Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recent Lab Work - Most Tests Low


stilltired07

Recommended Posts

stilltired07 Rookie

Hi everyone. I was diagnosed with Celiac Disease a couple years ago and in May of this year I was diagnosed with autoimmune adrenal insufficiency. I recently saw my Endocrinologist due to feeling weak and tired. He sent me for a whole wack of blood work to make sure my adrenal insufficiency was under controls and to check my thyroid/pituitary glands or any other cause for the way I feel. Here they are below. My endocrinologist told me everything looks great and he didn't think there was anything else wrong. He increased my Florinef medication and said maybe that will help. I have highlighted some lines that are low or are on the low end. My concerns are:

- TSH is normal but why are free`s on the low end. I have two autoimmune diseases, so I always worry about Thyroid issues.

- How can LH be low and FSH be borderline low, yet he says it is great, why bother checking then. I am a 25 year old male, I`d think my LH FSH would be higher.

- My RBC and WBC are both low which worries me. Again how is this normal?

Anyways, I know nobody here is a doctor, but I just wondered if anybody else experienced results like these. Thanks a lot!

Thyroid

-------

TSH - 1.4 (range 0.35 - 5.00)

Free T4 - 15 (range 12 - 22) <-- LOWISH

Free T3 - 3.7 (range 2.6 - 5.7) <-- LOWISH

Thyroid Antibodies - all came back negative (ones for hashi, graves)

Hormone - Adrenal/Pituitary

----------

LH - 1 (range 2 - 10) <-- LOW

FSH - 3 (range 2 - 12) <-- LOWISH

Cortisol - 238 (range 80 - 600)

Prolactin - 6 (range < 18)

Free Test: Pending...not complete yet

Hematology

------------

Hemoglobin: 120 (range 140 - 170) <-- LOW

Hematocrit: 0.36 (range 0.39 - 0.49) <-- LOW

RBC: 3.99 (range 4.30 - 5.70) <-- LOW

MCV: 89 (range 80-97)

MCH: 30 (range 27-32)

MCHC: 342 (range 320 - 360)

RDW: 12 (range 11.5 - 15)

WBC: 3.8 (4.2 - 11.0) <-- LOW

Platelets: 170 (range 150 -400) <-- LOWISH

MPV: 9 (7 - 11)

ABS Neutrophils: 2.09 (range 1.80 - 7.00)

ABS LYmphocytes: 0.99 (range 1.00 - 4.00) <-- LOW

ABS Monocytes: 0.42 (range 0.00 - 0.80)

ABS Eosinophils: 0.27 (range 0.00 - 0.40)

ABS BAsophils: 0.04 (range 0.00 - 0.20)

Chemistry

-------------

Fasting Glucose: 3.9 (range 3.6 - 6.0) <-- LOWISH

Calcium: 2.31 (range 2.20 - 2.65) <-- LOWISH

Sodium: 136 (range 135 - 145) <-- LOWISH

Potasium: 4.5 (range 3.3 - 5.1)

Alkaline Phosphatase: 40 (range 40 -120) <-- LOWISH

B12: 148 (range 150 - 900) <-- LOW

Ferritin: 45 (range 16 - 300)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I am not a medical professional but it does look like you are anemic. Your B12 is also low so you may want to supplement the B12 with some gluten-free sublinguals and prehaps do a multi with iron for a bit and then get the iron levels rechecked as you don't want the iron to get to high. It also might be a good idea to take copies of your labs and get a second opinion from your GP or another endocrinologist to find out for sure what you should be supplementing. Hopefully someone who is more knowledgeable about the thyroid will chime in on those results.

stilltired07 Rookie

Thanks for the response Ravenwood.

I have been supplementing with B12 for the last couple years, with no luck unfortunately. I'm going to do what you said and bring my lab results to my GP, to get her opinion. Thanks for the help, I appreciate it!

ravenwoodglass Mentor

Thanks for the response Ravenwood.

I have been supplementing with B12 for the last couple years, with no luck unfortunately. I'm going to do what you said and bring my lab results to my GP, to get her opinion. Thanks for the help, I appreciate it!

If the B12 isn't sublingual then your body wouldn't be able to absorb it. Glad to hear you are going to follow up with your GP.

Gemini Experienced

All of your test results are normal for someone with Celiac Disease. Anemia may take awhile to resolve and low white cell counts are perfectly normal for someone with autoimmune diseases. It's only a problem if you are sick a lot.

