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Considering Doing Gluten Challenge For Biopsy


carecare

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I met with the Ped. GI doctor today. He of course wouldn't say yes your son has celiac. Still the gold standard is the biopsy. I asked about genetic testing and yes they do it but he said with my family history he's certain it would come back with our family having the gene so he wasn't so apt to do it. After talking to him though I am leaning on the side of getting the endoscopy done. Having my son go back on gluten and just go in and see. That way he'll know if it's celiac or not...if he has to be extremely strict with his diet or not. I know sometimes even the endoscopy is negative when indeed the person is celiac but the chances are higher at least I think with the endoscopy showing something. I know everyone here has said go on the diet for at least 3 months. The dr told us 4-6 weeks only. I'm more inclined to order the procedure for the end of December...get it in as my deductible is met...LOL and start the gluten right now. I'm also having my other son who was having stomach pain last year but it went away...and recently on a gluten free diet with the family has noticed how much his stomach hurts when he does ingest gluten now. Then...to convince my 18 yr old she should get tested too...because if she doesn't know for sure...she'll continue to cheat and cheat some more and won't take it seriously..even though she's been sick and having stomach pain since college started. Now...to convince the hubby I think this is best...that the boys go back on gluten until the test.


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Here's the reasoning behind 3 months of gluten challenge. I hope you get the answers you're looking for!

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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