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Test Results


leighannh2

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leighannh2 Rookie

I'm looking at the results and I don't see all the recommended tests. There is a whole list of things but what I think pertains to celiac are as follows:

I'm typing exactly what my paper says.

IgA (latest ref rng 68-378) 188

Tissue Transglut Ab (latest ref rng 0-19) 13

I started feeling bad again yesterday after several days of relief, thinking of trying to cut gluten regardless of these results.


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ravenwoodglass Mentor

There are a few other tests that they should have run, maybe they aren't back yet. If you plan on any other testing for celiac, more blood tests or the biopsy then don't go gluten free yet. If you are done with testing a strict trial of the diet is always in order no matter what the test results are because of the high rate of false negatives.

leighannh2 Rookie

These are all the test that were run. I'm not going to push the issue, at least for now.

Four days ago I started doing my best with my limited experience to avoid gluten. Since then I've had only one short bout of cramps daily, and normal BM's the last two days! I'm amazed, but I realize it's way to early to know for sure if it is gluten or something else. But, not thinking, I ordered fries in a restaurant, likely fried in oil with breaded items, and started cramping immediately after, with a wave of exhaustion. But, luckily, was able to shake it off pretty quickly.

So, looking at my test results (earlier in this thread) do you think it shows gluten sensitivity?

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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