Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Dh Only Occur In Larger Patches?

heather Goble

By heather Goble
in Dermatitis Herpetiformis

Recommended Posts

heather Goble Rookie
heather Goble
Posted

Since I have been gluten free (about 8 months) I notice when I Get cc'd I sometimes get an itchy blister. It lasts for a few days, goes down, sometimes goes away, sometimes repeats this cycle. When it finally goes away, it leaves a purple mark. The odd thing is, I only get one or two at a time so it doesn't really seem like a rash, but what is it then?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

DH can look very different person to person. You don't have to have a big rashy patch.

Some people also get eczema/psoriasis from gluten.

I was on the fence about mine til I withdrew iodine - and it quickly went away and hasn't come back. That's a pretty strong indicator.

rosetapper23 Explorer
rosetapper23
Posted

When I get glutened, I usually get only one blister on the sole of my right foot and another blister on my left palm. I know they're DH because I used to get them all over my face and neck; however, for some reason, I only get one blister in each of those spots when I've been glutened, and sometimes I'll get one or two on my face or neck, too. And, yes, they leave a purple or dark scar that lasts for quite a while.

heather Goble Rookie
heather Goble
Posted
  • Author

It seems strange that I didn't start getting this until after I stopped eating gluten. I once did get a patch on my chest, the very first time it happened. The patch on my chest was extremely itchy, but hurt when I scratched it. I had eaten peanuts from trader joes that were labeled gluten free. However, the back of the package said that they were made on shared equipment with wheat. For the most part I usually get one on my hand/wrist and on in the same spot every time on the top of my foot.

rosetapper23 Explorer
rosetapper23
Posted

Yes, until I went gluten free, the only places I got DH were my face and neck; however, AFTER going gluten free, whenever I got glutened, usually only my hand and foot ended up with a DH blister or two. Bizarre mystery, for sure--but, hey, there are TWO of us who suffer from it...and I'll bet there are more.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yes, until I went gluten free, the only places I got DH were my face and neck; however, AFTER going gluten free, whenever I got glutened, usually only my hand and foot ended up with a DH blister or two. Bizarre mystery, for sure--but, hey, there are TWO of us who suffer from it...and I'll bet there are more.

Yep there are. It can also change in presentation in myself for example early on a DH outbreak was the first sign I had been glutened but after I had been well healed it became the last to appear. Now that I have been gluten-free for 9 years I have to get glutened really bad for it to show up.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,118
    • Most Online (within 30 mins)
      7,748
    Cwbtex
    Newest Member
    Cwbtex
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • captaincrab55
      Heat intolerant... Yikes

      By captaincrab55 · Posted

      Hi Colleen H,   I suffered with the pins and needles/burning feeling in my legs and feet for at least  6 years until my Nephrologist figured out that I had to go on a low salt diet.  He said my kidneys weren't strong enough to remove the salt.  The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option.  On the bright side the low salt diet lowered my BP over 20 points and and the pins and needles/burning feeling went away.  Good Luck and hope this helps.  
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Yes this is very frustrating for me ... not sure what to think.  Feels like I'm having reactions to a lot of things  Now applesauce?? I don't understand 😞 
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Heat intolerant... Yikes

      By Colleen H · Posted

      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.