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Celiac Disease Center In Chicago

MoMof2Boyz

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MoMof2Boyz Enthusiast
MoMof2Boyz
Posted

If someone knows the toll free hotline number can you please post it? I found a number on their website but I don't think that's it. thanks!

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kareng Grand Master
kareng
Posted

Open Original Shared Link

The University of Chicago Celiac Disease Center

5841 S. Maryland Avenue, MC 4069

Chicago, Illinois 60637

Celiac Disease Hotline (Monday-Friday): 773-702-7593

Fax: 773-702-0666

Email: info@celiacdisease.net

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted
  • Author

Open Original Shared Link

The University of Chicago Celiac Disease Center

5841 S. Maryland Avenue, MC 4069

Chicago, Illinois 60637

Celiac Disease Hotline (Monday-Friday): 773-702-7593

Fax: 773-702-0666

Email:

kareng Grand Master
kareng
Posted

I used the email. I emailed the actual copies of my kids labs ( they want the actual copies in case you re- type them wrong). I got a response within a day or two. However, the doctor that reads them was visiting his family in Italy so it was a few weeks until he got back. But they told me that.

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted
  • Author

I used the email. I emailed the actual copies of my kids labs ( they want the actual copies in case you re- type them wrong). I got a response within a day or two. However, the doctor that reads them was visiting his family in Italy so it was a few weeks until he got back. But they told me that.

ok, thanks, email will be the best way for me to communicate since my kids will be home from school tomorrow and it's hard to talk on the phone when they are home~ so one last question....do the docs read and go over the test results for free or is there a charge? and are they very helpful?

kareng Grand Master
kareng
Posted

ok, thanks, email will be the best way for me to communicate since my kids will be home from school tomorrow and it's hard to talk on the phone when they are home~ so one last question....do the docs read and go over the test results for free or is there a charge? and are they very helpful?

Give them a brief list of symptoms & your experience with your docs. The key word is brief! I got a very brief response, sort of a yes or no answer. But my answer was no Celiac so maybe they would give more if its a yes. There is no charge but they did ask me for a donation, which I did. Its not neccsary, however. With my diagnosis of Celiac, we have changed where we donate our money so we switched to them for some of our charity money.

Edit: that sounds like we are some kind of rich people. We just give a little to different places that mean something to us.

The Horticulturalist Apprentice
The Horticulturalist
Posted

If someone knows the toll free hotline number can you please post it? I found a number on their website but I don't think that's it. thanks!

I called them, they returned my call in about 2 - 3 days. Most of the time it's an answering machine, but they do call back. I then emailed with the lady I talked to, she was very nice. The Dr did review the labs for me at the time.

I found them very helpful, can't say enough good things about them. :)

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      By wellthatsfun · Posted

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    • knitty kitty
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    • trents
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      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
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      Positive biopsy

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      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
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