Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help


collgwg

Recommended Posts

collgwg Contributor

i don't know if I'm posting this in the right place but I'm hoping that someone here could give me some ideas on what in the world i can eat? i have been up all night puking and butt puking and now i have no idea what to eat, so i have been sipping at water all morning and afternoon trying to figure this out

i look at banana's and think no i get heart burn

strawberries no i get hives

no lactose

no gluten

diffentally no soy bad reaction

no dill bad reaction

eggs up set stomach

nothing acidic

this relay limits what i can consume

i have been looking through the cupboards and fridge and freezer and just staring blankly at the foods and get discouraged because i have been throwing out lots of foods that i make and either getting sick from it or it tasting so awful that the dog wont even eat it lol

so i guess my question to you who is reading this is: what would you eat if you had these restrictions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

i don't know if I'm posting this in the right place but I'm hoping that someone here could give me some ideas on what in the world i can eat? i have been up all night puking and butt puking and now i have no idea what to eat, so i have been sipping at water all morning and afternoon trying to figure this out

i look at banana's and think no i get heart burn

strawberries no i get hives

no lactose

no gluten

diffentally no soy bad reaction

no dill bad reaction

eggs up set stomach

nothing acidic

this relay limits what i can consume

i have been looking through the cupboards and fridge and freezer and just staring blankly at the foods and get discouraged because i have been throwing out lots of foods that i make and either getting sick from it or it tasting so awful that the dog wont even eat it lol

so i guess my question to you who is reading this is: what would you eat if you had these restrictions?

Can you eat meat and rice???

When I was at my sickest I would brown ground lamb then take plain cooked white rice and (kinda) stir-fry them together. It was ,and still is, my safest meal.

It seemed like forever (in actuality it was only about 3 weeks) before I could eat anything more.

collgwg Contributor

yes i can eat meat

rice jury is still out on that one i can try it and see what happens :)

i just made a frozen peach smoothie with just water its ok then i added a couple of chunks of banana that i froze hoping that it wont give be gut burn but ill see how it goes

sa1937 Community Regular

so i guess my question to you who is reading this is: what would you eat if you had these restrictions?

Sorry that you are feeling so ill...not fun! If I was nauseous, I'd be inclined to have some chicken and rice soup (or just broth with rice in it). Would that work for you? I'd probably also sip a coke or ginger ale as I find that to be soothing for me but don't know if that would work for you.

Mari Enthusiast

I was having the same problems with foods when I was diagnosed. It has taken a while to add foods back to my diet. It helped to follow the online SCD diet.

Bananas give me stomach aches but now I eat a lot of them. They have to be very ripe, no green, lots of brown spots. I can peel them, dip them in Vit C or lemon water and freeze them in small bags for snacks. They are OK cooked with gluten-free millit, rice or buckwheat cereal. I can mash them with cooked winter squash, raisins, cooked pork, pears, coconut. Unless they have been frozen I have to mix them with something.

Fruits I can eat are apples and pears. Prunes, dried cranberries and raisins I soak in Vit C water to deactivate mold toxins. Can't tolerate grapes or fresh prunes/plums. Grapefruit, tangerines OK but oranges less OK.

GlutenFreeManna Rising Star

When I'm feeling sick I try to eat plain, bland stuff--rice and baked chicken, chicken and rice soup (homemade), rice cakes with peanut butter or gluten-free toast with PB--peanut butter almost always stays down when I feel like throwing up. A baked potato or mashed potatoes with a little salt to replenish the salts you are losing by throwing up and D. Gatorade is helpful for dehydration as well just don't drink too much because of the sugar. I drink ginger ale too--it's just about the only soda I will drink and only when I'm super sick because the ginger and carbonation settles my stomach.

rosetapper23 Explorer

I would just like to add that you might consider taking L-Glutamine to help your gut heal. Many of us have been helped by doing so.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



collgwg Contributor

thanks so much for all your advice

what is your safe hot drink im had to give up coffee and tea and looking at going to a herbal tea peppemint is good

collgwg Contributor

i just went and got some tapioca and custard powder and made up a batch of each

i cooked up some chicken yesterday and been eating off of that

i also made a soup with the bones and bits of chicken and used poultry seasoning yea thats on the no list now instant heartburn and gut burn

this is nuts!!!

going to start nightshade free foods thinking that could be a prob

Is this all Celiac related?

cahill Collaborator

i just went and got some tapioca and custard powder and made up a batch of each

i cooked up some chicken yesterday and been eating off of that

i also made a soup with the bones and bits of chicken and used poultry seasoning yea thats on the no list now instant heartburn and gut burn

this is nuts!!!

going to start nightshade free foods thinking that could be a prob

Is this all Celiac related?

possibly,, have you considered the possibility of leaky gut or additional intolerances or allergys???

Doing a strict elimination diet may a good thing at this point.

when I did my elimination diet I picked foods that I rarely ate at first.I was so ill that I ate plain white rice and ground lamb for about 3 weeks and then started adding foods back SLOWLY VERY VERY SLOWLY . The first week I did add sweet potatoes ( not a nightshade ) peas and peaches. After 2 weeks with no reaction I started adding ONE Food a week.It is tough VERY VERY tough, but feeling well is so very worth it.

When I did my elimination diet there were many food I could not tolerate that I have since been able to add back into my diet. With time my gut has healed a bit and I have been able to add back dairy ( that makes me a VERY happy girl) and am testing out other foods. Many food I can tolerate small amounts on occasionally. So other than gluten and soy which are PERMANENTLY out of my diet. I am playing with SLOWLY add other foods back.

Hang in there. I do know how tough it is ,, but you can do this :)

((HUGS))

  • 4 months later...
collgwg Contributor

thanks so much for all your advice

domesticactivist Collaborator

Soup! Make a simple broth by boiling/simmering bones or a chicken. Strain it then add back veggies you can eat and meat. Boil it until everything is soft and eat it. You might look into GAPS. It does include some foods you can't eat but you introduce each food slowly, and don't introduce foods that are known problems. There's lots of info on it out there. I have just finished summarizing the first six stages on the blog linked from my profile.

AVR1962 Collaborator

Chicken soup is a life saver. There is something in the chicken broth from a boiled chicken that really helps. Boil you up a chicken for about an hour, save that broth and us it for your soup. You can put in what you can eat. Sometimes when the body just gets the icks, I find this as my solution. I hope you get to feeling better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.