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Hi My Name Is Gina........


jerseygirl221

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jerseygirl221 Rookie

and I have Celiac Disease! I was just diagnosed 2 weeks ago. I look forward to meeting many new people on here who can support me on my journey. I live in Burlington County NJ. I am 36 and I have 2 children-ages 9 & 11 who have not been tested yet.


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love2travel Mentor

and I have Celiac Disease! I was just diagnosed 2 weeks ago. I look forward to meeting many new people on here who can support me on my journey. I live in Burlington County NJ. I am 36 and I have 2 children-ages 9 & 11 who have not been tested yet.

Glad to have you join our elite club, Gina! Well, sort of. :huh: At first this celiac stuff can be overwhelming but eventually it becomes second nature. I was diagnosed in February and it took nearly two months to really get my mind wrapped around it. Already my numbers are negative (they were overwhelmingly positive) and I am on my way to healing! So, hang in there. It truly CAN be done! :)

Twinklestars Contributor

Hi Gina! Congratulations on your diagnosis. I'm new to the forum too. I'm not yet diagnosed, but am in the process. Regardless of my results, I'll be sticking around because I can't imagine living like this for any longer. I'm a Mum too, I have 4 children :) Looking forward to seeing you around!

Stephanie1221 Newbie

Nice to meet you both, I am new to the forum, diagnosed with Celiac since June 2011. I am a mother with three, two still at home ages 8 and 13...I have a concern right now, I have been gluten free since July however I continue to break out with rashes on my back, stomach, and leg, what else could it be? I am dairy free and sugar free nonetheless I do eat a variety of fruit daily.

pricklypear1971 Community Regular

Nice to meet you both, I am new to the forum, diagnosed with Celiac since June 2011. I am a mother with three, two still at home ages 8 and 13...I have a concern right now, I have been gluten free since July however I continue to break out with rashes on my back, stomach, and leg, what else could it be? I am dairy free and sugar free nonetheless I do eat a variety of fruit daily.

Well, if you're celiac it's probably Dermatitis herpetiformis.

There's a whole section on this board about it. In short, the Iga antibodies get in your skin and the sores/rash are an external expression of your gluten intolerance. If you want to test the rash and see if it acts like DH, go on a low-iodine diet in addition to the gluten-free diet. You can find a lot of info about a low-iodine on the thyca website (for people going through thyroid irradiation - diet advice works for everyone).

Stephanie1221 Newbie

Well, if you're celiac it's probably Dermatitis herpetiformis.

There's a whole section on this board about it. In short, the Iga antibodies get in your skin and the sores/rash are an external expression of your gluten intolerance. If you want to test the rash and see if it acts like DH, go on a low-iodine diet in addition to the gluten-free diet. You can find a lot of info about a low-iodine on the thyca website (for people going through thyroid irradiation - diet advice works for everyone).

Thank you, I will look into that....

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      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
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      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
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      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
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