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Celiac Disease Center In Chicago

MoMof2Boyz

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MoMof2Boyz Enthusiast
MoMof2Boyz
Posted

If someone knows the toll free hotline number can you please post it? I found a number on their website but I don't think that's it. thanks!

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kareng Grand Master
kareng
Posted

Open Original Shared Link

The University of Chicago Celiac Disease Center

5841 S. Maryland Avenue, MC 4069

Chicago, Illinois 60637

Celiac Disease Hotline (Monday-Friday): 773-702-7593

Fax: 773-702-0666

Email: info@celiacdisease.net

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted
  • Author

Open Original Shared Link

The University of Chicago Celiac Disease Center

5841 S. Maryland Avenue, MC 4069

Chicago, Illinois 60637

Celiac Disease Hotline (Monday-Friday): 773-702-7593

Fax: 773-702-0666

Email:

kareng Grand Master
kareng
Posted

I used the email. I emailed the actual copies of my kids labs ( they want the actual copies in case you re- type them wrong). I got a response within a day or two. However, the doctor that reads them was visiting his family in Italy so it was a few weeks until he got back. But they told me that.

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted
  • Author

I used the email. I emailed the actual copies of my kids labs ( they want the actual copies in case you re- type them wrong). I got a response within a day or two. However, the doctor that reads them was visiting his family in Italy so it was a few weeks until he got back. But they told me that.

ok, thanks, email will be the best way for me to communicate since my kids will be home from school tomorrow and it's hard to talk on the phone when they are home~ so one last question....do the docs read and go over the test results for free or is there a charge? and are they very helpful?

kareng Grand Master
kareng
Posted

ok, thanks, email will be the best way for me to communicate since my kids will be home from school tomorrow and it's hard to talk on the phone when they are home~ so one last question....do the docs read and go over the test results for free or is there a charge? and are they very helpful?

Give them a brief list of symptoms & your experience with your docs. The key word is brief! I got a very brief response, sort of a yes or no answer. But my answer was no Celiac so maybe they would give more if its a yes. There is no charge but they did ask me for a donation, which I did. Its not neccsary, however. With my diagnosis of Celiac, we have changed where we donate our money so we switched to them for some of our charity money.

Edit: that sounds like we are some kind of rich people. We just give a little to different places that mean something to us.

The Horticulturalist Apprentice
The Horticulturalist
Posted

If someone knows the toll free hotline number can you please post it? I found a number on their website but I don't think that's it. thanks!

I called them, they returned my call in about 2 - 3 days. Most of the time it's an answering machine, but they do call back. I then emailed with the lady I talked to, she was very nice. The Dr did review the labs for me at the time.

I found them very helpful, can't say enough good things about them. :)

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    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
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      By xxnonamexx · Posted

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      Yeast extract

      By JoJo0611 · Posted

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    • trents
      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

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    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

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