Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Thyroid


bbdailey

Recommended Posts

bbdailey Explorer

Hey everyone im new here...Im 23 and was recently diagnosed with hashimotos disease. I immediately went on a gluten free diet and felt better after a couple of weeks but seemed to kind of platuea in my recovery. My thyroid problem is in the very early stages so Im thinking that the problem may lie somewhere else. Im starting to think that I do have celiac disease and that it will just take time to heal. My question is....does anybody else have hashimotos disease along with celiac disease? Also do you just cut out gluten or dairy/soy/etc?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

oh boy... yes i have celiac, hashimoto's, and graves'. its very common to have thyroid disorders & celiac simultaneously.. very common... or even other autoimmune disorders.. sometimes the same genes are involved with a predisposition.

so why do u think your Hashimoto's is only in the early stages?? i too thought that maybe mine had only been about 6 yrs old... but now i think ive had it for over 20 years.... share your thoughts, i am interested... and learning more and more everyday about the scope of thyroid disease. for example, i just learned that Hashimoto's often leaves patients with Low stomach acid, and of course slow motility ... this totally leads to all kinds of digestive problems and malabsorption. so now when i feel like i cant digest things- im like- "um, did i eat to may food intolerances??? did i get glutened? or am i going slightly hypo again??"

the symptoms can overlap for sure.

so, yes i completely avoid gluten. 2nd i do my best to avoid Soy & Corn. and 3rd i am a dairy addict- but i know i have GOT to get off it- as sometimes it makes me feel like ive been glutened. like a Casein induced enteropathy. :(((

okay brainfog.... dont hesitate to ask more questions.. i feel like ive learned a lot lately... tho i still have questions too...

AVR1962 Collaborator

Hey everyone im new here...Im 23 and was recently diagnosed with hashimotos disease. I immediately went on a gluten free diet and felt better after a couple of weeks but seemed to kind of platuea in my recovery. My thyroid problem is in the very early stages so Im thinking that the problem may lie somewhere else. Im starting to think that I do have celiac disease and that it will just take time to heal. My question is....does anybody else have hashimotos disease along with celiac disease? Also do you just cut out gluten or dairy/soy/etc?

I have a growth on my thyroid which I am currently on meds to try and shrink. I am on a gluten-free, high fructose-free diet and I take a digestive defense aide for a slight dairy intolerance.

bbdailey Explorer

The reason I think my hashimotos is in the early stages is because of all the blood tests. Last november until this april I had 3 tsh tests two of which were at 1.9 and the other at 5.5. The most recent tsh test was a 3.2 so that doesnt seem too crazy. My TPO antibodies were 203 in April and 252 in July. This is the one thing that confused me(made me think it may not be celiac and maybe just a gluten intolerance) because the antibodies went up and I had been gluten free since I discovered that I had Hashimotos in late april. Is that common? It has been around 3 months off gluten and although I do feel a lot better than before I still have lots going on with my digestive tract( stomach is in knots all the time,constipation,etc) among other lingering symptoms. Does this sound like the typical healing process for celiac or does anybody have suggestions for what else may be causing my stomach problems?

CassP: you mentioned low stomach acid with hashimotos...what are the symptoms with that and how do you go about fixing that?

cahill Collaborator

I have Hashimoto's in addition to Celiac's. I saw my endocrinologist yesterday and she thinks my Hashimotos has just about destroyed my thyroid. :( So it looks like I am almost totally reliant on the synthyroid ( or some other such drug) from here on out.

In addition to being gluten free,I would encourage you to also eliminate soy from your diet.

cassP Contributor

The reason I think my hashimotos is in the early stages is because of all the blood tests. Last november until this april I had 3 tsh tests two of which were at 1.9 and the other at 5.5. The most recent tsh test was a 3.2 so that doesnt seem too crazy. My TPO antibodies were 203 in April and 252 in July. This is the one thing that confused me(made me think it may not be celiac and maybe just a gluten intolerance) because the antibodies went up and I had been gluten free since I discovered that I had Hashimotos in late april. Is that common? It has been around 3 months off gluten and although I do feel a lot better than before I still have lots going on with my digestive tract( stomach is in knots all the time,constipation,etc) among other lingering symptoms. Does this sound like the typical healing process for celiac or does anybody have suggestions for what else may be causing my stomach problems?

CassP: you mentioned low stomach acid with hashimotos...what are the symptoms with that and how do you go about fixing that?

interesting... ya, i think the tsh test is not a good indicator honestly... it CAN be one of the indicators for the doctors as they are working out the dose... but tsh is not always indicative of the stage of the disease or how u feel. my TSH was 4.6 in 2004 or 2006.. but i honestly think it may have started when i was 8 or 9. i had a nail condition since i was 8, and it completely disappeared after i got on thyroid medication. ive also been DEPRESSED most of my life.. and on a diet, etc... the disease can also go in and out of remission i think untill it decides to go full force- and then it's progressive from there on out.

your antibodies are certainly high enough to indicate that you've had this for some time... but dont freak out, mine are 512. going gluten free will definitely alleviate your thyroid condition- but it's not a miracle fix like it is for celiac- it will take some time to see a difference in those antibodies... the disease is progressive- so it is completely normal for you to have Celiac or Gluten Intolerance, but still have your Hashimoto's antibodies go up after 3 months on a gluten free diet. there are other environmental triggers that affect those abs besides gluten... soy, fluoride.. some say dairy, STRESS, a vitamin D deficiency, pregnancy.. etc...

u should definitely test your vitamin levels: B12, D, and a full Iron panel including Ferritin & saturation... and also check your adrenals..... in order to improve this disease and FEEL BETTER- you really have to come at all angles.

i also suggest you eat 2-3 brazil nuts every day- for the Selenium. studies show that after a year of taking Selenium- the TPO antibodies were significantly diminished. (u can overdose on selenium, and brazil nuts have a lot- hence- take only 2-3).

uh- signs of low stomach acid?? any indigestion really... when u feel like so many different foods give u a stomach ache.. or u feel you have to eat very small amounts in order to avoid a stomach ache... believe it or not- acid reflux can be a sign of low stomach acid, and also an H. Pylori infection- as they thrive in low acidity. vitamin deficiencies can be a sign of Low stomach acid. there are many ways to correct it- but it takes time- and u have to be careful too... i gotta go to bed- i'll try to remember to add more.... a real gentle way to help it is to take apple cider vinegar before meals... there's also Betaine HCI-> but it is pretty identical to stomach acid- so u really have to start out slow.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748

    tdouglas2901
    Newest Member
    tdouglas2901
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.