Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"it'll Be Ok She Will Outgrow It If You Give It To Her Each Day"


come dance with me

Recommended Posts

come dance with me Enthusiast

I took my daughter to work with me yesterday for the afternoon because my mum was in town so she gave her the day off school and I told work I can work longer if my mum could bring her out to me which made their day too.

Anyway I told them that she isn't to play with the playdough because it's made with wheat flour and with her autism she put things in her mouth like a toddler would. I explained to them that she has Coeliac disease and was basically told I'm making her worse by keeping her away from it and that she'll outgrow it if I let her have gluten each day without restricting her like I am now.

What made it worse is that they then agreed to not let her play with the playdough but then they let her and not only that but they watched as she ate some of it. I went to that side to find a water bottle belonging to one of the children in my group and saw her eating it with them at the table! I told them off for it and the response again was "It'll be ok she will outgrow it if you give it to her each day" she then went on about how her daughter was born with it but outgrew it by the time she was in primary school (5) because she made sure she gave it to her daughter every day.

I think she thinks it's something else because you cannot diagnose it in a BABY and they do NOT outgrow it!!!

I have a very sick little girl with me now :( It wasn't worth the extra bit of time. I should have got my mum to drop her to the daycare mum then worked until 5 like normal but no I took the oportunity to work more by having her with me. All for the sake of an extra 1 hour of work!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jungle Rookie

Would this not be a case of abuse, or assault?

Intentionally causing harm. You explained she couldn't have these things because it would hurt her and they then intentionally (although they agreed otherwise!) gave it to her. And now she is hurt!

I am so mad for you!! The mommma bear in me wants to go tear a strip off them and make them understand exactly what they have done. If they had said they weren't able to follow your instructions you wouldn't have left her there. Why do they think they know more than you about YOUR child?

love2travel Mentor

Talk about disturbing and incredibly frustrating. I really feel for you and empathize with your plight. I hope your precious little girl gets well very soon. Not sure what to do about that mortifying situation, though. :angry: I can only try to imagine how sickened you must feel. :(

come dance with me Enthusiast

They wonder why I don't like them on that side. No more will I offer to take her so I can work later for them. My poor boss was the one I took it out on the most but it wasn't her fault either.

Dave-KC Newbie

It's got to be tricky when dealing with family and any type of sickness or allergy. I'm glad that my mother-in-law is really good at not assuming that she knows the answers from when she raised my wife. That's a big, big help, except she almost goes the other way.

Having to deal with family though is reality, and as much as I'm sure all of us wish it would just go away, it doesn't. I wonder if there are good resources for extended family members about celiac? Some type of helpful pamphlet might be good (or if web savvy, send them to celiac.com).

Jestgar Rising Star

How much of a fuss do you want to raise? Write a letter stating that you informed these people that your child has Celiac disease, and specifically stated that she must be kept away from playdough. A short while later you discovered that not only had they given it to her to play with, but they were deliberately allowing her to eat it.

State that you will keep your child away from them to the best of your ability, but if you ever see them deliberately harming your, or any other child again, you'll file criminal charges. Ask to have a copy (signed by the offender(s) put into each of their employee records.

You will have done nothing directly to anyone, but you will have made the seriousness of their actions very clear.

come dance with me Enthusiast

Lucky for me they are not family nor will she have to be there anymore. It wasn't a normal occurance only that my mum was able to have her for that time then take her to my work before she went home so I was then able to work later to make it easier on my workplace. Normally she's with someone else in the afternoons not at my work. I will probably take it to the state level.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



melikamaui Explorer

I agree with the others who say this needs to be reported. You should also inundate them with material on celiac disease and insist they read it. How dare they do what they did to your poor child! Would they give a child with a peanut allergy just a little bit to get her over it? Why would they assume that they know better than you? That is maddening! They need to be reported. They're going to kill someone with attitudes like that.

come dance with me Enthusiast

I agree with the others who say this needs to be reported. You should also inundate them with material on celiac disease and insist they read it. How dare they do what they did to your poor child! Would they give a child with a peanut allergy just a little bit to get her over it? Why would they assume that they know better than you? That is maddening! They need to be reported. They're going to kill someone with attitudes like that.

That's a concern I have over it but then the entire centre is a nut-free centre even for staff.

Jungle Rookie

They could choose to do the same thing with dairy, or eggs. No child is safe with the attitudes they had shown.

I love your quote!

mommyto2kids Collaborator

Yesterday I read lots of things from an interesting site. Plug into your search engine "Dr. Alessio Fasano Articles and Publications". Then click on Youth Connection on the L. Then book mark this site. It will help you. The Celiac Spruce Foundation has a good letter for teachers also. I can relate to your story but on a smaller level. My son had a medical note turned in for behavior and food colorings form and signed by his Dr. His teacher tossed it aside. Said she did not believe in behavioral food allergies and fed him the food coloring treat 3/4ths the time. I could always tell on a day when she had. I'd say to my son, "They fed you red or blue cup cakes today didn't they?" He learned to beleive that his behavior is affected by what he eats when he could see that I could tell by how he was acting. I feel that the only kids to get real consideration are the ones with analphalactic issues. But what about the others?!

Brenna'sMom Newbie

This makes me very angry. How dare they go against your wishes in regard to a medical condition?! This should definitely be reported. Their job is to care for the child, not make medical decisions that go against every single piece of evidence related to her condition. That could cost the facility its license.

I'm sorry this happened to your sweet girl. I hope she's feeling better quickly.

PadmeMaster Apprentice

This makes me very angry. How dare they go against your wishes in regard to a medical condition?! This should definitely be reported. Their job is to care for the child, not make medical decisions that go against every single piece of evidence related to her condition. That could cost the facility its license.

In my opinion, that's needs more than just reporting. Does your job have a newsletter or something? Talk to the editor! Let everyone at your job find out how much they hurt your little girl! Personally, I'd be outraged too! That is like the daycare that BigBro (18m) is in saying "No, he'll outgrow his need for food. We aren't feeding him". Gluten Free is just as important to your little girl as eating is to any other child!

Also, no one suggested this, but if your daughter likes playdoh, you might try the Moondoh and Moonsand (when she's older, on that one). They are specifically labeled Gluten Free ;)

Edit: change some words :ph34r:

come dance with me Enthusiast

Yeah she wants moonsand for her birthday coming up and she'll be 8 then. I make it with the safe flour anyway.

domesticactivist Collaborator

With attitudes and practices like these, these people are going to kill a child someday. At the very least, this must be reported to the local agency regulating day cares.

frieze Community Regular

this is battery and willful child abuse, these workers should lose their ability'license to work in that venue, immediately.

come dance with me Enthusiast

Unfortunately it's not that easy.

domesticactivist Collaborator

What is the challenge? Why can't you report them?

come dance with me Enthusiast

I can report them. I can't explain more about it. I don't know how it works where you are but you can't report them then have them removed from their position. My word against theirs and all that.

domesticactivist Collaborator

I'd think whether they lose their job would be up to the manager, and whether the facility loses a license is up to the government. One report probably wouldnt do it. But complaints are important because the next time someone complains there will be a history which will make it be taken more seriously.

frieze Community Regular

I can report them. I can't explain more about it. I don't know how it works where you are but you can't report them then have them removed from their position. My word against theirs and all that.

I'm...thnking..you're..in..UK...but..why..can't..you..go..to..police..and..file..a..complaint...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.