Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Dr Experienced In Celiac Dh In The Uk?


Sam81

Recommended Posts

Sam81 Apprentice

I'm undergoing investigation for celiac (althoug Dr is reluctant) and wont even entertain the possibility that it could be DH. I have posted pictures in the DH section and would be greatful if any Dr could have a look at them? I was diagnosed with behcets at 16 and put on dapsone. Since being off dapsone for 2 years I have had symptoms that seem more celiac orientated than Behcets. I have suffered with abdominal pain all my life, extra gassy, tiredness, fatigue, irritability, mood swings, depression and a struggle to manage weight, nausea and anemia - severe in pregnancy. In the last couple of months and on the odd occasion I forgot to take dapsone I would break out in a rash - it does seem to appear after eating certain foods, this rash used to just be lower legs but now is buttocks and occasionally knees and elbows, slightly different facial rash - more purple in colour and painfull too. Please, if anyone can help I'd be greatful as I keep hitting a dead end with my Dr. He ordered one blood test which he says is negative but won't give me the official levels and has put me through a colonoscopy - which was clear and cheaper than an endoscopy! I am set to see a dermatologist in 3 weeks and a gastro intestinal consultant in october although my Dr assured me they would unlikely do an endoscopy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,575
    • Most Online (within 30 mins)
      7,748

    Catie222
    Newest Member
    Catie222
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • KimMS
    • Scott Adams
      This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet where you prepare everything is the safest bet, but it's also difficult. Eating out is the the most risky, even if a restaurant has a gluten-free menu. I also include items that are naturally gluten-free, for example refried beans, tuna, pasta sauces, salsas, etc., which have a low overall risk of contamination.
    • Scott Adams
      I avoid turmeric now because I'm on low dose aspirin, but used to use this one: https://www.amazon.com/dp/B08HYBN4DJ My recipes always vary according to what I have on hand, but my base is a frozen berry mix from Trader Joe's: https://www.traderjoes.com/home/products/pdp/fruits-greens-smoothie-blend-075603 In the warmer months I include herbs from my garden like Italian parsley and basil. I add almond milk as well. 
    • KimMS
      Thank you! This is very helpful. Quick followup: what is your recommendation re: gluten-free prepared foods (labeled gluten-free or certified gluten-free) during this time of being more strict about eating gluten-free? Is it necessary to eat only whole foods prepared at home, or is it safe to include prepared / packaged foods in her diet (I'm thinking particularly of snack foods)?
    • xxnonamexx
      Is blending same as cold press? Is there any juice recipe you tried that you feel helped like the ginger turmeric? Is there a brand turmeric powder you used etc? I used Aloe vera years ago but the taste is hard to get down. What are your go to juices you made?
×
×
  • Create New...