Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting The Hubby On Board


theWiers

Recommended Posts

theWiers Newbie

I was finally diagnosed with Celiac's three weeks ago, after years of misdiagnosis. It's been both good and bad, as I am sure you all know, good to know what's causing all my pain and discomfort, not so easy adjusting and learning how to cope. My husband has been extremely suppportive, but sometimes I fear he doesn't take the diagnosis seriously enough. He was convinced we didn't need to buy a new toaster and tonight I had to remind him not to double dip his knife in the butter or use the same spatula when cooking his grilled cheese then touching the food I would be eating. I try to be open and share with him the things I have learned while I am learning them. I have encouraged him to read books and articles that I have read, which he says he will do, but I have not seen yet. Does anyone have any tips to get him on board a little more?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

First...it's a learning process and habit breaking process for all!

If you are going to toast, get a $15 one that looks different from the gluten one. Keep it in the cabinet or put a cover on it.

I have red cooking utensils. The gluten ones are black, maybe white. I get red duct tape or electrical tape to put on my margarine, PB, etc. No reminding the gluten eaters because ...if it's red - don't touch without asking. He will need to remember to grab his cheese and cold cuts before he gets the bread or have his own cheese & cold cuts.

You tell him that my kids were 16 and 13 when I had to go gluten-free & they can do it. The key is to make it as easy as possible to keep gluten & gluten-free apart. If he is making a gluten sandwich on his pan, he can't touch the one on your pan. It's easier at first to just let him make his first while you putz around in the kitchen ( keeping an eye on him). Then make your grilled cheeses on your pan.

We were having cheese and crackers night. My now 15 yr old didn't like my crackers but I said no to gluten ones. He ate more apples and carrots instead. He and hub said to tell them what is easier or what part of a process bothers me. I won't hurt their feelings. They don't want me sick.

melikamaui Explorer

Maybe you could ask him to spend some time on this board? I've found this more enlightening than any book or other website that I've found.

AVR1962 Collaborator

Mine is the same. When I first got the diagnosis she was all excited that finally I had an answer and I thought that meant he was onboard. Then when friends would ask HE would tell them that "we" weren't sure, that maybe the liver detox I did several months ago still had my system messed up. WHAT? I then just tell our friends that I was diagnosed with celiac and being on a gluten-free diet I am getting betetr. We have been married 19 years so I suppose after all this time together it is hard for him to think this is permanent. I get his gout is permanent and I don't doubt that one but oh well!

We've had the same issues in the house. I made some gluten-free cookies and there was only a couple left but husband put new gluten cookies right on top of my cookies, ugh. When I asked if he just did it, he said he never even thought. Cheese is another issue. He likes sliced cheese on his bread but always prepares the bread first which puts crumbs out and then he cuts the cheese on the counter so we had to figure out a system to change all that.

We were out to dinner this past weekend. I have been gluten free for 6 months. My meal arrives swimming in gravy, something that was not listed on the menu. I knew I couldn't eat it and we are taling about it. Husband kindly offers his meal BUT he ordered pasta. REALLY?

So you have to become the teacher and really all people can do is respect the rules you lay out for them but I am not sure they will ever totally get it unless they go thru it themselves.

T.H. Community Regular

I think sometimes one of the problems can be trying to visualize what can cause a problem. One of the most important things to get our mother-in-law to realize was that this wasn't your typical 'intolerance.' A lot of people view celiac disease kind of like the gluten version of lactose intolerance, where a little bit is okay.

A good reminder is that this is an auto-immune disorder and involves our immune system, and that's set up to react to tiny, tiny things, not 'just a little bit.' That part of our body has to react to germs, to bacteria, to small particles of an allergen. And this is the part that we are keeping gluten away from, so we have to be very diligent about avoiding it.

My husband made an analogy that has worked well for us, too: treat gluten like you would raw meat. Any time we touch raw meat with an object or a utensil, we have to wash that before it touches anything else. Same for gluten. If we have dripped juice from raw meat on the counter or plate, we have to clean that up before we put other food on it. Same with gluten. If we touch raw meat and then touch something else, we have to clean that something else now (like a knife to use on the peanutbutter). Same with gluten.

It's a bit of a crude analogy, but it can help get your brain in that place of thinking about what gluten has touched, you know?

Oh, the one thing that doesn't hold up with the meat analogy? You're not going to be able to sterilize gluten so it's safe, because it's not alive like the bactria are. So sanitizers and regular high heat don't do diddly to gluten (just think of how high a temp it takes to cook bread, and THAT doesn't destroy the gluten, right?). It has to be washed away with soap and water, usually.

GlutenDude Newbie

Education is key. Make sure he knows how sick you can get if you have even the smallest bit of gluten. And it's not just a short-term thing. You are damaging your body, which could lead to cancer, etc. Sometimes celiac gets stuck with the "food allergy" label, even though we know it's not. Frustrating indeed.

Di2011 Enthusiast

Print this (without the adverts etc so they don't dismiss or distract) and make hime read it:

https://www.celiac.com/articles/148/1/Celiac-Disease-Death-Rates-Increase-Dramatically-for-the-Undiagnosed-and-Untreated/Page1.html


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

It takes time. Remember HE is adjusting too.

You should have seen my husband's face the first time I refused to kiss him after he ate gluten. How's THAT for messing up a romantic evening????

It will probably hit home the first time you get sick. When my husband saw how sick I got wine tasting (another topic, but be careful with alcohol now it can really sneak up on you), and then the blood sugar problems hit again this week (I evidently got glutened) he sure got more protective. He refused to let me go back to our old house (where I was glutened from construction materials) and went alone to do some dirty work.

He'll get there. My advice is to have a gluten-free household. I promise they'll live over it (and will appreciate not being told to wash their hands, etc. every 2 minutes).

Bubba's Mom Enthusiast

We are still learning here 3.5months into it. I dish my food up first from the stove and walk away while my hubby gets his bread and butter, etc.

I made breakfast for supper last night. I had sliced up an orange and had the plate sitting on the counter. Hubby made his toast and ended up with crumbs all over the oranges.

Once I had eaten my eggs I went out to get a couple of orange slices and saw all of the crumbs. I mentioned it and hubby came to see. He said he was sure he had been very careful, but there was the evidence.

He knows he has to be careful with his gluteny things, and clains he is, but it seems like every time I go into the kitchen I see a trail of crud he's left behind. Rather than just clean it up I call it to his attention so he learns to do better. With the orange incident he said "man you don't miss anything. I'm being really careful and I don't see these things you point out." I told him my life depends on me seeing the messes he makes!

It's a learning process. It takes time. So many things are done on "auto pilot" without thinking. When my hubby screws up I point it out, but not in a hostile way.

He told me he wishes there was a boot camp that families could go to to relearn how to do things.

sariesue Explorer

Have you considered preparing all of the food for a while and just cook gluten free? Or cooking together? When I first went gluten free either I cooked or my husband and I cooked together. For a while he did not cook on his own. Not until he was used to cooking gluten free. Would your husband be willing to make your house gluten free? That might be easiest for a while.

theWiers Newbie

Thanks everyone! I guess the biggest take away is that it is a learning process. I am still learning and have to remember he is too. Also that the learning curve is not as steep for him. I'm sure we'll get there!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Son's legs shaking

    2. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    3. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.