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Celiac Disease Center In Chicago

MoMof2Boyz

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MoMof2Boyz Enthusiast
MoMof2Boyz
Posted

If someone knows the toll free hotline number can you please post it? I found a number on their website but I don't think that's it. thanks!

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kareng Grand Master
kareng
Posted

Open Original Shared Link

The University of Chicago Celiac Disease Center

5841 S. Maryland Avenue, MC 4069

Chicago, Illinois 60637

Celiac Disease Hotline (Monday-Friday): 773-702-7593

Fax: 773-702-0666

Email: info@celiacdisease.net

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted
  • Author

Open Original Shared Link

The University of Chicago Celiac Disease Center

5841 S. Maryland Avenue, MC 4069

Chicago, Illinois 60637

Celiac Disease Hotline (Monday-Friday): 773-702-7593

Fax: 773-702-0666

Email:

kareng Grand Master
kareng
Posted

I used the email. I emailed the actual copies of my kids labs ( they want the actual copies in case you re- type them wrong). I got a response within a day or two. However, the doctor that reads them was visiting his family in Italy so it was a few weeks until he got back. But they told me that.

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted
  • Author

I used the email. I emailed the actual copies of my kids labs ( they want the actual copies in case you re- type them wrong). I got a response within a day or two. However, the doctor that reads them was visiting his family in Italy so it was a few weeks until he got back. But they told me that.

ok, thanks, email will be the best way for me to communicate since my kids will be home from school tomorrow and it's hard to talk on the phone when they are home~ so one last question....do the docs read and go over the test results for free or is there a charge? and are they very helpful?

kareng Grand Master
kareng
Posted

ok, thanks, email will be the best way for me to communicate since my kids will be home from school tomorrow and it's hard to talk on the phone when they are home~ so one last question....do the docs read and go over the test results for free or is there a charge? and are they very helpful?

Give them a brief list of symptoms & your experience with your docs. The key word is brief! I got a very brief response, sort of a yes or no answer. But my answer was no Celiac so maybe they would give more if its a yes. There is no charge but they did ask me for a donation, which I did. Its not neccsary, however. With my diagnosis of Celiac, we have changed where we donate our money so we switched to them for some of our charity money.

Edit: that sounds like we are some kind of rich people. We just give a little to different places that mean something to us.

The Horticulturalist Apprentice
The Horticulturalist
Posted

If someone knows the toll free hotline number can you please post it? I found a number on their website but I don't think that's it. thanks!

I called them, they returned my call in about 2 - 3 days. Most of the time it's an answering machine, but they do call back. I then emailed with the lady I talked to, she was very nice. The Dr did review the labs for me at the time.

I found them very helpful, can't say enough good things about them. :)

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

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