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Healing Process

Debijean

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Debijean Newbie
Debijean
Posted

I started a gluten free diet 9 months ago. Many of my symptoms (joint and muscle pain, headaches) stopped. 2 months ago I was diagnosed with celiac disease, so I cut all all small traces of gluten I was missing before, like medications. I feel I am doing a good job at watching everything I eat so that I am not getting gluten accidentally.

So with that said, I have been healing for a good 2 months but I have been getting a lot of stomach aches and pains. Does anyone else get this? I am wondering if it isn't due to the healing that is happening. Some symptoms I never got rid of are the fatigue and ataxia. Those haven't changed since I went gluten free, but the stomach pain I never had before. The stomach pain is rather regular, pretty much every day. I did get glutened accidentally once and that was a far worse pain, this is just a constant dull ache type of pain.

I would like to know if anyone else seems to get this pain.

Thanks!

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eatmeat4good Enthusiast
eatmeat4good
Posted

A few months after I went gluten free I started getting really dramatic stomach rumbling that was constant every day for a few weeks. I didn't have any other symptoms of glutening so I just stayed the course with the gluten free diet and I imagined it was my "Baby Villi" growing back. I don't know if it was or not...but eventually it went away as I healed.

frieze Community Regular
frieze
Posted

the neuro issues take the longest to heal, that said, sometimes they don't completely go away. The best that can be done is to stop progression. However, be for you give up on that, i would try CoQ10 supplimentation. Good luck

SarahJimMarcy Apprentice
SarahJimMarcy
Posted

Could it be lactose intolerance?

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    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      @Heatherisle, You have good reason to worry.   Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency.  Thiamine deficiency is frequently found in B12 deficiency.  Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease.  Thiamine can run out in as little as three days.   Thiamine deficiency symptoms can be mistaken for other diseases such as MS and Guillian-Barre Syndrome.  Thiamine deficiency symptoms include pain in legs and abdominal pain as well as depression and gastrointestinal symptoms. Thiamine B1, Pyridoxine B6 and Cobalamine B 12 together relieve nerve pain. References and Interesting Reading: Wernicke’s encephalopathy mimicking multiple sclerosis in a young female patient post-bariatric gastric sleeve surgery https://pmc.ncbi.nlm.nih.gov/articles/PMC8462913/ Thiamine Deficiency Masquerading As Guillain-Barré Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11872742/ Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke’s Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC6429982/ Is there a Link between Vitamin B and Multiple Sclerosis? https://pubmed.ncbi.nlm.nih.gov/28875857/ Thiamine Deficiency and Neurological Symptoms in Patients with Hematological Cancer Receiving Chemotherapy: A Retrospective Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC8559079/ The Effects of Vitamin B in Depression https://pubmed.ncbi.nlm.nih.gov/27655070/ Thiamine Deficiency Neuropathy in a Patient with Malnutrition due to Melancholic Depression https://pmc.ncbi.nlm.nih.gov/articles/PMC10942818/ Myopathy in thiamine deficiency: analysis of a case https://pubmed.ncbi.nlm.nih.gov/16920153/ Neurologic complications of thiamine (B1) deficiency following bariatric surgery in adolescents https://pubmed.ncbi.nlm.nih.gov/38705013/ B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/ Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6459027/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Update on Safety Profiles of Vitamins B1, B6, and B12: A Narrative Review https://pmc.ncbi.nlm.nih.gov/articles/PMC7764703/  
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi  There’s been no mention of her adrenal glands as far as I know
    • Theresa2407
      Pain in the right side of abdomen

      By Theresa2407 · Posted

      Have they checked her Adrenal glands.    
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Just an update on my daughter. She is still in hospital and getting quite depressed about everything. She had a CT scan of head and chest to rule out stroke in view of her symptoms. Thankfully there is no evidence of that so they now want to do an MRI to rule out MS so this is freaking her out and it’s not doing me much good either!!!They’re also going to do further blood tests to check vitamin levels. My husband and I are trying to reassure her the best we can that hopefully it’s just her body’s reaction to having the Vitamin B medication and it’s affecting her nervous system etc. Think the tingling has subsided but still having some lower back and pelvic pain and some leg pain. Thanks for reading and my apologies if I sound paranoid.
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      celiac disease and braces

      By Aretaeus Cappadocia · Posted

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