Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastrisis

kristen34

Recommended Posts

kristen34 Newbie
kristen34
Posted

So I was just randomly diagnosed with celiac a month ago and showed absolutely no GI symptoms. I had a lot of headaches and back pain but stomach issues. After being diagnosed and completely going gluten free I started to feel 10x worse and my stomach throbbed. I was just informed I have gastrisis..which doesn't completely make sense because the number one symptom is vomiting and i haven't thrown up since i was 5 years old. After taking medication for gastrisis I'm still feeling forse than I did before being diagnosed with anything. My doctor has been no help at all. I've also been gaining weight. I lost weight when I was diagnosed and I've gained it almost all back but I'm not sure if I can stop gaining weight when I get back to my normal weight. HELP please

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

Welcome, Kristen!

Do you mean gastritis? I had gastritis (inflammation), which showed up when my GI doctor did the endoscopy/biopsy. It was news to me as I never had vomiting or any pain from it. What kind of meds did your doctor prescribe?

ravenwoodglass Mentor
ravenwoodglass
Posted

Some of us become much more sensitive to gluten after we have removed it from our diet. Could you be getting cross contamination somewhere? Did you call the maker to be sure that the med you are taking is gluten free? If you had positive blood work it might be a good idea to have the panels run again to see if your numbers are going down.

kristen34 Newbie
kristen34
Posted
  • Author

Oops I meant gastritis. I'm on omeprazole. I'm very careful with not having contaminated foods..I think.

kristen34 Newbie
kristen34
Posted
  • Author

Also I had crazy blood work numbers the first time. I was very strong positive for every celiac test

sa1937 Community Regular
sa1937
Posted

Oops I meant gastritis. I'm on omeprazole. I'm very careful with not having contaminated foods..I think.

I figured that's what you meant. I think I've read of people here who have been on omerprazole or other acid reducing meds and had too low stomach acid. Hopefully someone else will chime in who has had that problem.

lynnelise Apprentice
lynnelise
Posted

I suffer from gastritis and I pretty much never vomit either. However when I'm having a flare-up my stomach burns and hurts. I also feel a lot of pressure in my ribs. They gave me Carafate which is an ulcer medicine that protects your stomach from acid and allows it to heal. It worked wonderfully!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


burdee Enthusiast
burdee
Posted

So I was just randomly diagnosed with celiac a month ago and showed absolutely no GI symptoms. I had a lot of headaches and back pain but stomach issues. After being diagnosed and completely going gluten free I started to feel 10x worse and my stomach throbbed. I was just informed I have gastrisis..which doesn't completely make sense because the number one symptom is vomiting and i haven't thrown up since i was 5 years old. After taking medication for gastrisis I'm still feeling forse than I did before being diagnosed with anything. My doctor has been no help at all. I've also been gaining weight. I lost weight when I was diagnosed and I've gained it almost all back but I'm not sure if I can stop gaining weight when I get back to my normal weight. HELP please

Gastritis is not caused by excess stomach acid. So acid blocking drugs will not 'cure' gastritis. Stomach pain can be caused by an infection from the H. Pylori bacteria, which can cause ulcers. Unless you have ulcers, your stomach can tolerate high amounts of stomach acid. However, unless your doc tested you for H. Pylori and your test was positive, you probably don't have ulcers. Nevertheless, gluten intolerance and other delayed reaction allergies can cause stomach issues, because allergic reactions in the intestine prevent proper digestion of food. You can feel overly full with very little food and even get stomach aches. Moreover, insufficient stomach acid, rather than excess stomach acid, can also cause stomach pain.

Before I was diagnosed with celiac disease, I often refluxed food and even threw up easily. However, I never refluxed acid. Nevertheless, a doctor diagnosed gastritis and put me on acid blocking drugs. Years later, I was diagnosed with celiac disease, abstained from gluten and still got stomach pain. A stool test diagnosed H. Pylori bacteria. However a Heidelberg capsule test showed that I had impaired stomach acid production (too little acid). So I was given mastic gum and L-glutamine to treat the H. Pylori and heal my stomach. Then I began taking supplemental Betaine Hydrochloride to increase my stomach acid. Now I rarely feel overly full after eating and almost never reflux (unless I eat foods which relax the lower esophageal valve, like peppermint, caffeine or chocolate). If I eat a large meal and don't take enough supplemental HCl, I can get stomach discomfort. However, as long as I get enough supplemental acid, I feel fine.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

      In addition to gastrointestinal symptoms like diarrhea, I had gastroesophageal reflux that was becoming intolerable despite treatment with PPIs and antacids. When I went gluten-free, the GERD lessened tremendously (as did the other symptoms).
    2. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    3. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    4. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748
    ebrown
    Newest Member
    ebrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.