Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im Sick


surfer

Recommended Posts

surfer Explorer

I had 4 days feelling great.. im still healing as its only been 10 MONTHS since i found out i have Gluten problems...anyways it very hard to figure out what i ate because it could be the day before... But im thinking it was this gluten free blue cheese salad dressing at an all you can eat salad bar...... cross contamation? i dont know.. anyways, my intestines hurt and back hurts and i feel like crap...takes about 2 days to go away also..

anyways with the same thing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

I had 4 days feelling great.. im still healing as its only been 10 MONTHS since i found out i have Gluten problems...anyways it very hard to figure out what i ate because it could be the day before... But im thinking it was this gluten free blue cheese salad dressing at an all you can eat salad bar...... cross contamation? i dont know.. anyways, my intestines hurt and back hurts and i feel like crap...takes about 2 days to go away also..

anyways with the same thing?

Salad bars are not very safe places for us. People drop croutons in the dressings or the other containers that should otherwise be gluten-free. Sorry your having a rough time!

AVR1962 Collaborator

I had 4 days feelling great.. im still healing as its only been 10 MONTHS since i found out i have Gluten problems...anyways it very hard to figure out what i ate because it could be the day before... But im thinking it was this gluten free blue cheese salad dressing at an all you can eat salad bar...... cross contamation? i dont know.. anyways, my intestines hurt and back hurts and i feel like crap...takes about 2 days to go away also..

anyways with the same thing?

Do you have problems with dairy? That is the first thought that comes to my mind at a salad bar besides possible cross contamination. What kind of dressing did you use? Is it possible you have problems with soy (in mayo) or high fructose (in ketchup, BBQ sauce, fruit drinks). Sometimes dressings can have these in them.

surfer Explorer

Do you have problems with dairy? That is the first thought that comes to my mind at a salad bar besides possible cross contamination. What kind of dressing did you use? Is it possible you have problems with soy (in mayo) or high fructose (in ketchup, BBQ sauce, fruit drinks). Sometimes dressings can have these in them.

hi and thank you for writing back...im not sure if i have a problem with dairy...i have stopped eating it after a nutritionist told me, she cuts all dairy and nuts out first... The dressing i was eating was Gluten free blue cheese...and just salad...the next day i was in pain for 2 days..didnt want to do anything but sit and be sad..

padma Newbie

Do you have problems with dairy? That is the first thought that comes to my mind at a salad bar besides possible cross contamination. What kind of dressing did you use? Is it possible you have problems with soy (in mayo) or high fructose (in ketchup, BBQ sauce, fruit drinks). Sometimes dressings can have these in them.

[/quot

hi and thank you for writing back...im not sure if i have a problem with dairy...i have stopped eating it after a nutritionist told me, she cuts all dairy and nuts out first... The dressing i was eating was Gluten free blue cheese...and just salad...the next day i was in pain for 2 days..didnt want to do anything but sit and be sad..

I rarely will eat any salad dressing at a restaurant. If you look at the labels of most salad dressings you will see soy sauce, maltodextrin, MSG, soy protein... all can have gluten. And, of course, the cross contamination is a big problem.

If a restaurant tosses their salad in a bowl, that bowl is usually used for salad with croutons. I have had waiters go back to the salad area and pick out the croutons! They can also use the same tossing utensils on croutoned salad. Not very safe.

I often ask for the vinegar and oil if it is balsamic and the oil is olive. Otherwise I just put lemon on it. I can't eat dairy either, so that is something to test out. I ate a little dairy (the eggs were cooked in butter and I patted it off before I ate it) 5 days ago and had D for 3 days. Not fun.

Sorry you got so ill. It gets so old to keep running into gluten when you think you are doing so well. I have a "zero-tolerance" policy for myself... if I think it might have gluten, I don't eat it, even if I am starving. I have had to go to the hospital before when I was in so much pain, so don't want to do that again. Nothing tastes as good as Gluten Free feels! Hope that made you smile.

surfer Explorer

hi yes you made me smile thanks...

I do have another question... How do you put weight on? i lost weight when i had this problem and i have put back a certain amount but thats it....seems to stay about the same...I would like to add alittle bit more....

Do you know what i could eat to add more pounds?

thanks so much

smile.

psawyer Proficient

If you look at the labels of most salad dressings you will see soy sauce, maltodextrin, MSG, soy protein... all can have gluten.

Maltodextrin, MSG and soy protein are all gluten-free. I have not seen a dressing that contains soy sauce, but yes, soy sauce usually contains wheat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

I have not seen a dressing that contains soy sauce, but yes, soy sauce usually contains wheat.

Usually, it's in asian salad dressings, like sesame ginger dressing. They're rather popular on the west coast, but I don't know how common they are back east.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Son's legs shaking

    2. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Son's legs shaking

    4. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    5. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.