Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do I Know If I've Been Glutened And What Is Causing It?


Newbee

Recommended Posts

Newbee Contributor

I've been on the gluten free a week and I'm wondering if I'm doing it right or if maybe I'm eating things that have been cross contaminated. Should I be able to see changes in how much I poo yet? I'm still going about 3 times a day like I did before. And if I am getting cross contaminated how can I tell what is doing it? Like if I have to go to the bathroom right after I finish eating should I be suspicious of what I just ate? And what if it isn't right after a meal? What should I be looking for then? I read food labels. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Coinkey Apprentice

After a week you probably won't be able to tell the difference. On top of reading labels, you need to ensure that you aren't cooking your food on contaminated crockery, there are also many processed foods that don't have any suspicious ingredients but are notorious for cross contamination because of being made on the same lines as other foods. Stick with whole foods for a month, then reintroduce processed foods so that you are able to tell what it is that is causing the problems.

Newbee Contributor

Thank you for your response. How long should it take before I should notice a difference? I probably should mention it looks like I've had this a long time (37 years) and my doctor mentioned it would take longer for me to heal because of it. He didn't say how long before I should notice a difference.

PadmeMaster Apprentice

a tip: I lived off potatoes, Hormel Chili (It's the with beans that's gluten-free, and it says it on the can) and M&Ms for the first month and a half. After that, I added in Hamburgers (from Hardees. We lived in a hotel so I was limited). I don't personally advise fast food, but potatoes and chili, maybe smoothies (Just fruit, the milk of your choice, and the green of your choice. My fav way is Kale, frozen Mixed fruit, and Vanilla soy, but some have issues with Soy, so you might try Coconut or Almond) would be good and they are all whole foods that are healthy. (Well, the Chili is less so.).

I've also read along here that cookware can be contaminated, but that the dishwasher cycles are great help to prevent that. So you might do that or just buy some plastic ware and not cook until you can afford a new set of dishes. Or a dishwasher ;)

If you aren't feeling better, some things I was told when I was a (more of a) newbie is to watch out for shampoo, makeup, body wash, etc. I've not actually found a shampoo with gluten other than high dollar ones (or oatmeal ones), but I have found that the head and shoulders is clearing up my dandruff that I've had for years. (It didn't work when I wasn't gluten free. I only tried again because Treseme and Aussie shampoos don't get along with my hair).

If you're disliking the gluten free breads etc, just remember, you'll get used to the taste! I accidentally ate a graham cracker (stupidity, as everyone knows that smores, even in snack form, have graham crackers) and it was nasty to me. But I've liked every gluten free food I've eaten except Annie's bunny crackers (and Udi's bread, but I think that's because I refrigerate instead of leaving frozen OR unfrozen.).

Eating pure will be the easiest. I've glutened myself in the last week and have no clue what from (probably CC even though I'm the one cooking dinner) because I'm not eating pure. Just be careful. If you can avoid CC, do it! :)

T.H. Community Regular

I was diagnosed at 38, and I noticed a change within days. Some here don't seem to have any change for weeks, however.

But if you are having the runs right after you eat, I think that might possibly indicate that you're getting something that's making your body unhappy. It could be gluten or could be lactose (many of us are lactose intolerant when we're still healing, because the damaged villi don't make lactase as well. Or could be something else - a lot of us discover that we have food allergies we never knew about. Not the type that give us hives, but foods that make our stomachs hurt, give us the runs, give us headaches, etc....

Keeping the foods simple and keeping a food journal of foods you eat, and how you react, and the timing for each, may help you figure out what is getting you, if anything is. And if nothing is and it's just healing, then the journal would show a slow progression of symptoms getting better, yes? :-)

It might help to get a new pot or pan and a new cutting board, and just use them for a week, see if it helps.

Oh, do you have any children or a significant others? If you do, if you kiss their lips, tummies, and so on - those need to be gluten free, too. :D

domesticactivist Collaborator

I wrote a big post about being 100% gluten free that might help you find some of the potential sources of contamination. You can find it from the blog linked on my profile.

AVR1962 Collaborator

When I first started I cut out pasta and bread but wasn't looking at all the ingedients listed on packaging. I did continue to have black stools. What I noticed though was the gas and all the racket it my stomach left. I did this for about 6 weeks, then tried a plate of pasta and saw the difference and knew I was gluten intolerant. Tightened my diet, started looking at all ingredients, keeping my diet simple so I could tell what was and was not affecting me. Doc then wanted me to also stay away from dairy to see if that may be giving me issues. I ate alot of salads, veggies, fruit and meat. Then I got dosed.....not from wheat, only thing it could have been was highfructose and it made me as sick as from eating any gluten product. After about 6 weeks off dairy I went back on, had a slight intolerance but am taking daily aide that works. I have since been trying recipes replacing wheat flour with gluten free flour, mixes, ect and I am doing real well. It took me about 4 months to get my system corrected where I no longer had bowel issues.

There are people who are alot more senstive than myself that cannot eat products with corn or rice. Oats, or any other kind of grain should be labeled gluten free, otherwise don't buy them.

You are having absolutely no symptoms from a dose of gluten? There's some issues I was having that at first I was not connecting to the glutens, perhaps something will ring a bell for you: blurred vision, foggy/forgetful memory, problems with depth perception, balance issues, turmoil in stomach, gas, bloating, bowel issues, tired, muscle spams and twitches.

The twitches were due to a lack of potassium my body was absorbing so I started eating lots of potassium rich foods. Started taking vit B12 for the memory, added Lysine to my diet which is a digestive aide, started taking a probiotic and with a clean diet my health slowly improved. Now if I get dosed I have a bit of a headache, stomach issues, tired, balance issues and memory problems. It's the hidden stuff you have to look for like marinades, BBQ sauce.

I hope that helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fairy Dancer Contributor

I noticed a change in bowel symptoms after around 5 or so days. The improvement was gradual. The fatigue however continued on for a little bit longer but is gradually improving.

Newbee Contributor

Thanks for everyone's responses! Sounds like it really varies as far as when people start feeling better. I'll try and eat more natural and be patient and hopefully it will all start getting better soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,174
    • Most Online (within 30 mins)
      7,748

    yfuvhg
    Newest Member
    yfuvhg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...