Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Used To This


DonnaMM

Recommended Posts

DonnaMM Explorer

I have been diagnosed with gluten senstivity, not quite celiacs yet but the doctors say it's likely it will develop. I was told to limit my gluten and was more than happy to do anything he said that would make my stomach troubles go away, within three days I felt soooo much. It's been about a month now and I am starting to get depressed over my new diet (although I am happy about my weight loss. I feel like I am no longer welcomed at my parents and in-laws for dinner. My friends dont invite me out to me anymore because they are embarassed at the modifications I have to make. I just wanted to know if anyone else went though this and will it get better. Because I don't have celiacs and i am not doing internal damage by eatting gluten, it just makes me feel miserable, I am almost feel guilty that I won't eat certain things and don't know what to do please help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Austin Guy Contributor

Glad you're feeling better. I noticed significant health benefits within 48 hours of going gluten free. As far as restaurants and family dinners go, I will go for the social activity, but will eat prior.

Many people will not understand gluten intolerance so I have read in the forum to tell people I have a severe wheat allergy. People get that and are usually quite understanding.

Takala Enthusiast

You are doing internal damage if you felt miserable eating gluten.... it's not normal to have pain as a result of eating food. You merely haven't got a "formal" diagnosis, so what- do you really want to keep eating gluten and end up with a list of problems like this ?

ataxia and loss of balance

neurological problems such as numbness and loss of feeling in hands, feet

vision problems

brain lesions

arthritis

bone loss

hair and nails lousy quality

asthma

Sjogren's

gum disease

kidney problems

This can be all yours, with an undiagnosed, perpetual gluten intolerance.

It was an interesting sorting out process on the friends and acquaintances routine. Find better friends, invite them to your cooking or restaurant gluten free dining of choice, and make sure that your immediate family (spouse, children) comprehends that this is a health issue and that their help and support is needed. In general, it seems that parents and in laws, unless they're also glu int or celiac, merely exist to drive the rest of us crazy. It's more of a comment on them if they can't be bothered to be considerate of their own flesh and blood.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.