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What Symptoms Did You Not Even Realize Were Symptoms?

smeej

By smeej
in Coping with Celiac Disease

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TanyaC Newbie
TanyaC
Posted

Did anyone ever experience red burning blood shot eyes? I wake up in the morning and my eyes hurt to open and are red and bloodshot. Went to the eye doctor and he did a complete exam and found nothing. Gave me some eye drops for allergies which did not do a thing. I am hoping that being off gluten will help my eyes. As a newbie here, thanks for all the great info.

Tanya

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srall Contributor
srall
Posted

I knew my stomach was killing me all the time, but until I went gluten free/casein free I did not realize that it affected my fertility, arthritis, chronic fatigue, cavities, nerve pain, dry skin, moods (rage right before my period), general confusion, lack of motivation, anxiety...I know I'm forgetting some things. This diet has over the past two years become very easy to maintain and thrive on (took several months) and I find it's so much easier to forage for organic whole foods and prepare every meal than try and muddle through life at 60%. That's no way to live.

pain*in*my*gut Apprentice
pain*in*my*gut
Posted

Did anyone ever experience red burning blood shot eyes? I wake up in the morning and my eyes hurt to open and are red and bloodshot. Went to the eye doctor and he did a complete exam and found nothing. Gave me some eye drops for allergies which did not do a thing. I am hoping that being off gluten will help my eyes. As a newbie here, thanks for all the great info.

Tanya

YES!! My dry eyes were terrible before going gluten-free! I would also get random attacks of episcleritis (red, burning eye that looks like pink eye without the goop). I had to use steriod drops in my eye. Since going gluten-free, I haven't had one attack, and my eyes are not dry and gritty. It's high allergy season here, too, and my eyes feel great!

I wouldn't be suprised if you have the same positive results! :D

anabananakins Explorer
anabananakins
Posted

Besides the digestive stuff, and neuro stuff (brain fog, balance problems) that you commonly see listed, I finally stopped being thirsty all the time (I wanted to drink water non-stop, it was an effort to keep myself below 4 litres a day and if the doctor hadn't read me the riot act, I'd have continued to drink 5-6 litres); my ears stopped feeling so blocked and gunky) and my ankles stopped hurting when I got out of bed in the morning. Oh and I lost the puffy bags under my eyes.

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    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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      Trip to Anaheim/Disney

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