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Healing Process


Debijean

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Debijean Newbie

I started a gluten free diet 9 months ago. Many of my symptoms (joint and muscle pain, headaches) stopped. 2 months ago I was diagnosed with celiac disease, so I cut all all small traces of gluten I was missing before, like medications. I feel I am doing a good job at watching everything I eat so that I am not getting gluten accidentally.

So with that said, I have been healing for a good 2 months but I have been getting a lot of stomach aches and pains. Does anyone else get this? I am wondering if it isn't due to the healing that is happening. Some symptoms I never got rid of are the fatigue and ataxia. Those haven't changed since I went gluten free, but the stomach pain I never had before. The stomach pain is rather regular, pretty much every day. I did get glutened accidentally once and that was a far worse pain, this is just a constant dull ache type of pain.

I would like to know if anyone else seems to get this pain.

Thanks!


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eatmeat4good Enthusiast

A few months after I went gluten free I started getting really dramatic stomach rumbling that was constant every day for a few weeks. I didn't have any other symptoms of glutening so I just stayed the course with the gluten free diet and I imagined it was my "Baby Villi" growing back. I don't know if it was or not...but eventually it went away as I healed.

frieze Community Regular

the neuro issues take the longest to heal, that said, sometimes they don't completely go away. The best that can be done is to stop progression. However, be for you give up on that, i would try CoQ10 supplimentation. Good luck

SarahJimMarcy Apprentice

Could it be lactose intolerance?

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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