Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Confirmed Celiac Waiting On Blood Work-Overwhelmed

TanyaC

Recommended Posts

TanyaC Newbie
TanyaC
Posted

After suffering for 10 years of being anemic (sp?) I think they have finally figured out I have Celiac disease. Biopsy during colonoscopy (sp) confirmed. Had blood work done last week go back for follow up on blood work in a couple of weeks. I stopped eating gluten as soon as my blood was drawn and have already noticed improvement in my stomach after just a few days. My daughter had even more symptoms of Celiac disease and as soon as I told her what the doctors told me she went off gluten and has had great results. I called my Mom and asked her if she had ever been tested for Celiac and she said no. When I explained what it was she said "well I am not supposed to eat bread, it gives me a bad stomach ache". And my sister also has problems. So even though I am "waiting" on the blood work I have no doubts. The biopsy showed damage to the villa (sp?) and the small intestine shortening which my gi said are all signs of Celiac. So.... sorry for the run on. I have a couple questions that I am hoping someone might be able to answer. After they did my "upper and lower" gi but before I got the results back I ate some graham crackers. They felt like they got stuck in my throat. I thought that my throat might be sore from the scope. After a few hours it seemed to go away. Then a few days later I was eating some of that chex mix and it happened again. Then again when I was eating a burger on a bun. I went back to dr and he could not explain it. He thought I might have scratched my throat when I ate the graham cracker when it first happened. My question is has anyone ever had a reaction like that with their throat? I was thinking it might me a reaction to the gluten.

Another question is has anyone ever had burning red eyes as a result of eating gluten?

Thanks all for any help. This is going to be a long journey but I am SO ready to start feeling human again.

Have a great evening all.

Thanks!!

Tanya

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

It is possible that your throat was a little inflamed from the endoscopy although this does not normally happen. Wait a day or two and drink fluids with your fibrous foods and see if it goes away. I occasionally have problems with swallowing things, out of the blue, and they do go away and I have no idea what causes it.

Welcome to the forum - this is a somewhat long journey on which you have embarked, but it is so worthwhile to feel better that it overrides the inconveniences that it causes (and there will be times when you will curse not being able to eat gluten - everyone does!) It is a new way of life, living, eating, socializing and it takes a bit of getting used to, but we are here to help you over the rough spots. Fire away with any questions that come up and there will be someone here to answer them for you. Good luck on your gluten free journey, and here's to health and feeling better. :)

rosetapper23 Explorer
rosetapper23
Posted

Tanya,

Your journey is similar to mine. I figured out first that I probably had celiac disease, and I had my son tested because he had the same symptoms. He tested positive for celiac, and then I called my mom because she also had the same symptoms. She refused to believe she had celiac because she didn't want to give up eating bread. However, after a year, she had a test that showed her bones were 70% decalcified...and then she called me to confess that she did, indeed, have many symptoms of celiac. All three of us have been gluten free for eight years, and we DO feel human again--and so will you very shortly.

As for the throat thing, my muscles are all very rigid (due to celiac, I believe), and my esophagus was very sore for a long time after I had the endoscopy--I attribute it to the fact that it probably didn't want to stretch enough for the tube. It took nearly six months before my throat stopped hurting and having difficulties swallowing. Of course, you'll probably recover sooner than that. I'm so glad that you now know what has been bedeviling you--best of luck to you!

Lisa Kaye Newbie
Lisa Kaye
Posted

I've recently been to the Celiac Center at Jefferson Univ Hospital in Philly and the specialist

said some celiacs have difficulty with swallowing. In fact, my cousin's only symptom was difficulty with

swallowing --which lead her to a GI doc to investigate and ultimately she was diagnosed with Celiac.

TanyaC Newbie
TanyaC
Posted
  • Author

I've recently been to the Celiac Center at Jefferson Univ Hospital in Philly and the specialist

said some celiacs have difficulty with swallowing. In fact, my cousin's only symptom was difficulty with

swallowing --which lead her to a GI doc to investigate and ultimately she was diagnosed with Celiac.

Thanks guys for the responses. I feel so much better hearing that the issues after the procedures may be related to Celiac. Its very frightening when you are eating and you feel like your food is getting stuck in your throat.

Is there any books that you would recommend me purchasing that will assist me in determining which foods I can and can't eat.

