Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Figured Out My "gluten" Source! :)

Guest imsohungry

By Guest imsohungry
in Coping with Celiac Disease

Recommended Posts

Guest imsohungry
Guest imsohungry
Posted

Hey ya'll :)

I feel like shi* today <_<

BUT...at least I know why now.

I kept reviewing my diet for possible Gluten sources...I couldn't find anything that should be causing these Gosh-awful headaches, upset stomach, and fatigue.

Then it hit me. I've been going out-to-eat ALOT recently, but I always get the same thing (which I thought was gluten-free) :ph34r::blink:

This morning I went back to the restaurant web-sites and reread their nutrition info. I always get a grilled chicken salad w/Caesar dressing and French fries at Chik-fil-A (their site says the fries are ok) or I go to Wendy's and get a junior bacon cheeseburger with no bun and an order of fries....Ah HAH! :rolleyes:

I thought I had read that Wendy's used a dedicated frier, but when I went to their website, it did not list the fries as gluten-free and stated cross-contamination issues.

I'm so happy! This is an easy fix...I just won't eat the fries anymore. ;)

Well, now that I found my source, I'm hoping to recover shortly. I am trying to cope though...I've got classes this weekend and my seizures have increased (not to mention feeling like shi* all week from glutening myself) :rolleyes:

Good grief! Take care everyone. -Julie :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frenchiemama Collaborator
frenchiemama
Posted

Oh crappy! Well, at least you figured it out.

jenvan Collaborator
jenvan
Posted

jules--

i hope those damn fries were it. i hope too that your seizures quickly die down and disappear. i can only imagine how scary those can be. feel better soon!

KaitiUSA Enthusiast
KaitiUSA
Posted

Well I hope that is really what was it. It could be anything at those fast food places though because they can easily cross contaminate with anything.

They make your burger by itself right? Like they just don't take the bread off? That would for sure be a problem if they did.

Anyhow, feel better soon :D

Guest imsohungry
Guest imsohungry
Posted

Thank you girls for the well-wishes!

Yep, I hope that the fries are my gluten-source too. Honestly, it is all that I can come up with that I haven't checked in awhile.

Yeah, Kaiti...I don't usually eat out that much (for the very reason of cross-contamination), but I've fallen behind on my grocery shopping b/c of school these past two weeks. :rolleyes:

I've also placed two orders with Kinnik and Energy, but neither have arrived (it's been ten days)...so hopefully, they will be in today or tomorrow according to their customer service dept.

You guys I really feel like ick :( ...but it's not a flu-like sick...it's more like I've been hit in the head with a hammer and pumped full of gas (fill 'er up). :lol: Definitely a gluten thing. I can't wait to get off of work today!

Many hugs to you all! -Jules :)

nettiebeads Apprentice
nettiebeads
Posted
Hey ya'll  :)

I feel like shi* today <_<

BUT...at least I know why now.

I kept reviewing my diet for possible Gluten sources...I couldn't find anything that should be causing these Gosh-awful headaches, upset stomach, and fatigue.

Then it hit me.  I've been going out-to-eat ALOT recently, but I always get the same thing (which I thought was gluten-free)  :ph34r:  :blink:

This morning I went back to the restaurant web-sites and reread their nutrition info.  I always get a grilled chicken salad w/Caesar dressing and French fries at Chik-fil-A (their site says the fries are ok) or I go to Wendy's and get a junior bacon cheeseburger with no bun and an order of fries....Ah HAH!  :rolleyes:

I thought I had read that Wendy's used a dedicated frier, but when I went to their website, it did not list the fries as gluten-free and stated cross-contamination issues.

I'm so happy!  This is an easy fix...I just won't eat the fries anymore. ;)

Well, now that I found my source, I'm hoping to recover shortly.  I am trying to cope though...I've got classes this weekend and my seizures have increased (not to mention feeling like shi* all week from glutening myself) :rolleyes:

Good grief! Take care everyone.  -Julie :)

<{POST_SNAPBACK}>

I just ate out with coworkers - There's always that nagging "what if" even though I'm as careful as I can be and ask questions...

skbird Contributor
skbird
Posted

I went to my favorite lunch place today and handed them a slip printed out with exactly how I wanted my food and it was awesome! The owner came over to say hi and we're talking about having me write up a bunch of info on gluten free for the employee training manual, and for his future restaurants (he's opening up another in town right now).

here's what I wrote:

*Gluten free* Turkey Pesto sandwich for Stephanie

VERY IMPORTANT INSTRUCTIONS FOR PREPARATION:

* NO tomato

* Please use Ener-G Gluten Free Rice Bread

* Please wrap sandwich in foil BEFORE grilling in the panini press

* Please prepare sandwich on a piece of deli paper or something so it's not on the same surface that other sandwiches were prepared on - to avoid cross-contamination of the other breads

* Please wipe off knife before using it to spread pesto and mayo on my sandwich

* Please substitute carrot and celery sticks instead of corn chips and hummus, and please take care to make sure they don’t get cross-contamination, either.

THANKS A MILLION! You guys are awesome!!!

It was the first time in a while I felt *really* good about eating out! :)

Stephanie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I believe that if a Chik-Fil-A serves breakfast that their fries are not gluten-free. A lot of loactions don't sereve breakfast and have dedicated friers.

Guest nini
Guest nini
Posted

The Chik Fil A rep told me that the hashbrowns for breakfast are also gluten-free so there wouldn't be any reason why they fries wouldn't be safe... is this not correct????? I've been letting Chey eat the fries...

Guest imsohungry
Guest imsohungry
Posted

Evening everyone!

My shipment came from both companies! :) Finally, FOOD! :D

Stephanie,

Good for you...you seem to be all kind of help lately. ;) Wasn't it you who was saying that you were asked by your doctor to talk to new patients diagnosed with Celiac? And now the restaurant wants you too! You're in high demand lady! B)

Nettie,

Yep, dining out always leaves me with that "what if" nagging feeling too. :unsure: I guess my kitchen is the only place I know that is as close to completely gluten-free as possible. :)

As far as Chik-fil-A fries goes, all the information that I've seen says gluten-free. But if anyone finds out otherwise, please let me know!

Night everyone! Blessings. -Julie

skbird Contributor
skbird
Posted

Yeah, that's me, I'm big in gluten circles in my little town! :)

I had a great talk with the restaurant owner yesterday and he is very excited about my experiences with food and I think his mind is trying to find a way to get me into his business. He's got bigger goals than just this local restaurant, and the second he's opening, currently. He wants to put together a restaurant package that can be opened anywhere and he has connections. So you'd better believe I want to get onboard with that project, would be good for me to work somewhere I felt was doing me and other's like me some good.

I've never eaten at a Chik Fil A, nor have I even seen one. I keep thinking of Chik O Sticks or whatever those are called - finally had one of those a few years ago and was glad it didn't taste like chicken! HAHAHAHA!

Stephanie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.