Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free, Dairy Free, Fructose Free...how Am I Still Sick?


TummyTrubble

Recommended Posts

TummyTrubble Newbie

I am feeling so frustrated! :(

I'm on month 5 of fructose free.

I'm on day 45 of gluten free (I do not have celiac disease...just wondering if I'm sensitive to it) and around day 60 of dairy free.

How is it that I am still so sick that I'm having symptoms every day?!?!

Two weeks ago I accidentally got into the tiniest bit of corn syrup and as a result, got really sick. This entire week I have eaten nothing except water, chicken with salt and a tiny bit of black pepper and white rice with salt. For breakfast, lunch, and dinner. I am still having symptoms.

What am I missing?!? I don't know what else to do.

Is it possible I am having an issue with my medications or vitamins? I have tried to pick carefully but my probiotic has caramel color in it and my omeprazole has lactose monohydrate. Right now I am only taking a multivitamin (did away with the iron and calcium for now) and it has nothing suspect.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Did you replace your cooking pans, toaster, wooden or plastic cutting boards, wooden spoons, collander? Do you share a home with other gluten eaters? Have you replaced your shampoos and conditioners? Do you have household pets that you feed gluten food to? All of these are high cross contamination issues. Then again you may have developed other food entolerances. Like are you eating more soy products. Are you eating more gluten few processed foods also just a thought. Any kind of pepper makes me sick

GFinDC Veteran

Also, Have you tried eliminating rice? And yes, vitamins and meds need to be checked or eliminated also. Also any drinks, like tea, or coffee etc.

Everything you consume is a possible problem. You can't assume anything is safe until you try eliminating it for a while.

TummyTrubble Newbie

I do share a home with a gluten eater - my husband. I haven't replaced any of our dishes, although one of them blew up in the oven yesterday, so that's the end of that one. :rolleyes:

I don't have any wooden spoons - have been just using metal and glass cookware. I haven't used a toaster or a colander in at least 3 or 4 months. I do use the BBQ a lot but my husband's stuff goes on the right and mine on the left just to prevent any sort of cross contamination.

The dogs' food is hypoallergenic fish and sweet potato...it shouldn't have gluten in it.

I have not changed my shampoo and conditioner. Is this a possible source of gluten?

I don't eat any processed food or soy. I have a new calcium supplement with soy in it but I'm a wary of it...haven't opened the bottle yet. I have not tried eliminating rice. I'm scared to! I don't know what else to eat. I bought some Quinoa but haven't tried it yet. I'm doing the elimination diet thing right now and am trying to change something only every 3 or 4 days. I eliminated my multi-vitamin after finding inositol in it...wondering if maybe that was an issue. A few days time should show me if that is helping or not.

T.H. Community Regular

Two weeks ago I accidentally got into the tiniest bit of corn syrup and as a result, got really sick. This entire week I have eaten nothing except water, chicken with salt and a tiny bit of black pepper and white rice with salt. For breakfast, lunch, and dinner. I am still having symptoms.

Could it be corn?

Corn is in iodized salt to stabilize the iodine.

Corn is also used in the processing of white rice, I believe. Either during processing or polishing - I can't recall exactly, only that those who are sensitive to corn often have trouble with white rice.

If corn is fed to the chicken, the skin will often have a little of the corn protein left on the skin due to the defeathering process where whatever hasn't been fully cleaned from the bowels releases (there is usually at least a little left). Although this also applies to gluten, too.

And if corn syrup made you sick? Maybe that's it?

If you want to try and avoid corn, I'd recommend checking out a corn allergy website, like Open Original Shared Link

It is insanely hard to avoid, especially because it is used in many things where it doesn't have to be reported. Added to yeast to help make a better consistency as it's made into cakes, or sometimes cornstarch between paper plates to keep them from sticking - crazy stuff!

Hope you find out what's up with all of this soon!

If you want to come down to the super-sensitive celiacs section of the forum, while you may not be super- sensitive to gluten, we might be able to help you track some stuff down. A lot of us there have had to learn about many weird places that processing and farming can add allergens into our food that we'd never even think about. :-)

TummyTrubble Newbie

Could it be corn?

Corn is in iodized salt to stabilize the iodine.

Corn is also used in the processing of white rice, I believe. Either during processing or polishing - I can't recall exactly, only that those who are sensitive to corn often have trouble with white rice.

If corn is fed to the chicken, the skin will often have a little of the corn protein left on the skin due to the defeathering process where whatever hasn't been fully cleaned from the bowels releases (there is usually at least a little left). Although this also applies to gluten, too.

