Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Caffeine?

MSOUPS

By MSOUPS
in Coping with Celiac Disease

Recommended Posts

MSOUPS Newbie
MSOUPS
Posted

I had issues for years before being diagnosed hypothyroid and going gluten free and most of my issues have disappeared since but now out of no where I am having bad reactions to caffeine and chocolate; anyone else? It causes my body to itch, I have a rash of fleshy pink bumps on my arms, my bones will feel as if they are breaking, extreme fatigue, mood swings, etc...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

i just get really bad indigestion :< not fun.

modiddly16 Enthusiast
modiddly16
Posted

My body can't handle coffee...but the only other issue I have with caffeine is that I can't get enough of it! I've heard of a lot of people on this board who struggle with excessive (sometimes even normal) amounts. Have you been able to pinpoint a certain product which causes a rash or is it just whenever you have any caffeine or chocolate?

alex11602 Collaborator
alex11602
Posted

No caffeine for me. It causes me alot of pain.

RacerX35 Rookie
RacerX35
Posted

I am a daily coffee drinker. I usually have about two cups in the morning and then I stop by Starbucks on my way home. It has never caused me any problems. Some of the baristas at the local Starbucks (plural) know me. ;)

Later,

Ray B)

Austin Guy Contributor
Austin Guy
Posted

When I have been glutened I think caffeine combined with gluten cause my heart to absolutely race. It is kind of scary.

Being back off gluten for at least 3 days I don't even want coffee. Before going gluten free I would drink 5 cups a day just to be able to function.

Roda Rising Star
Roda
Posted

I try to keep the caffeine to a minimum. I don't drink coffee at all and do not consume any soda with caffeine although I don't drink much of it anyway because the carbonation kills my stomach. I may have unsweetened iced tea or chocolate occasionally and that's it. If I consume too much I have breast pain (I have fibrocystic changes) and my heart rate will increase.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AMom2010 Explorer
AMom2010
Posted

I feel pretty awful if I drink caffiene, especially coffee. Thank God chocolate doesn't affect me negatively, lol!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748
    Bryan s
    Newest Member
    Bryan s
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.