Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When You Are Glutened


chrissyinnj

Recommended Posts

chrissyinnj Apprentice

When you have gluten by accident, does your reaction vary with the amount of gluten you ingest?

(tiny bit of gluten= smaller reaction, lots of gluten= big reaction)

or do you find it is about the same regardless of amount.

Also, we you are glutened, how long does it usually last before you feel like yourself again.(hours, days, weeks, etc)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenDude Newbie

I think everybody here will have different answers. It just seems to be the nature of the disease. For me, it took my years to figure it out. If I am feeling foggy and ungodly tired, I go back two days and see where I got glutened. And yes, the amount definitely matters, as least for me. Last January, I ordered sushi with spicy mayo. Manager assured me sauce was safe (I've had it elsewhere.) AFTER my meal, she came up to me and told me she was wrong (and not only charged me for my meal, but tried charging a dollar extra for the sauce.) I was sick for six months after that. Thought it would never end.

beebs Enthusiast

It depends on me how much. I still have pretty strong reactions, but they are far worse if I actually eat a meal with gluten in it, like pastry etc. I can take weeks and weeks to be back to my old self - depending on how badly I was glutened - usually around 2 weeks.

bartfull Rising Star

I honestly don't know yet. So far I have been corned by accident, but not glutened. I ASSUME I have celiac because my Mom did, but I'm still not certain. Once I have gotten over this last corning (and if I can avoid it long enough), I'm going to gluten myself intentionally to find out. :blink:

sahm-i-am Apprentice

If I eat alot of gluten (like a bite of gluten cake) I will throw up in a couple of hours. Then I feel wiped out and tired for a day or two. If I eat a crumb or breath in gluten (it happened at a farm on a windy day - ugh!) I am nauseated but don't throw up. That being said, the farther I get from the day I went gluten free, the more severe my reactions. When I first went gluten free I never had reactions (even before diagnosis I never had gi symptoms). Now, the more I am on the diet the worse my reactions when I mess up.

One day I will be able to look at a picture of a wheat field and throw up! :-) Lovely!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Stomach burning and neuropathy

    2. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    3. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Stomach burning and neuropathy

    4. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,842
    • Most Online (within 30 mins)
      7,748

    JenKnight
    Newest Member
    JenKnight
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.