Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach Pain


drea

Recommended Posts

drea Rookie

Does anyone have ulcer type pain? Pain and burning in the upper stomach that radiates through to the back? Is this a normal symptom of celiac? Also, does the specific carbohydrate diet help with this type of pain? I need some relief!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elephantofsuprise Newbie

<_< Do you notice the pain mostly on your middle to right side and into your back? Sounds similar to my symptoms of gall bladder disease. Had a lot of pain after eating fatty foods and especially after eating any type of meat.

Melissa

drea Rookie

I had my gallbladder removed when I was 18. The pain is right below my breastbone and into my stomach. I get indigestion with it too. Sometimes my stomach is fine, then out of the blue this pain will start. This time, I know it wasn't from gluten. I have been very meticulous in what I have been eating since being glutenized a few weeks ago.

elephantofsuprise Newbie

So much for my genius diagnosis :rolleyes: Does it feel at all the same as when your gall bladder would act up because my doctor said it is possible to get stones again?? (Don't ask me how? :o ) Just a thought.

Melissa

drea Rookie

Should've mentioned before, I never had stones. Docotor said it was just diseased. It doesn't feel the same as when I had gallbladder problems though. I have noticed though, that since I got my gallbladder out, my stomach problems have continued and I think, gotten worse. I dont know if that happens to most people when they get it out. Thought it was supposed to make things better. Apparently not! (for me anyway)

judy05 Apprentice
Does anyone have ulcer type pain? Pain and burning in the upper stomach that radiates through to the back? Is this a normal symptom of celiac?  Also, does the specific carbohydrate diet help with this type of pain?  I need some relief!

<{POST_SNAPBACK}>

Hi,

I also suffer this type of pain, had all GB testing, which was negative. Thr GI doc said it is IBS and the pain was relieved by increasing fiber and a small dose of antidepressant made me better. Try not to let yourself get constipated, I take Citracel tabs. Also don't put insoluble foods first into your empty stomach. It causes the colon to spasm and therin the pain. I try to start my meals with a banana and/or applesauce. read up on IBS to learn more tips and how to tell if food is soluble or insoluble. Hope this helps. My pain was always on the right side and radiating to the back.

judy05 Apprentice
Does anyone have ulcer type pain? Pain and burning in the upper stomach that radiates through to the back? Is this a normal symptom of celiac?  Also, does the specific carbohydrate diet help with this type of pain?  I need some relief!

<{POST_SNAPBACK}>

Hi,

I also suffer this type of pain, had all GB testing, which was negative. Thr GI doc said it is IBS and the pain was relieved by increasing fiber and a small dose of antidepressant made me better. Try not to let yourself get constipated, I take Citracel tabs. Also don't put insoluble foods first into your empty stomach. It causes the colon to spasm and therin the pain. I try to start my meals with a banana and/or applesauce. read up on IBS to learn more tips and how to tell if food is soluble or insoluble. Hope this helps. My pain was always on the right side and radiating to the back.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

When I have a gluten accident I get mild to severe upper abdominal pain. The pain is right where the stomach/upper small intestine might be. I almost wonder if it is a sign that damage is occuring.

skbird Contributor

FYI on the gallstones without the gallbladder - from what I've read, gallstones are actually formed in the liver and then collected in the gallbladder. So that's why you'd still get them after the gallbladder is removed. I take supplements for my liver as I have cholesterol problems, food intolerances (obviously! :) ) and hormone problems, all are signs of congested liver.

I have been getting pain like that lately, too, the last few months, which is sort of new. More into my stomach though, only occasionaly up near the breastbone - sounds a little like acid reflux.

Stephanie

BamBam Community Regular

All of my problems started following my gall bladder surgery in 1988. I had the surgery and was in the hospital for five days. I did not have a bowel movement in the five days that I was there, so they gave me a stool softener and up until I learned about gluten intolerance I had a hell of a time, especially while traveling. Severe abdominal pain for basiclaly 13 years and I had four colonoscopies, sigmoidoscopy's upper GI's, lower GI's and blood and poop cultures by the dozen and everybody says "you're okay, it's just IBS." Well, let me tell you when I went gluten free, and I am still fighting all the ingredient labels and I am learning every day what is and isn't gluten free, I feel almost 100% better, and I am not going to any doctor to get "diagnosed." I already wasted thousands of dollars on tests, I am not going through that again.

