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Celiac Disease Center In Chicago

MoMof2Boyz

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MoMof2Boyz Enthusiast
MoMof2Boyz
Posted

If someone knows the toll free hotline number can you please post it? I found a number on their website but I don't think that's it. thanks!

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kareng Grand Master
kareng
Posted

Open Original Shared Link

The University of Chicago Celiac Disease Center

5841 S. Maryland Avenue, MC 4069

Chicago, Illinois 60637

Celiac Disease Hotline (Monday-Friday): 773-702-7593

Fax: 773-702-0666

Email: info@celiacdisease.net

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted
  • Author

Open Original Shared Link

The University of Chicago Celiac Disease Center

5841 S. Maryland Avenue, MC 4069

Chicago, Illinois 60637

Celiac Disease Hotline (Monday-Friday): 773-702-7593

Fax: 773-702-0666

Email:

kareng Grand Master
kareng
Posted

I used the email. I emailed the actual copies of my kids labs ( they want the actual copies in case you re- type them wrong). I got a response within a day or two. However, the doctor that reads them was visiting his family in Italy so it was a few weeks until he got back. But they told me that.

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted
  • Author

I used the email. I emailed the actual copies of my kids labs ( they want the actual copies in case you re- type them wrong). I got a response within a day or two. However, the doctor that reads them was visiting his family in Italy so it was a few weeks until he got back. But they told me that.

ok, thanks, email will be the best way for me to communicate since my kids will be home from school tomorrow and it's hard to talk on the phone when they are home~ so one last question....do the docs read and go over the test results for free or is there a charge? and are they very helpful?

kareng Grand Master
kareng
Posted

ok, thanks, email will be the best way for me to communicate since my kids will be home from school tomorrow and it's hard to talk on the phone when they are home~ so one last question....do the docs read and go over the test results for free or is there a charge? and are they very helpful?

Give them a brief list of symptoms & your experience with your docs. The key word is brief! I got a very brief response, sort of a yes or no answer. But my answer was no Celiac so maybe they would give more if its a yes. There is no charge but they did ask me for a donation, which I did. Its not neccsary, however. With my diagnosis of Celiac, we have changed where we donate our money so we switched to them for some of our charity money.

Edit: that sounds like we are some kind of rich people. We just give a little to different places that mean something to us.

The Horticulturalist Apprentice
The Horticulturalist
Posted

If someone knows the toll free hotline number can you please post it? I found a number on their website but I don't think that's it. thanks!

I called them, they returned my call in about 2 - 3 days. Most of the time it's an answering machine, but they do call back. I then emailed with the lady I talked to, she was very nice. The Dr did review the labs for me at the time.

I found them very helpful, can't say enough good things about them. :)

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    • trents
      Test interpretations

      By trents · Posted

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test interpretations

      By MicG · Posted

      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back?

      By catnapt · Posted

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