Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Went For A Jog Today!


AVR1962

Recommended Posts

AVR1962 Collaborator

It sure does feel great to be feeling near normal again. It was a short jog and I can tell I still have some ataxia going on still. Did an hour walk yesterday and hoping to continue to move forward from here!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Congratulations! Wow! That is just wonderful!

I remember after my 16 year old had been gluten free for 4 months and he told me he felt like jogging I almost fell over! It was the saddest and happiest feeling in the world to watch my son go for a jog when he had been sick most of his life with asthma and muscle weakness and had never been able to participate in sports. He is 17 now and gluten free one year. He is wrestling in school and jogging every day and feels just ecstatic that his body works again. He had ataxia too...but it is all gone now!

If I hadn't found this site we would both still be living in hell.

Seriously I am happy for you! It must have felt wonderful to be able to use your body again. Hang in there...it gets better and better! We are are so happy about being able to exercise! I was diagnosed with fibromyalgia and told it would not get any better. That was in 2007. Well, after one year I have no sign of muscle problems unless I get gluten. I haven't actually jogged yet, but it feels great to be able to go for a walk when I want to!

Jestgar Rising Star

:)

I do eight mile walks now on the weekend. It's a wonderfully relaxing way to start the day. Time to myself to think, or just experience the day.

  • 4 weeks later...
AVR1962 Collaborator

Any other joggers/ former joggers here who want to get back into their running shoes??

  • 3 months later...
granolagal Apprentice

Any other joggers/ former joggers here who want to get back into their running shoes??

I would absolutely love to start running again. Nothing makes me feel the same way as my nice runner's high I used to get post-run. Unfortunately I developed PFS (runner's knee) so I had to stop running, and then my celiac syptoms (this is pre DX) started to flare up. I was so fatigued all of the time I couldn't even imagine putting on my shoes. I do yoga and I love it to death. But I need to supplement with cardio. Otherwise I feel sluggish. My physiotherapist said I'll never be able to run on a treadmill again which is devastating to me. He said I either have to run outside on a trail, or be indoors on an elliptical or stationary bike. But I want my treadmill!!! :(

I'm thinking about starting to get back into it. But I'm wondering if I should be worried about it being "too soon". I've only been gluten-free for 28 days and I feel like I have a bit of energy back, but I tried some circuit training and my heart palpitations are still pretty bad. But I don't want to get into a downward spiral - not workout due to heart palps, cardio endurance suffers which makes heart more prone to palps (?), then have palps when working out so stop...etc...etc...

Bubba's Mom Enthusiast

Yay! It's fantastic to hear that you've gone from having such problems with Ataxia, to actually running! I'm THRILLED for you. It's so wonderful to get your old self back again. :D

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.