BamBam

northman Newbie

I've had the same pains you are describing, but haven't been gluten-free long enough to know if it's related to celiac disease or not. I was diagnosed 2 weeks ago, after being miserable since last September. I've been to more Doctors in that time than I care to list, had all the tests they could think of and had my Gall Bladder removed in January. When my symptoms persisted post-op and my weight dropped to 160 lb. (I'm 6'2") my PC Physician finally decided to do a celiac sprue test which came up positive. I've been gluten-free for two weeks since then and feel 1000% better! I mentioned Gluten Intolerance to my Dr. back in November (at my Mom's insistance!) but I think that they were too focused on my Gall Bladder at that time to think about it. I've been Glutenized a couple of times by stealth ingredients since I went gluten-free but fortunately didn't suffer too much because of it. I wish they could have diagnosed me sooner but that's behind me now and I can move on Gluten-Free! Thanks to everyone here for your information - it truly has been a godsend!

Steve

Canadian Karen Community Regular

I occasionally get those type of pains, but mine is definitely due to gas (it is sharp, stabbing kind of pain and I have to keep changing positions on the floor in order to work the gas through my system). I usually start lying on my stomach for a few minutes, switch over to one side for a few minutes, then on my back for a few minutes, then the other side. Usually by this time, I am ready to fly to the bathroom! Also, I find either a hot water bottle or a heating pad on low helps with the pain also.....

Steve, I see that was your first post, just wanted to welcome you to the board!!! If you are newly diagnosed, there is a wealth of knowledge here with the people on this board! Any questions you have, just fire away!!!!

Karen

jknnej Collaborator

Sounds to me like heartburn.

I have those symptoms and thank God, Nexium relieves them. Talk to your dr. about a trial of Nexium to see if it helps. It did for me (of course, only after they put me through all of the other tests!!)

Jenn:)

misskris Apprentice
Does anyone have ulcer type pain? Pain and burning in the upper stomach that radiates through to the back? Is this a normal symptom of celiac?  Also, does the specific carbohydrate diet help with this type of pain?  I need some relief!

<{POST_SNAPBACK}>

Oooo...me! When I eat gluten this is the first sign. I get severe pain right under my breastbone/stomach area. And I feel like my tummy is on FIRE! I'm guessing it's really my small intestine that I'm feeling, but at that point, the pain is so bad it's hard to pinpoint. Dunno if that is normal or not, but that's my experience. My hubby persuaded me to try antacids last time. Maybe helped a little??? Also tried taking an extra acidophilus before when this happened, thinking maybe that would help. I'm not sure if it did. It generally goes away on its own in a couple of hours. But then nausea sets in. Bah!

ShortStuff2309 Apprentice

Hello,

I also have had the same type of pain. As a matter of fact, just before I was diagnosed with Celiac, I was away on vacation and the pain in my stomach was so bad that I couldn't stand it. I was rolling around on the bed, crying my eyes out because I was in so much pain. I called my doctor and he told me to get to the emergency room right away, so I did. They, of course, did nothing but give me pain killer and told me to see my doctor when I got back home. I tried the pain killer twice and both times, it didn't even touch the pain. So I saw my doctor as soon as I got back home a few days later and he was certain it was an ulcer because of the type of pain I was having. I had an edoscopy done and the doctor who did it didn't find anything wrong. He was the one who noticed that my symptoms sounded much like Celiac disease and he was the one who tested me for it. Sure enough, that's what was wrong.

Before I was diagnosed with this, I was told it was an ulcer, heartburn, acid reflux, my gall bladder, etc etc etc etc etc. And all my tests always came back normal and the meds for all of those things never helped me. But the gluten-free diet has helped so I know that's what it's from.

