Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! So Confused About Ingredients


CeliacMom

Recommended Posts

CeliacMom Rookie

I am very new to the gluten-free diet - my 2 1/2 yr old was diagnosed 2 weeks ago.

I have the "safe" list and "forbidden" lists of ingredients, and I also have the 79-page list of foods by manufacturer that are gluten-free, but after reading posts on this board, I am even more confused.

If all the ingredients listed on a product are on the "safe" list, why is a particular product not considered gluten-free? Is it because there could be cross-contamination from the factory, and if so, is that enough to do damage? How can I go to the grocery store with my lists and safely buy foods that won't hurt my daughter, both short-term and long-term? (I don't know what will affect her based on a reaction, because up to this point her only symptom of celiac disease is lack of weight gain).

One example: I read that Kraft will clearly label all foods with wheat, rye, barly and oats. I bought Grey Poupon mustard which is distributed by Kraft, and did not list these ingredients; then I read somewhere last night that Grey Poupon is NOT gluten-free.

I am feeling completely overwhelmed :( .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

Open Original Shared Link

Which one are you wondering about and why? :)

CeliacMom Rookie

I guess I am confused about the "vinegar" which I thought was okay.

This is what I found last night:

"Grey Poupon 1-800-622-4726 (Nabisco says that their white distilled vinegar source changes and may sometimes include the use of gluten grains)"

KaitiUSA Enthusiast

Yes, some vinegars are grain based but the gluten does not get through the distillation process. Distilled vinegar will be ok...it was thought to be bad before but it is pretty much agreed on that it is safe now.

Nabisco won't hide anything on labels though and will clearly indicate gluten.

lovegrov Collaborator

That's a CYA. Because distilled vinegar was on the possily bad list for so many years, and because some people with celiac still don't believe it's OK, some companies still warn about it. I ignore it.

richard

  • 2 weeks later...
Sophie's mom Newbie
I am very new to the gluten-free diet - my 2 1/2 yr old was diagnosed 2 weeks ago. 

I have the "safe" list and "forbidden" lists of ingredients, and I also have the 79-page list of foods by manufacturer that are gluten-free, but after reading posts on this board,  I am even more confused.

 

If all the ingredients listed on a product are on the "safe" list, why is a particular product not considered gluten-free?  Is it because there could be cross-contamination from the factory, and if so, is that enough to do damage?  How can I go to the grocery store with my lists and safely buy foods that won't hurt my daughter, both short-term and long-term?  (I don't know what will affect her based on a reaction, because up to this point her only symptom of celiac disease is lack of weight gain).

One example: I read that Kraft will clearly label all foods with wheat, rye, barly and oats.  I bought Grey Poupon mustard which is distributed by Kraft, and did not list these ingredients; then I read somewhere last night that Grey Poupon is NOT gluten-free.

I am feeling completely overwhelmed :( .

<{POST_SNAPBACK}>

I, too, am feeling a little overwhelmed. I plan to start my 3 yr. old daughter on a "diagnostic/test" diet on Monday. Where/how can I get my hands on these lists?? Thanks for any help.

Lisa

Jnkmnky Collaborator

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

For the safe/forbidden ingredients lists, go here: https://www.celiac.com/st_main.html?p_catid...-30105116344.41

For the 79-page food list, e-mail me :P. I've been distributing it--there's a post called Delphi Lists or something under the products section...either add your name there, or preferably, send me an e-mail with the e-mail button thingy below the post. Just ask for the Delphi/food list or the Silly Yak/restaurants list. I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: . Thank you!

mstrain Rookie
Just ask for the Delphi/food list or the Silly Yak/restaurants list.  I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: .  Thank you!

<{POST_SNAPBACK}>

Hi celiac3270:

I think I asked for "the list" - sorry for not being clear! Could you please e-mail me both lists? Thank you so much!

michelek@hotmail.com

  • 1 year later...
bellabrit7 Rookie

hi! I was wondering if you might be able email me the 79-page food list as well as the delphi list and silly yak/restaurant lists?! thanks soooo much, i am a recent

For the safe/forbidden ingredients lists, go here: https://www.celiac.com/st_main.html?p_catid...-30105116344.41

For the 79-page food list, e-mail me :P. I've been distributing it--there's a post called Delphi Lists or something under the products section...either add your name there, or preferably, send me an e-mail with the e-mail button thingy below the post. Just ask for the Delphi/food list or the Silly Yak/restaurants list. I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: . Thank you!

tiffjake Enthusiast
hi! I was wondering if you might be able email me the 79-page food list as well as the delphi list and silly yak/restaurant lists?! thanks soooo much, i am a recent

Hi Bella, just wanted to let you know that thread is nearly a year old, so you might not get a reply from that person..You might want to Private Message them, by clicking on their name (celiac3270) on the left, and scrolling down to "send message" :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    2. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    3. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    4. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    5. - KathyR37 posted a topic in Coping with Celiac Disease
      3

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.