I have had low white cell counts for most of my adult life and I am 52 years old. I have 4 autoimmune diseases, including Celiac. White cell counts have never risen into the normal range but I am NEVER sick any more so don't give it a second thought.

I also have Hashi's thyroid disease and it's not uncommon to have a normal TSH and lower than optimal T3 and T4. You may see these rise as you heal but if not and you are symptomatic (fatigue especially), it might be prudent to supplement with thyroid hormone down the road.

stilltired07 Rookie

All of your test results are normal for someone with Celiac Disease. Anemia may take awhile to resolve and low white cell counts are perfectly normal for someone with autoimmune diseases. It's only a problem if you are sick a lot.

I have had low white cell counts for most of my adult life and I am 52 years old. I have 4 autoimmune diseases, including Celiac. White cell counts have never risen into the normal range but I am NEVER sick any more so don't give it a second thought.

I also have Hashi's thyroid disease and it's not uncommon to have a normal TSH and lower than optimal T3 and T4. You may see these rise as you heal but if not and you are symptomatic (fatigue especially), it might be prudent to supplement with thyroid hormone down the road.

Thanks to both of you!

Raven: I have been taking a double dose of B12 pills, but just regular ones. My Gastro said they were good enough, great advice lol Thanks for the help!

Gemini: Thanks for letting me know about the blood work. My doctor called me yesterday afternoon and let me know my Absolute Reticulocytes(red cells from bone marrow) were at 7 (range 25 - 85) and that it was concerning since my red cells were low. Who knows there, but Celiac has caused weird stuff with my before. She is trying to find me a hematologist now with little luck as most only take people diagnosed with Cancer.

My WBC has been around 2.5 - 5.0 since I was diagnosed, so I am used to it sitting low and I'm glad to know it is normal. I have Addison's Disease as well, so Thyroid was always a concern of mine. Fatigue has been my worst symtpom, but my ENdo always blames Addison's or Celiac. My low end Free T3/T4 do no concern him because my antibodies were negative. I'm worried it is a bad sign as over the last two years my Free's were always at top end of range. No point is worrying if my Endo isn't worried, so I'll just keep an eye on it.

Thanks again!!!

stilltired07 Rookie

Hi all.

My doctor just called me with the Free Testosterone results:

LH: 1 (range 1-9)

FSH: 3 (range 2 - 12)

Free Testosterone: 3 (range 50 - 200)

Looks like that explains why I am so tired. He has sent me a script for Androgel or something like that. He never said what would of caused this, does anybody have experience with this? He did say it was the lowest he has ever seen for man my age (so nice haha). Oh well, I hope this helps me feel better. Does anybody know if this is common with Celiac or Addison's, or should I have my pituitary checked out. Anyways, thanks to everyone for their help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

Low Testosterone Causes

Low testosterone levels occur due to many reasons; major low testosterone causes are following:

Obesity

Testicle injury

Infectious diseases

Excess of blood iron

Inflammatory diseases

Natural process of aging

Chemo/radiation treatment

Performance boosting drugs

Pain or hormonal medication

Skylark Collaborator

Hi all.

My doctor just called me with the Free Testosterone results:

LH: 1 (range 1-9)

FSH: 3 (range 2 - 12)

Free Testosterone: 3 (range 50 - 200)

Looks like that explains why I am so tired. He has sent me a script for Androgel or something like that. He never said what would of caused this, does anybody have experience with this? He did say it was the lowest he has ever seen for man my age (so nice haha). Oh well, I hope this helps me feel better. Does anybody know if this is common with Celiac or Addison's, or should I have my pituitary checked out. Anyways, thanks to everyone for their help!

Are you on Lipitor, Crestor, or any other cholesterol-lowering drug?

stilltired07 Rookie

Thanks for the list, I called back the doctor and ask his assistant if she could talk to him for me. I'll probably get an answer of what can cause this next week. I just found out my insurance wont cover any Testosterone Therapy and it's $200 a month. He gave me a years worth, but I'm assuming I wont need to take it that long.

No, I am not on any medication like that. All I take is Cortisone and Florinef for my Addison's.

Thanks a lot.

frieze Community Regular

Thanks for the list, I called back the doctor and ask his assistant if she could talk to him for me. I'll probably get an answer of what can cause this next week. I just found out my insurance wont cover any Testosterone Therapy and it's $200 a month. He gave me a years worth, but I'm assuming I wont need to take it that long.

No, I am not on any medication like that. All I take is Cortisone and Florinef for my Addison's.

