Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Loads Better!


Eri82

Recommended Posts

Eri82 Newbie

Well, I have posted a topic a while back about how miserable my life was ( ten friggin years) of scarfing down gluten, not even knowing it was making me sick. Ok, fast forward several months of gluten-free diet. I am sooo different! First, my mysterious yet severe fatigue is GONE. My joints, which would always be in so much pain (I thought I would need a knee replacement at the age of 30) DO NOT HURT AT ALL ANYMORE. My digestive issues have cleared up.. My skin, hair and nails are finally starting to look and feel healthy. I have energy which is now consistent with my age (29, but before I felt 92) I no longer crave junk food like madness, and my weight is slowly yet surely getting down to a healthy number. While officially I am "Non-celiac gluten intolerant", I have no desire to eat gluten at all-I don't want to go back ever!!( ok, maybe just once a year funnel cake at the carnival) Thanks to everyone on gluten-free forum!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



joej1 Apprentice

Amazing. I am headed in that direction too but i was really sick and it is taking a while. =)

  • 4 weeks later...
Isidor Newbie

Yaaaaaaay!!!!!!! I am going down the same road as you are!!!!!!!!!!!!!!!!!

AMom2010 Explorer

Yay for you! I am coming up on a month gluten free and my joint pain and fatigue are gone. Face has cleared up quite a bit too! It's funny you mention funnel cake as your most desired gluten item, it's the one thing I would never in a million years touch! Got sick from eating one at Six Flags when I was 8 or so. I don't miss gluten all all either, in fact I can't even narrow in on one item I would die to have again.

  • 2 weeks later...
GlutenGladi8or Apprentice

Welcome to our exclusive club (although not a choice for any of us!) Those days are over for me and every week has gotten better and better. Onward and upward!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,112
    • Most Online (within 30 mins)
      7,748

    pntszrn
    Newest Member
    pntszrn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Are you a super sensitive celiac? I shouldn't think that would be an issue for the average celiac. I would be more concerned about cross contamination in cooking areas.
    • Rebeccaj
      Hi i was wondering how do you guys go about your family being normal and you the only person that is celiac? like Airbourne when they cook but your gluten free? 
    • Wends
      Hi RMJ. I read your post. Sounds like you need a second opinion? Have you been advised by Dietitian or referred to one? There are protocols for treating patients that have ongoing celiac disease antibodies / histology. Particularly as you have nausea and pain. You probably already know about the gluten contamination elimination diet. It may be that you are super sensitive to even the allowed 20parts per million gluten in certified gluten free flours and products? An elimination of all grains for a time may be necessary? Especially oats if you currently include them? It’s worth noting that a minority of Celiacs have oat intolerance and T cell response similar to gluten (particularly carriers of high risk HLADQ2.5), and ongoing celiac damage to the gut can occur with oats. Even certified gluten free oats. If you are already super strict and careful about cross contamination, do you eat cheese or have any cow’s milk in your gluten free diet? It’s often overlooked, even by specialists and Celiac dietitians. But there are case study reports in children. There’s a study in adults showing mucosal reaction to casein in Celiacs, and quoted 50% of Celiacs react to casein similar to gliadin because of molecular mimicry. Then there was this letter to the editor following up a case that states, ”We conclude that given this novel information, pediatric, and possibly adult, celiac disease patients with suspected “refractory” celiac disease and no detectable gluten exposures, should be trialed on a combined CMP-GFD with close monitoring for disease activity resolution prior to consideration of more restrictive diets…” (Jericho H, Capone K, Verma R. Elimination of Cow’s Milk Protein and Gluten from the Diet Induces Gut Healing in “Refractory” Pediatric Celiac Patients. Ann Pediatr. 2021; 4(2): 1082.) CMP-GFD: cow’s milk protein-gluten free diet. Hope you figure it out.  
    • trents
      Welcome to the forum, @BlakeAlex! Is this the GI Reset product you are using?: https://inwellbio.com/wp-content/uploads/2023/08/GI-Reset_Info-Sheet.pdf There is a lot of weird stuff in that you could be reacting to. Personally, I would discontinue it as I doubt it's really doing you any good anyway. Getting to the point where you are truly eating gluten free consistently usually involves a significant learning curve as gluten is hidden in the food supply in many ways by manufacturers. For instance, would you ever expect to find it in soy sauce or Campbell's tomato soup? But it's there and a main ingredient. Getting rid of macro sources of gluten is relatively easy. Just cut out bread, cake and pasta. But avoiding the hidden sources and the cross contamination sources is much harder. I am including this article that might be of help to you as a new celiac in getting off to a good start:    Long-term undiagnosed celiac disease inevitable leads to nutritional deficiencies because of the damage done to the lining of the small bowel where almost all of the nutrition in our food normally is absorbed. We routinely recommend that newly diagnosed celiacs invest in some quality gluten-free vitamin and mineral supplements. And I'm talking about more than a multivitamin. We recommend a high potency B-complex, 5-10,000 IU of D3 daily, Magnesium glycinate, and zinc. I suspect your mouth and throat ulcers are nutritional deficiency related. Costco is a good place to get good quality gluten-free vitamin and mineral supplement products at a reasonable price. Are you on medications? May we ask your relative age?  
    • BlakeAlex
      Hello, I was recently diagnose with Celiac Disease and without realizing, I had every symptom on the list. Now I am moving as fast as I can to a total recovery. I thought I was doing well but I notice my ulcers on my tongue and throat and cough are starting to come back again.  Has anyone experience these symptoms? Also, I am incorporating GI Reset powder for a jump start to recovery.  Thanks in advance, Blake     
×
×
  • Create New...