When I eat anything that has gluten in it, I get horrible burning that starts right in the middle of my ribs and slowly works its way up and down until there isn't any part of my middle that doesn't feel like it's on fire. I explained it as feeling like someone lit a torch and put it in my stomach. Before I knew what was wrong with me, I would eat crackers to try and make it go away, because you're always told to eat crackers when you have a stomach ache. Which always made it even worse, and of course, now I know why! But it is a terrible, terrible feeling.

jenvan Collaborator

Other possible sources for the pain (these were explored for me when I was experiencing the abdominal pain): sphincter of oddi dysfuntion (can find info on internet) and pancreatitis--something to not mess with. luckily i waited to have the suggested procedure and after a few months the pain went away. one thought is that i had inflammation from celiac that finally started to heal after 4 mos or so on the diet.

digerati Newbie

Whoa! So this is what my problem has been! Last night I ate a piece of grilled (roasted?) chicken from KFC and about 10 minutes later had the worst heartburn I've ever experienced. I suspected the chicken, and so I checked the KFC website (which I should have done BEFORE I got it) and you guessed it, wheat!

The transition into a gluten-free diet is not going to be easy. :unsure:

misskris Apprentice
Whoa! So this is what my problem has been! Last night I ate a piece of grilled (roasted?) chicken from KFC and about 10 minutes later had the worst heartburn I've ever experienced. I suspected the chicken, and so I checked the KFC website (which I should have done BEFORE I got it) and you guessed it, wheat!

The transition into a gluten-free diet is not going to be easy.  :unsure:

<{POST_SNAPBACK}>

I KNOW! I was so excited that they had roasted chicken until I realized it was breaded! Why oh why wold you want to ruin perfectly yummy chicken with breading? FYI...I've been addicted to Chic-fil-A grilled chicken lately. Good food on the go that's actually gluten-free - it doesn't get any better than that. Hang in there!

elonwy Enthusiast

I got glutened on Wednesday and had a stabbing burning pain in my upper chest area ( esophagus- felt like BAD reflux) that turned into a dull stomach pain/nausea that spread to my back. It was starting to hurt so bad I was having trouble breathing and downed some Pepto to fix it. I'm on Acid blockers and shouldn't be having an reflux problems. I think it was the gluten.

Could I be getting more sensitive now that I'm taking it out of my diet?

Elonwy

Misa Rookie

Pre-gluten-free, I once woke up in the middle of the night with terrible stomach pain. The pain was so bad I actually passed out twice before I reached the phone to call for help. After much testing and poking at the ER, it turned out to be gas! Very embarrasing :unsure: The Doc said somtimes bloating can cause such pain that it actually feels like a heartattack....nice :rolleyes:

Misa :)

2old4 Rookie

I also had my gallbladder out and still felt those type of pains. Mine almost completely stopped when I went gluten-free. Now I occasionally have acid pains when I take medication or vitamins if I don't drink enough liquids. (I also had an esphagal cyst removed last year, which may explain this) But even before, I noticed if I didn't drink enough water I experienced more problems. Water also helps in the way of oxygen to the brain so I don't experience the "foggy head" feeling.

Canadian Karen Community Regular

Misa,

The exact same thing happened to me a couple of years ago. The pain was so intense that I had to take a taxi to the hospital. After a bunch of tests, the doc comes in and says "Here, try this and see if it helps....". It was something they call a "Pink Lady". Well, whatever was in it (I know Pepto was part of it, but some other powerful stuff in there too), worked like a charm. That's when the doc told me that the pain was gas.......

Embarrassing........ :unsure:

Karen

Canadian Karen Community Regular

Actually, just to add to that:

The best way to describe how it felt is like it felt like a dam was in my intestines stopping everything from going down and the pain was incredible. When I had the "Pink Lady", it felt like a bomb that immediately broke the dam and suddenly there was relief!!!! Sounds weird, I know, but boy, was I happy!!!!

Karen

Misa Rookie

Hi Karen

Good to know I'm not alone :lol: We probably weren't the first and won't be the last this happens to..but yeah, totally embarrassing....

Take care, Misa :)

PS I had the same "blockage" feeling.

narelleo Newbie
:D Hi I'm new to the site and only 3 mths celiac disease diagnosed, I am in Australia, it is because of pains that I came looking, since learning that I am Ceoliac I have been strick but it seems I may have been not stricted enough as I have had terrible pains in the lower part of my bowel leading up to my stomach and also had a temp with it for 24 hours, I am amazed by the cross contamination aspect and it is good to read your posts and check things out. I have had a lot of Abdominal and stomach surgery over the years and hence I suffer from a type of medical induced bulimia as well as celiac disease and this means that most of my food comes up anyway so my poor old tummy gets a hard going, mind you I am still overweight but not obese any more at least.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748

    Newest Member

    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.