Thanks again!!!

Tanya

rosetapper23 Explorer
rosetapper23
Posted

I can recommend, "Celiac Disease: The Hidden Epidemic," by Dr. Peter Green. He speaks in laymen's terms, and his book contains a lengthy list of what you cannot eat. Remember--natural foods at first are best because you need the good nutrition to help you recover your health....so that means meats, eggs, dairy, nuts, vegetables, and fruits are all just fine to eat. Try to avoid processed foods at first (even the gluten-free kind), but eventually you might try them to see if they agree with you.

AVR1962 Collaborator
AVR1962
Posted

I would guess that you probably did scratch your throat with the graham crackers. However, if it persists ask to have your thyroid checked. If the thyroid is enlarged or if you have a growth called a nodule on the thryoid it can make swollowing harder. I have a nodule that I am on meds for to shrink. Most people will have them before the age of 50 and never know because normally they cause no issues.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


T.H. Community Regular
T.H.
Posted

Welcome to the club, Tanya!

Lots of people here who are going to right there with you - years undiagnosed, and when that first diagnosis comes in, everybody in the family starts realizing it's a problem for them, too.

For recommendations:

1. For recipes, I've had much better luck on the web than I did with books. There are some awesome gluten-free bloggers out there with some great stuff. Gluten Free girl is one, the gluten free goddess is another that pops into mind. 101cookbooks.com is one with gluten free foods, although it's not all gluten-free.

2. For information, the forums have actually ended up the most useful for me. This disease is only partially researched and understood yet, so there are a lot of issues celiacs are running into that doctors aren't aware of, or don't have any facts on yet. I don't think I would have healed at all if not for some of the lovely people on forums like this. There are some good, definitive books, but I think they're already being mentioned. :-)

3. If you look up gluten free grocery shopping guide on google, it should pop up with links to one or two books that are updated yearly, with regular products that are gluten-free. Really, really useful when you're starting off and trying to figure it all out.

good luck, and congratulations on finding out a way to get healthy again. Seriously? It's stunning how much of a difference it makes.

Takala Enthusiast
Takala
Posted

Dry eyes can be a result of Sjogren's. This is another associated auto immune condition which makes your eyes have trouble making tears, and your mouth gets dry from less saliva, it can also effect how you can sweat and cool yourself in hot weather. Also, your mucous will be stickier and you may have trouble clearing a cough during a chest cold (if this describes you, make sure you let doctors know about it so they can get with the program- you won't necessarily get over a cold the way you should, and will need help so you don't end up with bad bronchitis) When the eyes are dry they are more vulnerable to other irritations. You also might find yourself very sensitive to bright glarey light. You may have to alter your makeup brands if you wear any.... It should ease up somewhat on the gluten free diet, but you might end up getting friendly with eye drops in challenging situations. And sunglasses.

If it does not resolve soon see a doctor, as a simple infection can easily be cleared up with antibiotic eye drops. Don't ignore it, as you may be just not be able to make enough tears to clear it up yourself.

Gemini Experienced
Gemini
Posted

Dry eyes can be a result of Sjogren's. This is another associated auto immune condition which makes your eyes have trouble making tears, and your mouth gets dry from less saliva, it can also effect how you can sweat and cool yourself in hot weather. Also, your mucous will be stickier and you may have trouble clearing a cough during a chest cold (if this describes you, make sure you let doctors know about it so they can get with the program- you won't necessarily get over a cold the way you should, and will need help so you don't end up with bad bronchitis) When the eyes are dry they are more vulnerable to other irritations. You also might find yourself very sensitive to bright glarey light. You may have to alter your makeup brands if you wear any.... It should ease up somewhat on the gluten free diet, but you might end up getting friendly with eye drops in challenging situations. And sunglasses.

If it does not resolve soon see a doctor, as a simple infection can easily be cleared up with antibiotic eye drops. Don't ignore it, as you may be just not be able to make enough tears to clear it up yourself.

Takala...do you have Sjogren's? I do and your post was spot on! The first thing I thought when I read the original posters message was Sjogren's. As far as catching colds and healing slower, that can happen but since I started the gluten-free diet, I haven't had a cold or gotten sick so I've been lucky.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748
    jenny44
    Newest Member
    jenny44
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.