The cortisone may well be you issue, it is a hormone med.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      7

      Question

    2. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      7

      Question

    3. - Tuba1971 replied to Pat B's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      FDA says that most drugs are gluten-free???

    4. - PA Painter replied to PA Painter's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      NCGS Diagnosis

    5. - Viroval replied to Nicbent35's topic in Related Issues & Disorders
      13

      3 year old gluten intolerance?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,753
    • Most Online (within 30 mins)
      7,748

    Laurie918
    Newest Member
    Laurie918
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      endomys is, aka, "EMA" and is a celiac disease antibody test. It was negative. gliaiga is, aka, IGP-IGA, is also a celiac disease antibody test. It was negative. TRANSGLUA is, aka, TTG-IGA, another celiac disease antibody test. It was in normal range. tranigg is, aka, TTG-IGG, still another celiac disease antibody test. It was high, or above normal range. immaqnt is, I believe, what is also known as "total IGA" and at 160, looks to be in normal range since it wasn't flagged otherwise. This is a test for IGA deficiency. If someone is IGA deficient then all other IGA test scores cannot be trusted as being accurate. You are not IGA deficient. Here is a primer explaining the various tests that can be used to diagnose celiac disease: Celiac disease blood antibody testing is not valid when someone has been gluten free or eating low gluten for a significant period of time. The IGA tests are more specific for celiac disease than are the IGG tests but your slightly high TTG-IGG test score could reflect that you have celiac disease and have had low level exposure to gluten over time or a recent exposure. You could also have NCGS (Non Celiac Gluten Sensitivity).
    • fritz2
      I'm 70, had gut issues my whole life.  15 years ago my grandchild was diagnosed with celiac.  Since I had a constant either constipation or diarrhea and what the doctors thought was fibromyalgia and other issues I decided to see what happens if I quit gluten.  I got a lot better.  BTW, 30 years ago I had head & neck cancer, the radiation destroyed my thyroid.  I suffer from chronic fatigue and have to take synthroid. A few months ago, I bought a bottle of Ice water, I was thirsty and all they had at the motel was this.  It said sugar free and had a bunch of vitamins.  I couldn't read the fine print so I thought it's safe, so I bought several bottles (it had sucralose and maltodextrin in it).  I thought one per day would be ok and it absolutely was delicious.  In the meantime, my wife found some links and bratwurst for breakfast, we didn't know it had wheat in it and we picked up a half gallon of her favorite ice cream and unknown to us they had changed the formula and added wheat.  I had several meals and several bottles before I realized something was wrong.  Did all the sugar add to the issue?   In a day, I wasn't feeling well, my joints started swelling.  In a couple days, I thought sure I had gout in both hands.  In three days, I needed help to stand up or sit down, the pain was extreme.  I went to the emergency room.  They took blood and gave me cholchistine to alleviate the gout, it did nothing.  I didn't get a report on the test.  The next week the doctor ordered more blood tests and it's all acronyms but a couple items on celiac were listed as high.  The nurse I asked about the report had no clue and the RA was negative.  This has been ongoing for over a month and only now am I able to use my hands, but it's painful. Under the Celiac labs headline it says:  endomys-Negat gliaiga-  5 gliaigg-  1 TRANGLUA -3 tranigg-  8  (high) immaqnt-  160 Rheumatoid factor <12 Thyroid stimulating hormone: 2.81 Does anyone know what this means?
    • Tuba1971
      I had been glutened from somewhere since I pretty much make all my food from scratch. I had to have an endoscopy which should gluten damage, had blood work which also indicated high gluten. 4 years ago when I had these tests my gluten levels were all in good alignment. It comes down to my levothyroxin accord brand that must have gluten in it. I switched to synthroid 3 weeks ago and have been doing much better and am able to sleep at night again.
    • PA Painter
      That somes it up. It is worth mentioning GliadinX does not reduce symptoms for me at all. I also react to banana, avacado, cabbage, Oatmeal, and pecans among other things. If anyone else out there is like me, I had to eliminate gluten and all processed food before I could start to heal. I wish I had know this a long time ago. Thanks for the acknowledgement.
    • Viroval
      Thanks for sharing this detailed explanation. It’s really helpful to understand the differences between celiac disease and gluten sensitivity. I had no idea that gluten withdrawal could feel similar to addiction, and it’s great to have that context when considering how it affects people. It’s also good to know how important it is to continue eating gluten for accurate testing. I’ll keep all of this in mind!
×
×
  • Create New...