Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Know Of A Forum For Food Allergys Linked With Behavior?


mommyto2kids

Recommended Posts

mommyto2kids Collaborator

I just don't know what to do for the school year. Do I try to allow it to be fed to him in moderation or just say he can't have it period? He gets mean and has no self control when he eats it. Grandma fed him a big slurpy that was red today and when they got home, I knew something was wrong by his behavior. If you know of a forum dealing with this that could hel me, please let me know. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



brigitam Newbie

This site has great info but I don't know if it is the same in America as it is here in Australia. I would assume it is. Good luck. Brigit

Open Original Shared Link

Mizzo Enthusiast

Have you ever had him tested? My friends daughter is allergic to Red dye and it started as behaviour issue's and turned quickly into anaphalactic allergy? I think the older the girl got the more she ingested and they became aware of the reaction more obviously.

mommyto2kids Collaborator

How do I get him tested for food dye? Two days ago he went into an itch session for hours with an itchy mouth driving him nuts with lots of crying. We didn't know what it was from. He was sweeping leaves right before. So we think it was some kind of allergy to plants. We are going to ask for an epipen to be on the safe side.

StephanieL Enthusiast

There aren't proteins in food dyes, so it isn't technically an "allergy" but an intolerance. Most traditional Dr's won't test for them but you may be able to find a Do or Chiro who would test for them.

Open Original Shared Link

Skylark Collaborator

You might check out the Feingold Diet website. They know a lot about kids and food chemical sensitivities. Open Original Shared Link

eatmeat4good Enthusiast

Fedupwithfoodadditives.com is an excellent site. You may find he is allergic or intolerant to other foods too...like salicylates...and that would then add in yellow food coloring, tartrazine, annatto, and the benzoates which are in almost all carbonated flavored pop and in some juices too.

My son and I have Celiac/Gluten Intolerance in addition to the Salicylates intolerance. Red and yellow food dyes are awful...He gets asthma...I get hives...both of us get bad moods.

Keep eliminating and exploring. You will figure it out.

NO...I would not let the teacher give him treats with red food coloring. He will be miserable and so will everyone around him. If it effects his moods, it will also effect his relationships with people...and that would not be worth saving the school teacher the inconvenience of giving it to him. Good luck, it is really hard to figure all this stuff out...but once you do then you know what to avoid and your life can be better and so can his!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommyto2kids Collaborator

My husband wants him to have it because he does not realize how bad he behaves when he has it. The teachers usually pass out the cup cakes right out the door or the last 5 minutes of class. So they don't experience the behavior. I approached the school last yr and they don't want to change anything. Holliday parties are super out of hand. Every mom brings a cake and they are all served. The teachers leave it up to the parents and take no responsibility for it. Two wonderful parents took a responsible approach in dd's class with parties, not so in son's class. Thanks for listening.

I'd at least like the teacher to tell me when he is served a cup cake and the colors and in a perfect world she'd tell me the day before what is being brought so I could plan accordingly. The teacher last yr refused. Lets pray for a better year. I have a signed medical note in his file for food dyes and sugar. What are my rights and how do I learn what they are? I am in CA?

bartfull Rising Star

I think you will have to get "mean". If it is in his file at school that he can't have this, and his teacher refuses to see to it that he doesn't, he/she is courting a lawsuit for himself, and for the school. If you just tell him AND the school administation that, I bet you'll see results!

domesticactivist Collaborator

Our approach when the kids are in that kind of setting is to put it in writing and only allow our kid to have food from home. You should be able to get a list of party days from the teacher and send him a treat he can have.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,133
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.