known as refined sugar, beet sugar or cane sugar. Titanium dioxide - Chemical not derived from any starch source used as a white pigment.  Triacetin – A derivative of glycerin (acetylation of glycerol). Silcon dioxide – A dispersing agent made from silicon.  
    • NoriTori
      @Scott Adams  Sure, Any and all information is welcome. Also the only was to convince my family to get tested is to get tested myself and conclusive answers. Very stubborn lot.  
    • trents
      Understood. It's very anxiety-provoking when you don't know what you are dealing with and don't know if you are attacking it correctly.
    • Heatherisle
      I have heard of NCGS, but everything is just so confusing!!! Just unsure of things as her EMA test was negative but TTG was positive @19u/ml(lab range 0.0-7.0).Apparently she also has occasional bubble like blisters in between her fingers, don’t know if that’s significant. She is triallling gluten free as suggested by the gastroenterologist after her endoscopy. Keep getting different answers when typing in her symptoms etc. Some sites say it can be possible to have coeliac, even with a negative EMA . It’s so frustrating and her anxiety levels are through the roof. I know she’s hoping it’s coeliac which is weird I know!!! But if it’s not it just means more tests. Sorry to ramble on!!!
    • sillyac58
      I ame looking for rice flakes that aren't cross contaminated to use in making oat free granola. Does anyone know of a brand? Also I see that some people just used puffed rice cereal, but it seems like that wouldn't be sturdy enough to withstand the mixing without crumbling. Any ideas out there? Thanks!  
×
×
  • Create New...