Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Word Of Caution At Pf Changs


CaraLouise

Recommended Posts

CaraLouise Explorer

Hello friends! I recently dined out at the PF Changs in Allen, TX. I ordered the Buddha's Feast and I ate most of it before I found out I was served one not gluten free! I have been served a stir-fried one before and I knew that was not gluten free, however this one had tofu. Now I have been served one with tofu, but last night I did not eat any since I particularly don't like it. The manager noticed that I had pushed it to the side and rushed over to apologize to say that it should never have tofu. None of the items at PF Changs with tofu should be gluten free. I was shocked!!!! I was thinking well at least I didn't eat it, but look at all the cross-contamination. The manager did pay for my parties meal and give free dessert (which I partook of), I mean if I am going to be sick I might as well have chocolate beforehand. Needless to say I have not been feeling good for two days, from something I had eaten. Anyway, I just wanted to give everyone a head's up because this was something that I was completely unaware of!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kledford Rookie

I don't understand why PF Changs has to use tofu with gluten/wheat in it...if they try so hard to offer gluten-free items why not switch over toGF soy sauce and gluten-free tofu and not worry about having to stock 2 items or worry if someone gets it by accident....it would also allow more items for people that already have a limited selection....just my opinion!

wheeleezdryver Community Regular

I don't understand why PF Changs has to use tofu with gluten/wheat in it...if they try so hard to offer gluten-free items why not switch over toGF soy sauce and gluten-free tofu and not worry about having to stock 2 items or worry if someone gets it by accident....it would also allow more items for people that already have a limited selection....just my opinion!

Totally agree with you on that!!

I've only been to PF Chang's once (mainly b/c it's on the other side of the city & when I'm there, I don't usually have time to stop at a restraunt, even if it's to pick up take out (for the particular area our PF Chang's is in, being as it's downtown, it would mean parking my car elsewhere & walking)... and that time, we were ordering it to go/ take out, my husband and I ordered ALL our stuff off the gluten- free menu, and when they brought it out, told me there was soy sauce... luckily I had the presence of mind to ask if it was the gluten- free soy sauce (I mean, gee whiz, everything we ordered was gluten- free-- and labelled thus!), he wasn't sure, but didn't think it was, so went back and got me some that was from their gluten- free stash!

So, yeah, I totally agree... I don't see why both their tofu and their soy sauce couldn't be totally gluten free...

psawyer Proficient

We don't have PF Changs here, but I will offer a comment that may be relevant. There have been some reports here of sushi bars that made gluten-free soy sauce their only soy sauce. Apparently ordinary customers didn't like it as well as the wheat-loaded version.

TB4me2000 Newbie

The gluten-free soy sauce I've had isn't nearly as good as I remember "normal" soy sauce being. If I didn't have to go gluten-free, I don't think I'd be happy with it.

Also, not sure what PF Changs does to their tofu to make it not gluten-free, but none of their gluten-free dishes contain tofu (that I noticed on the menu, anyway), so if you see tofu on your gluten-free plate, there's probably something wrong.

brendygirl Community Regular

I've had exceptionally wonderful gluten free dining at P.F. Chang's for years, all over the U.S., from Hawaii to Florida, Louisiana to D.C. since 2005!

What makes me feel so at ease is that they bring it on a special plate, signifying to the staff that it is gluten-free. From what I recall the plate is round with writiing around the edge of it. I am highly sensitive to the slightest cc and have never been sick from their food.

In fact, I've had so much luck there, that I recommend to other restaurants (especially after one manager ran to my table and grabbed my spaghetti away before I could eat it) that they use a visibly different plate to draw attention to specially prepared, non-allergen meals.

kareng Grand Master

I have been going to Pei Wei. They are the faster food version of PF Changs. They only have a few gluten-free items but they are good. They bring them out to your table special. No one who works there or PF Changs acts like they don't know what you are talking about. My hub likes to go. I can get a glass of wine, he gets a beer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

We don't have PF Changs here, but I will offer a comment that may be relevant. There have been some reports here of sushi bars that made gluten-free soy sauce their only soy sauce. Apparently ordinary customers didn't like it as well as the wheat-loaded version.

I never liked La Choy as well as other soy sauces. If that's what the sushi bar switched to I can see the issue. I do like San J tamari as well as others.

Sorry to hear about P.F. Chang's and thanks for the warning.

lovegrov Collaborator

Peter is right. A local Japanese restaurant went to all gluten-free soy sauce once without telling folks, and the owner immediately started getting complaints that their food didn't taste the same and wasn't as good. This was from regular customers who has no idea the soy sauce had been changed. The owner and the chef both think San J gluten-free tamari is a good, quality product, but it still isn't the same.

richard

CaraLouise Explorer

I know, the problem is when they bring it out on the special plate and it is still wrong! Still I love both PF Changs and Pei Wei, although I wish PF Changs had spring rolls and Pei Wei chicken lettuce wraps. What an interesting conversation about the soy sauces too!

I've had exceptionally wonderful gluten free dining at P.F. Chang's for years, all over the U.S., from Hawaii to Florida, Louisiana to D.C. since 2005!

What makes me feel so at ease is that they bring it on a special plate, signifying to the staff that it is gluten-free. From what I recall the plate is round with writiing around the edge of it. I am highly sensitive to the slightest cc and have never been sick from their food.

In fact, I've had so much luck there, that I recommend to other restaurants (especially after one manager ran to my table and grabbed my spaghetti away before I could eat it) that they use a visibly different plate to draw attention to specially prepared, non-allergen meals.

Ev7777 Apprentice

Thank you for the inf. I'll have to be especially vigilant since I take my nephew there a lot. If they were to mess up his order, I'd never notice since he would probably not say a word and just eat it (he's 8 years old). Then the poor thing would have to suffer the consequences later. Luckily I know exactly what his favorite dessert looks like, (gluten-free FLOURLESS CHOCOLATE DOME) because he orders it every single time we go!

Takala Enthusiast

I like the San- J wheat free tamari much better than regular soy sauce.

But now I don't like soy sauce on sushi at all. I guess I'm evolving.

American food manufacturing seems to be de - evolving. Why would anyone put wheat into tofu, anyway ? Are they having some sort of contest to see the most absurd place they can hide gluten where it wouldn't be expected ? Do they get assigned several tons a year to infiltrate into normal food ?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Son's legs shaking

    2. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    3. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.