Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk/casein Anyone Else

GFreeMO

By GFreeMO
in Food Intolerance & Leaky Gut

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

I kept feeling like I had been glutened. I had intestinal pain, D and gas, headache, the works. I knew that I hadn't had any gluten. I don't eat out and eat the same things over and over. I decided to cut out dairy 2 weeks ago. All of those symptoms went away. I was bored with it and sick of black coffee so I bought some cheese and Lactaid milk yesterday. I made a pizza with the cheese and used some of the milk in mashed potatoes and in coffee. This morning I woke up with a migraine, D, terrible gas pain and D, D, D...The cheese said no lactose per serving and the lactiad milk is lactose free. Is this what casein does to someone? If so, casein makes me feel as bad as gluten.

I was doing ok with no milk but I cant find any rice milk around here that is gluten free. All we have in our stores is Rice Dream. I caved and bought Lactaid now I am suffering.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted

I was doing ok with no milk but I cant find any rice milk around here that is gluten free. All we have in our stores is Rice Dream. I caved and bought Lactaid now I am suffering.

Do you have a good blender? Rice milk is easy to make! 2 cups water, 1/2 cup cooked rice (packed well but not like a brick) and some add a little sugar, honey or even vanilla to it. Blend it up for a few minutes. Keeps for 3-5 days.

We are dairy free d/t allergies but many people with Celiac have dairy issues as well.

GFreeMO Proficient
GFreeMO
Posted
  • Author

Do you have a good blender? Rice milk is easy to make! 2 cups water, 1/2 cup cooked rice (packed well but not like a brick) and some add a little sugar, honey or even vanilla to it. Blend it up for a few minutes. Keeps for 3-5 days.

We are dairy free d/t allergies but many people with Celiac have dairy issues as well.

Thanks for the recipe. I am going to try it. I have a blender that I got a long time ago that I used a few times before I knew better to make smoothies with Rice Dream. I guess I could stick it in the dishwasher to get it really clean and it should be safe that way.

GFreeMO Proficient
GFreeMO
Posted
  • Author

Do you have a good blender? Rice milk is easy to make! 2 cups water, 1/2 cup cooked rice (packed well but not like a brick) and some add a little sugar, honey or even vanilla to it. Blend it up for a few minutes. Keeps for 3-5 days.

We are dairy free d/t allergies but many people with Celiac have dairy issues as well.

Do I need to strain this or anything?

Kansas Rookie
Kansas
Posted

I am like you, just feeling like I was still getting gluten somehow, and I am extreme in what I put in my mouth. There was no possibility that I was getting gluten. I too have stopped the dairy, and I feel good! A lot more energy, completely normal stools, my ears are not driving me insane with itching, and the roughen areas on my fingers are improving. I thought dairy was a digestive issue, but not thinking that now. I am not much on dairy anyway, so it doesn't bother me, just have to get a little more creative in my baking.

StephanieL Enthusiast
StephanieL
Posted

If you have a really good blender, no you don't have to strain it. I have a Vita-Mix which is like a turbo jet engine :) I don't think you need to strain it though or what little body it does have will be lost. If you find it's chunky, then yes I would try it strained.

You may also want to try looking at coconut mild creamer (I LOVED it when I had to be dairy free but I am not 100% sure if it's gluten free. Turtle Hill is the maker of the one I used.) Also, if you don't have issues with nuts, there are a lot of nut "milk" alternatives out there.

smc Rookie
smc
Posted

I am doing the same thing. I know i am not getting gluten but have not been feeling well -bloating, intestinal pain, and D. I have cut down on dairy and noticed a reduction in symptoms but really have just been strict about it for the last 2 days and I do feel better so far. I have tried lactose free coffee mate and cabot cheese and was wondering the same thing-is it lacotse or casein? How do you tell?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted
  • Author

I am doing the same thing. I know i am not getting gluten but have not been feeling well -bloating, intestinal pain, and D. I have cut down on dairy and noticed a reduction in symptoms but really have just been strict about it for the last 2 days and I do feel better so far. I have tried lactose free coffee mate and cabot cheese and was wondering the same thing-is it lacotse or casein? How do you tell?

I think that if Lactaid milk and lactose free cheese is making you sick, it has got to be casein. The same thing happened to me with lactose free creamer and cheese. If these products are lactose free, they still have casein. A lot of people here have to avoid dairy. I guess we do too. ugh :(

smc Rookie
smc
Posted

I think that if Lactaid milk and lactose free cheese is making you sick, it has got to be casein. The same thing happened to me with lactose free creamer and cheese. If these products are lactose free, they still have casein. A lot of people here have to avoid dairy. I guess we do too. ugh :(

Well I thought I was home free being gluten free for about 2 years and I saw you have been gluten free for about the same time. I am really mad about having to give up dairy!! But now I am at the point where I will give it up and eat the front lawn if it is the only thing that will make me feel better. I have an appointment with my GI tomorrow so I will see what he has to say but I think I may have solved my problem. Thanks!

love2travel Mentor
love2travel
Posted

After being strictly gluten free for six months, at the five-month-mark I started getting quite ill from dairy. In my case it appears to be lactose but I have eliminated dairy temporarily to be sure. It is very frustrating not to have gluten OR dairy but there are others here who must have much less. :( I hope to be one of those who is able to re-introduce dairy in the future because I REALLY miss it. LOTS.

Darn it - I teach cooking classes including various cheeses! :o

GFreeMO Proficient
GFreeMO
Posted
  • Author

Giving up dairy for me is almost harder that giving up gluten! I made the rice milk with the above recipe. It turned out great!! Thanks for posting that. :)

StephanieL Enthusiast
StephanieL
Posted

Giving up dairy for me is almost harder that giving up gluten! I made the rice milk with the above recipe. It turned out great!! Thanks for posting that. :)

Awesome! Glad it worked out for ya! My DS (who has Celiac) is allergic to dairy, egg, peanut, tree nuts, soy and banana. We know how to work around things :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,745
    • Most Online (within 30 mins)
      7,748
    Barbfh
    Newest Member
    Barbfh
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or not??

      By Scott Adams · Posted

      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.