And if corn syrup made you sick? Maybe that's it?

If you want to try and avoid corn, I'd recommend checking out a corn allergy website, like Open Original Shared Link

It is insanely hard to avoid, especially because it is used in many things where it doesn't have to be reported. Added to yeast to help make a better consistency as it's made into cakes, or sometimes cornstarch between paper plates to keep them from sticking - crazy stuff!

Hope you find out what's up with all of this soon!

If you want to come down to the super-sensitive celiacs section of the forum, while you may not be super- sensitive to gluten, we might be able to help you track some stuff down. A lot of us there have had to learn about many weird places that processing and farming can add allergens into our food that we'd never even think about. :-)

Thank you so much! What a lot of great information.

We used non-iodized salt in our house because my husband has thyroid disease and meniere's (sp?) disease.

I definitely have an issue with corn syrup...maybe all corn. My gastro. told me to avoid all corn products when he diagnosed me with fructose malabsorption. I will have to do some research about how it's used in the production of rice - thanks for that! And I didn't even think of chicken being fed corn...yikes.

The good news is after ditching my vitamin I have found some relief....here's to hoping it gets better still!

And I will look for the super-sensitive section. Thank you very much!! :)

Marz Enthusiast

The good news is after ditching my vitamin I have found some relief....here's to hoping it gets better still!

And I will look for the super-sensitive section. Thank you very much!! :)

Hoo boy, definitely suspect your vitamins, or any digestive enzymes you might be taking. Any supplement might be suspicious. I assume you've already checked medication (especially anything you take daily) and even anything you touch - body lotions/soap/shampoo - you won't eat it obviously, but small amounts can ride from hands to fruit that you're eating, or lips. Does your family still eat gluten - inside or outside of the house, do you kiss them without getting them to brush first?

Hope you find the culprit! Rice can be replaced with potato or sweet potato for your starch requirements, there's all the pseudo grains like amaranth, quinoa, millet. Quinoa - make sure you rinse this very well before cooking, it has a natural chemical on the outside of the seed which can cause stomach upset. I can't eat it unfortunately, seems to upset my stomach regardless of how well it's rinsed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TummyTrubble Newbie

Hoo boy, definitely suspect your vitamins, or any digestive enzymes you might be taking. Any supplement might be suspicious. I assume you've already checked medication (especially anything you take daily) and even anything you touch - body lotions/soap/shampoo - you won't eat it obviously, but small amounts can ride from hands to fruit that you're eating, or lips. Does your family still eat gluten - inside or outside of the house, do you kiss them without getting them to brush first?

Hope you find the culprit! Rice can be replaced with potato or sweet potato for your starch requirements, there's all the pseudo grains like amaranth, quinoa, millet. Quinoa - make sure you rinse this very well before cooking, it has a natural chemical on the outside of the seed which can cause stomach upset. I can't eat it unfortunately, seems to upset my stomach regardless of how well it's rinsed.

Yeah, I think at this point I can safely say that the multi-vitamin I was taking was not helping. I found out that it has inositol in it, which I think I have issues with. I was mildly suspicious of my probiotic because it has caramel color in it, so I switched to one with far fewer inactive ingredients. I think this one is doing better for me.

What do I look for in soap, shampoo, etc as far as gluten is concerned? Do they actually list gluten as an ingredient or do they call it something else? Seems like companies are really good at hiding things in their ingredients lists.

My husband is still a gluten eater and no, I don't make him brush his teeth before he kisses me! Maybe I should.

I did buy some Quinoa, but I haven't quite gotten to the point of introducing it. I will be sure to rinse it well - thank you for the heads up on that!

mushroom Proficient

What do I look for in soap, shampoo, etc as far as gluten is concerned? Do they actually list gluten as an ingredient or do they call it something else? Seems like companies are really good at hiding things in their ingredients lists.

Look for things like hydrolyzed wheat protein, etc. Usually the name will have wheat, soy, corn in it (if these are things you are avoiding) Be wary of hydrolyzed vegetable protein.

My husband is still a gluten eater and no, I don't make him brush his teeth before he kisses me! Maybe I should.

This is an absolute guarantee of cross-contamination.

I did buy some Quinoa, but I haven't quite gotten to the point of introducing it. I will be sure to rinse it well - thank you for the heads up on that!

I would personally hold off on the quinoa until you have stopped reacting to things. Many of us have problems with quinoa too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.