Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Sensitive Anemia


Nevadan

Recommended Posts

Nevadan Contributor

After going gluten-free how long should one expect it to take before anemia shows signs of recovery? makes a full recovery?

Thanks.

George


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice
After going gluten-free how long should one expect it to take before anemia shows signs of recovery? makes a full recovery?

Thanks.

George

<{POST_SNAPBACK}>

Well, unfortunately that question cannot be answered by a definite number. There are many variables - how long were you being contaminated before going gluten-free? How long have you been gluten-free? Are you absolutely sure you're gluten-free? I had to go gluten-free 9 years ago and every now and then I still get cross contamination. Sucks. Anyhow, I try to give blood to our local drive and have been rejected twice for low blood counts. It's something you'll have to work on with your doctor. I've been taking a multi vitamin/mineral supplement religiously and can tell when I've forgotten it for a few days. This probably isn't the answer you were wanting, but the truth is that it's just another fun facet of celiac disease - constantly monitoring your nutrition intake and evaluating how well you're doing.

jenvan Collaborator

George-

How severe is your anemia? Based on that there are ways you can speed the iron recovery along. Supplements are an option, not my favorite because 9 times out of 10 they constipate. But some are better than others--I recommend paying a little more for a supplement like Slow Fe, that has a coating aimed at preventing digestive issues. It is definitely gentler than the cheaper option.

Perhaps going to a hematologist is an option for you. After months of supplements and my counts continuing to go down, I went to one, and had an iron infusion...which is basically where they serve you up some intravenous iron :) That is the only thing that has worked for me. Luckily I have only needed one treatment. I had it done back in Feb/March and I am high in the normal ranges still.

So, you may be one who needs some additional help to raise the iron. Otherwise, it may correct itself on its own, but that could be a while... I say if your counts are bad enough there's no sense in waiting if you don't have to! Good luck :)

Nevadan Contributor

Regarding my anemia level, its not too bad - just marginal. A couple of months ago I self-diagnosed my gluten sensitivity by diet changes and was subsequently tested by Enterolab about a month ago. Enterolab found me gluten and casein sensitive but to not have the genes for celiac; however I do have the genes for gluten sensitivity. My original concern re gluten came about from the fact I was diagnosed with osteophorosis about 5 yrs ago (I'm a 60 yr old male) and I had recently read that osteo and celiac were related. After researching celiac I recognized several other symptoms that I had that matched: gastro, slight anemia, mild peripheral neuropathy, etc. Anyway being gluten-free almost immediately got rid of the gastro problems (gas, constipation, bloat) I had had for years. Now I'm looking for further indications that there are other benefits and the marginal anemia seemed like a good candidate - both osteo and p neuropathy appear to be too slow reacting to use as a short term monitor.

Hence my question re response time for anemia improvement - sorry I didn't elaborate originally.

Thanks for the responses.

George

Merika Contributor

Hi George,

My personal favorite is to use a cast iron skillet at least a few times a week for cooking - eggs, gluten-free pancakes, you name it. It cooks great, is easy to clean and will help boost your iron levels.

I don't have anemia with celiac. But when I was pregnant my iron levels started to dip (pretty common) and just by using the cast iron skillet, my levels came right back up to within normal.

Make sure you get a skillet that does NOT have special teflon or other coating on it, or it won't help you.

Happy cooking :)

Merika

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,438
    • Most Online (within 30 mins)
      7,748

    rednecksurfer
    Newest Member
    rednecksurfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.