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Help! So Confused About Ingredients


CeliacMom

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CeliacMom Rookie

I am very new to the gluten-free diet - my 2 1/2 yr old was diagnosed 2 weeks ago.

I have the "safe" list and "forbidden" lists of ingredients, and I also have the 79-page list of foods by manufacturer that are gluten-free, but after reading posts on this board, I am even more confused.

If all the ingredients listed on a product are on the "safe" list, why is a particular product not considered gluten-free? Is it because there could be cross-contamination from the factory, and if so, is that enough to do damage? How can I go to the grocery store with my lists and safely buy foods that won't hurt my daughter, both short-term and long-term? (I don't know what will affect her based on a reaction, because up to this point her only symptom of celiac disease is lack of weight gain).

One example: I read that Kraft will clearly label all foods with wheat, rye, barly and oats. I bought Grey Poupon mustard which is distributed by Kraft, and did not list these ingredients; then I read somewhere last night that Grey Poupon is NOT gluten-free.

I am feeling completely overwhelmed :( .


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Jnkmnky Collaborator

Open Original Shared Link

Which one are you wondering about and why? :)

CeliacMom Rookie

I guess I am confused about the "vinegar" which I thought was okay.

This is what I found last night:

"Grey Poupon 1-800-622-4726 (Nabisco says that their white distilled vinegar source changes and may sometimes include the use of gluten grains)"

KaitiUSA Enthusiast

Yes, some vinegars are grain based but the gluten does not get through the distillation process. Distilled vinegar will be ok...it was thought to be bad before but it is pretty much agreed on that it is safe now.

Nabisco won't hide anything on labels though and will clearly indicate gluten.

lovegrov Collaborator

That's a CYA. Because distilled vinegar was on the possily bad list for so many years, and because some people with celiac still don't believe it's OK, some companies still warn about it. I ignore it.

richard

  • 2 weeks later...
Sophie's mom Newbie
I am very new to the gluten-free diet - my 2 1/2 yr old was diagnosed 2 weeks ago. 

I have the "safe" list and "forbidden" lists of ingredients, and I also have the 79-page list of foods by manufacturer that are gluten-free, but after reading posts on this board,  I am even more confused.

 

If all the ingredients listed on a product are on the "safe" list, why is a particular product not considered gluten-free?  Is it because there could be cross-contamination from the factory, and if so, is that enough to do damage?  How can I go to the grocery store with my lists and safely buy foods that won't hurt my daughter, both short-term and long-term?  (I don't know what will affect her based on a reaction, because up to this point her only symptom of celiac disease is lack of weight gain).

One example: I read that Kraft will clearly label all foods with wheat, rye, barly and oats.  I bought Grey Poupon mustard which is distributed by Kraft, and did not list these ingredients; then I read somewhere last night that Grey Poupon is NOT gluten-free.

I am feeling completely overwhelmed :( .

<{POST_SNAPBACK}>

I, too, am feeling a little overwhelmed. I plan to start my 3 yr. old daughter on a "diagnostic/test" diet on Monday. Where/how can I get my hands on these lists?? Thanks for any help.

Lisa

Jnkmnky Collaborator

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celiac3270 Collaborator

For the safe/forbidden ingredients lists, go here: https://www.celiac.com/st_main.html?p_catid...-30105116344.41

For the 79-page food list, e-mail me :P. I've been distributing it--there's a post called Delphi Lists or something under the products section...either add your name there, or preferably, send me an e-mail with the e-mail button thingy below the post. Just ask for the Delphi/food list or the Silly Yak/restaurants list. I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: . Thank you!

mstrain Rookie
Just ask for the Delphi/food list or the Silly Yak/restaurants list.  I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: .  Thank you!

<{POST_SNAPBACK}>

Hi celiac3270:

I think I asked for "the list" - sorry for not being clear! Could you please e-mail me both lists? Thank you so much!

michelek@hotmail.com

  • 1 year later...
bellabrit7 Rookie

hi! I was wondering if you might be able email me the 79-page food list as well as the delphi list and silly yak/restaurant lists?! thanks soooo much, i am a recent

For the safe/forbidden ingredients lists, go here: https://www.celiac.com/st_main.html?p_catid...-30105116344.41

For the 79-page food list, e-mail me :P. I've been distributing it--there's a post called Delphi Lists or something under the products section...either add your name there, or preferably, send me an e-mail with the e-mail button thingy below the post. Just ask for the Delphi/food list or the Silly Yak/restaurants list. I'm sending both, so it's confusing when I sometimes get asked for "the list", lol :lol: . Thank you!

tiffjake Enthusiast
hi! I was wondering if you might be able email me the 79-page food list as well as the delphi list and silly yak/restaurant lists?! thanks soooo much, i am a recent

Hi Bella, just wanted to let you know that thread is nearly a year old, so you might not get a reply from that person..You might want to Private Message them, by clicking on their name (celiac3270) on the left, and scrolling down to "send message" :)

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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