Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vision Issue, What Is This?


AVR1962

Recommended Posts

AVR1962 Collaborator

This has been going on for 8 months. While other symptoms have gone away this has not. Please tell me what I am describing and how to help it:

blinds on windows literally blind me

striped shirts, same, pattern seems to bright

escalator lines in the steps are too bright and blur my vision so I can't see the step properly

lots of bright leaves scattered on the walks are too bright and overwhelm my vision

a friend sitting across the table from me with sun reflecting on a white wall makes it hard to see my friend


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CR5442 Contributor

It's really wierd isn't it?! I go through phases of vision issues. I remember when i was younger I was always squinting, to protect my eyes from the light. Right now I get a lot of images staying as shadows in my eyes for minutes after stopping looking at said thing... say a TV or a light. Since I've been on a liver detox and also sorting out the adrenal fatigue things seem to have gotten better. I went out today in the sunshine without my sunglasses... so must be slightly better.

do you have any idea what might cause yours?

captaincrab55 Collaborator

It's Dry Eyes & Glare for me... I'm using RESTASIS for the Dry Eyes & Transition Lens in my glasses, but the Reflected Glare is my Biggest Eye Issue... Transition Lens just don't help the reflective glare here..

domesticactivist Collaborator

On a hunch I googled light sensitivity and cod liver oil. It looks like a potentially promising connection. We use green pastures fermented cod liver oil.

Skylark Collaborator

Have you gone to an ophthalmologist? They're sometimes quite good at diagnosing odd vision problems.

rosetapper23 Explorer

I attribute my own vision problems to my difficulties associated with Vitamin A--I don't think I absorb it well, and it's too inflammatory for me to take as a supplement. If there's too much white around me outside(like tents at a craft show), I become dizzy and feel blinded. For me, Vitamin A deficiency has caused night blindness since I was 11 and sensitivity to bright light. If there's too much white around me outside(like tents at a craft show), I become dizzy and feel blinded. However, I can't wear sunglasses, because then my vision is too impaired to see (due to the night blindness). My eyes are also pretty dry, but I haven't yet started to use drops. I take cod liver oil stirred into a little bit of yogurt in the evening in my attempt to get SOME Vitamin A into me.

captaincrab55 Collaborator

Have you gone to an ophthalmologist? They're sometimes quite good at diagnosing odd vision problems.

I was sent to a Neuro Ophthalmologist by my Ophthalmologist several years before I was diagnosed with Celiac in June of 09... The N O did save my sight in my left eye, neither the O or N O mentioned taking any vitamins...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

Thanks so much for the replies. I understand that vit A supplements are too risky because of the possible side effects, occuring to my doc......it is one of those that the body does not produce naturally and so can become toxic in large amounts. I understand that cod liver oil is a good substitute. If I have been misinformed let me know. I think I might be hunting me down some cod liver oil!!

sandsurfgirl Collaborator

I would definitely go to the doctor and have your eyes checked. Maybe they even need to do a CT scan or something to rule out anything bad. I wouldn't let that one go or think it's just celiac related. It's better to just be certain.

AVR1962 Collaborator

I would definitely go to the doctor and have your eyes checked. Maybe they even need to do a CT scan or something to rule out anything bad. I wouldn't let that one go or think it's just celiac related. It's better to just be certain.

I have had my eyes checked and a MRI was performed with no results. Eye doc asked if I had been tested for diabetes which I had. He did give me a prescript for driving glasses but that made no difference.

AVR1962 Collaborator

Follow up- bought some cod liver oil tabs which contain 1250 IU vit A each (25% of daily allowance) and 130 IU vit D. I am taking 3 tabs a day like the bottle suggests and I am noticing a big difference already. My body was in need of vit A!!

CR5442 Contributor

Follow up- bought some cod liver oil tabs which contain 1250 IU vit A each (25% of daily allowance) and 130 IU vit D. I am taking 3 tabs a day like the bottle suggests and I am noticing a big difference already. My body was in need of vit A!!

I think I might try that!

sandsurfgirl Collaborator

Wow, so the docs had no answers for you? Isn't that just typical? Just like with celiac. They shrug their shoulders and we have to be our own physicians. Glad the supplement is helping.

AVR1962 Collaborator

Wow, so the docs had no answers for you? Isn't that just typical? Just like with celiac. They shrug their shoulders and we have to be our own physicians. Glad the supplement is helping.

My docs have not helped me with any of my symptoms. I have had to find answers for them all. Thank goodness we live in the Internet age!

CR5442 Contributor

I know what you mean! My dietician said 'well, itching isn't normal', and I said 'yes, I know' hoping that she would have some sort of idea... but no! My herbal lecturers are brilliant though, it's like they are completely tuned in to the whole person. I've been asked to be a patient as they think I'm unusual - a good learning patient... though probably not as unusual as all that by the sounds of it!

blueshabooMoon Apprentice

Follow up- bought some cod liver oil tabs which contain 1250 IU vit A each (25% of daily allowance) and 130 IU vit D. I am taking 3 tabs a day like the bottle suggests and I am noticing a big difference already. My body was in need of vit A!!

Wow..I am desperate also vision screwy issues eyes tests perfect, I am going to try cod liver oil also.Thanks for sharing, Terrilynne

domesticactivist Collaborator

I'm glad it helped! It might be good to tell your opthamologist and other doctors the good news. That way it will be in their mind as a possibility for other patients.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    3. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,255
    • Most Online (within 30 mins)
      7,748

    BeccaLynn
    Newest Member
    BeccaLynn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.